List of the most popular hashtags for theme #CHRONICALLYILL

Today was absolutely beautiful! I had fun at practice last night, my coach let me push a 5k and do some sprints since the rest of the team is training for a meet and I do more long distance stuff which was fun! I think I did 35 ish minutes which is good and close to my PB so that's good. The track is completely flat and the place I usually train in athens has downhills that definitely give me a time advantage but I finally slept well for the first time all week and then went on a very short hike with Nicole this morning. I cant do more than about a mile anymore without completely collapsing but it was still nice to be outside in the woods. We saw a snake and a deer and then I saw another snake in the yard when we got home! That's far too many snakes for me thanks. Been lying on the couch and in bed most of the day after that though. I'm tuckered out but very happy. #eds #ehlersdanlos #ehlersdanlossyndrome #chronicillness #chronicallyill #spoonie #rsd #crps #POTS #POTsie #tachycardia #pain #disabled #disability #edstype3 #dysautonomia #edsawareness #chronicpain #reflexsympatheticdystrophy

#illness #chronicillness #chronicallyill #snail

Thought of the day The day after overdoing it on a good pain day . . . #BNightsCRPS #CRPS #crpsawareness #crpswarrior #crpslife #crpssupport #chronicpain #chronicpainwarrior #chronicpainlife #chronicpainawareness #chronicpainmanagement #chronicpainquotes #chronicpainsupport #chronicillness #chronicallyill #chronicillnessmemes #chronicillnessawareness #chronicillnesswarrior #chronicillnesslife #chronicillnesssupport #chronicillnessquotes #chronicillnesses #burningnights #burningnightscrps #burningnightscharity #burningnightscrpscharity #bnightscrpscharity #charity

‍♀️ RELATIONSHIPS: And Mark’s point of view... Hi! My name’s Mark and this is my perspective of being in a relationship with someone with Fibro. I struggled for a while being able to talk about how I feel. I felt bad when I wasn’t entirely happy and felt that I couldn’t talk about it because Hannah already had enough on her plate. For anyone in the same position, it is so important you talk about how it makes YOU feel too. Hannah helped me realise that it is ‘ok not to be ok’ with it all the time. It doesn’t make you a bad person, its perfectly normal and by accepting it and talking about things it’s definitely made me and Hannah closer. Anyone supporting someone with Fibro will every day hear the words “I’m in pain” or “I’m really achy” and it’s hard to deal with the fact that there’s no cure. All you can do is do the little jobs that can be big jobs for those who are struggling: do the washing up, make food or drinks, fill a hot water bottle - anything to make it a little easier! I know Hannah really appreciates it. I’m an active person so the challenges of being with someone with Fibro for me are obvious. It’s hard not being able to do everything together but we make it work. I quite enjoy the free time as I can play golf, watch football or (probably too frequently) go for beers with friends! My last comments are aimed directly at people with chronic pain conditions: 1️⃣We are not mad at you. 2️⃣We don’t think you let us down. 3️⃣We don’t think you are holding us back. 4️⃣We love you because we want to, not because we have to. I’ve learnt a lot from Hannah and even though she thinks she often lets me down, she doesn’t, I couldn’t be prouder. #fibromyalgia #chronicpain #hypermobility #autoimmunedisease #chronicfatigue

Love this ... Soooo me... But I'm definitely trying to learn how to balance... #tookthisfromsomebody #chronicallyill #chronicallyillproblems

TW: weight/emetophobia/nutrition talk So I no longer have an NJ tube. Which is terrifying. It blocked this week so we came in to get it fixed as usual and got told they would only do a surgical tube, so that's what we were expecting. And then on Thursday a new gastro took over my care and told me everything is in my head and they want me to just sustain myself orally This isn't in my head. I know that for a fact. There's many tests that haven't been run, plus I have gastro diagnoses so this has come out of nowhere and we don't know what to do. I have no nutrition and hardly any hydration and we're not sure where we're going to go from here. Even just trying to keep drinking to stay hydrated is causing me to throw up. I'm still in hospital but might be discharging soon as I'm just sitting getting sicker and then we'll be looking for an EDS/GP specialist gastro BC I'm not due to see my gastro til July and we know I won't be in a decent state til then. It's frustrating for this to be happening again. I have been told in the past that my pain and dislocations were in my head just for them to turn round months later and go 'huh, turns out it was real!' and whilst I have no doubt that'll happen again, I can't just sit and wait. My weight is only just above the line for being underweight and I'm dropping quickly. Please can I ask you guys to pray. Pray for a plan, pray for the right doctors, pray for my nutrition to get figured out. I'm getting worse everyday and am genuinely suffering pretty massively right now. We need God to show us a path because at the moment things are so unclear. Love you all - - Picture creds to @thechroniccommunity

If I had a nickel for every time someone suggested yoga, I’d be rich! #chronicillness #chronicpain #chronicfatigue #invisibleillness #invisiblefight #ra #chronicallyill #spoonie #spooniestrong #spoonielife #spooniesupport #spooniewarrior #butyoudontlooksick #StrongerThanYouThink

Let’s talk living alone with a disability. I love letting my introverted self flourish, without the need to worry about a roommate: leaving the windows open while I blast French music, leaving my laundry in the dryer for a few days, and relaxing with a glass of wine after a long day, all without feeling pressure to have conversation. ⠀ ⠀ That being said, living alone with a disability is HARD, and I don’t want to sugarcoat it. I spend a lot of (probably too much) time and energy running my apartment. Between keeping up with bills, maintaining a clean space, making meals, and working to pay said bills, it’s hard to find time for much else.  However, it’s the price I pay to live in a place I love and to be fiercely independent.⠀ ⠀ It's been nearly 6 months, so I rounded up 10 lessons I’ve learned to ease life living alone with a disability.  The link is in my bio, if you’d like to give it a read!⠀ ⠀ Question: who else LOVES their alone time⠀ ⠀ ⠀ ⠀ ⠀ ⠀ ⠀

Friday’s have become a day that produce a lot of anxiety for me. We have this one friend that always wants to hang out on Friday nights, and when I can’t because of my illness she is often very dismissive and rude. I’ve tried many approaches from trying to get her to understand better, to saying screw it, I don’t owe her an explanation but no matter what, I always end up anxious all day and upset when she responds poorly. It’s so easy to say what the “right” responses to these types of situations are. It’s easy to say well, this person shouldn’t be in your life then, or don’t let someone dictate your emotions, or this is how you should explain your illness. We all know have heard those things, but we all know real life is so much more complicated and messy than that. So shoutout to all of you who are doing the best you can today and every day. Life is complicated enough without tossing chronic illness into the mix. #chronicillness #chronicpain #chronicfatigue #invisibleillness #invisiblefight #ra #chronicallyill #spoonie #spooniestrong #spoonielife #spooniesupport #spooniewarrior #butyoudontlooksick #StrongerThanYouThink