chronicbadass 420supportgroup autoimmune boneprone201 colonless crohnsdiease jpouch liverdisease osteoarthritis osteoporosis patientshelpingpatients pouchitis chronicfatigue chronicillness chronicpain djgummie420 drbroklegg fibromyalgia hollywoodslums invisibleillness knackink knackinkcollective luxurysodas slactavis spoonie colonless
Never be ashamed of your scars. They show where you have been. That life tried to break you but failed. That you survived. I have had scars since before I can remember. None of them define my life, but simply shaped the person I have become. These are the markings of a warrior.
#wheelinwithcf #chronicbadass #scarsarebeautiful #cysticfibrosis #transplantlife #doublelungtransplant #scarstellastory
Everyone’s journey with chronic disease is different. Even if two individuals have the same chronic disease no two journeys are the same. But at the end of the day we are all Chronic Badasses
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Chronic Badass sports bras are back in stock visit: https://www.etsy.com/shop/SaltyCysters
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Happy Friday
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❌⭕️❌⭕️Lea & Tiff
First ride from my hospital room complete✅ Even though this bike is no Peloton, it will do while I’m here I just did my fav girl Robin’s live dj ride, and it felt so good to move despite my lower lung function and how I’m feeling. Even when things seems bleak, we can find a way to turn down the fear and turn up the courage ✨ First few minutes into the ride Robin said “I’m going to give you an IV of swagger” I felt like she was talking to me ♀️ Shout out to @onepeloton for an amazing app where you still can take live classes even when you’re away from your bike!
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#onepeloton #justkeepmoving #cysticfibrosis #cysticfibrosiswarrior #cf #cfirl #chronicillness #chronicbadass #fridaymotivation
DISCHARGE
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After over 2 weeks, I got to go home last night, and transfer into a Partial Hospitalization Program (PHP). I can sleep in my own bed and use my own shower... the simple pleasures we take for granted. I had a bad POTS flare and was feeling like I was gonna pass out even when laying down, so I got IV fluids. This past week I’ve been in a lot of pain. Mostly spine pain, headaches, and migraines. Anticipating my upcoming fibrin glue patch to hopefully help! It’s scheduled for Monday July 30th at 9:30am. Although, I may need to move it for the PHP.
Routine CF Clinic ♀️|| Today was my routine every 6 week CF Clinic visit! All around it was a good & very positive visit My lung function has remained stable & even tho I’m feeling good, we decided to do a few weeks of IV antibiotics Mainly bc I haven’t done them in awhile & we want to prep my body for my up coming trip to Italy so I can fully enjoy it & feel good
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Happy Tuesday Friends
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❌⭕️❌⭕️Lea
#transformationtuesday! So, maybe these photos weren’t actually taken in the dazzling places they seem to be BUT the results are still the same. The photo on the left was taken a month after Chris’s double lung transplant and the one on the right was taken about seven months after. I remember taking the photo on the left and thinking he looked so strong and healthy considering what he had just been through. Now, the muscles are coming back, scar healed up nicely, and he has even started jogging(!!!!). I am happy to say that I’ve actually been struggling a bit to keep up with all of his energy and I am thrilled to tag along a few steps behind my hero.
-Brenna
#Repost @fibrosufferer com @get_repost Thank you
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#Repost @brittneyzelasco thank you for describe our disease very well .
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Estou compartilhando essa foto na esperança de que ela possa ajudar a difundir uma consciência genuína sobre a fibromialgia e outras doenças crônicas invisíveis. Isso não é o que minha pele realmente parece, mas é assim que meu corpo realmente se sente na maioria dos dias. Alguns dias são melhores que outros e embora eu pareça com todo mundo e tento manter um sorriso no rosto e ter uma atitude positiva, minha dor é muito real. A pior coisa que alguém pode fazer por uma pessoa que tem uma doença crónica invisível é fazê-la sentir como se precisasse provar que sua dor é real. Se você está confuso e não sabe como agir em torno de alguém que está cronicamente doente, fale com eles e faça perguntas, a maioria de nós estamos abertos sobre o que passamos e queremos espalhar as nossas experiências para ajudar a quebrar o estigma do que é ter uma deficiência invisível. Toda pessoa que tem uma doença crônica invisível é DIFERENTE e, embora possamos compartilhar a mesma doença, isso não significa que nossos sintomas e jornadas serão os mesmos, portanto, não nos julgue de como lidamos com nossas doenças e, ao contrário, bom seria se tivéssemos conversas genuínas para que possamos continuar a espalhar a conscientização sobre as doenças invisíveis .
#fibromyalgiaawareness #chronicbadass
#chronicallyillorchronicallyfabulous
#fibromialgia #dorcronica
@fibrosufferer Esta sou eu ... Adaptação para Português : Fabiola Rocha @fibrofab
Okay, I’m officially in Fall mode. Especially after this hurricane weather day after rainy day!
These pumpkin spice oats were the bomb and I will be eating them allll season. I’m all about seasonal foods so prepare yourselves friends
Inside:
1 cup quick oats
1 1/2 cups oat milk
2 1/2 tablespoons of organic pumpkin puree
1/4 tsp all spice
1/4 tsp cinnamon
And a dash of nutmeg!!
Also, spice to taste! I love a lot of flavor in my oats and if you’re looking for something a little sweeter, try adding figs on top or adding a little bit of local honey to the oats while they’re cooking!
I added chopped pecans, banana, pumpkin seeds, and @purely_elizabeth granola (aka my favorite) on top!!
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Are you channeling all the Fall goodness yet And, if you’re not, you’re missing out
It’s been a good week. By “good week,” I mean a good week for me. A good week compared to 2 weeks ago. I’ve gotten the chance to exercise this week in an attempt to improve my mental health since I can’t take many antidepressants. Exercise is also so important in feeling good in general. I’m not supposed to exercise during my 6 weeks of surgery recovery, but I decided that the benefits outweighed the risks. My pain levels have been bad this month with arthritis and headaches and back pain, but it was worse a year ago. I have made a lot of progress since starting IVIG in May. I get my next blood patch on October 25th, so I’m looking forward to my back pain and headaches improving soon. Trying to focus on the positive.