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Dear Healthy People...
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#chronicillnessquotes #chronicillness #chronicpain #invisibleillness #fibromyalgia #crohns #lupus #cfsme #mecfs #multiplesclerosis #diabetes #arthritis #ehlersdanlossyndrome #posturalorthostatictachycardiasyndrome #endometriosis #chiarimalformation #lymedisease #raredisease #autoimmunedisease #chronicpaindisorder #thyroiddisease #gastroparesis #ibd #celiacdisease #pcos #myastheniagravis #andmanymore
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@mhiir_14 Find our main page on Facebook #mentalhealthandinvisibleillnessresources
Well that’s accurate ♀️
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#chronicillnesscommunity #meawareness #MyalgicE #mecfs #meadvocacy #cfsme #cfs #fibro #fibromyalgia #chronicfatigue #chronicpain #chronicillness #chronicillnesslife #chronicillnesssupport #chronicillnessquotes #chronicillnessblogger #chronicillnesswarrior #spooniehumour #myillnessmythoughts #butyoudontlooksick #Invisibleillness #arthrits #autoimmunedisease #spoonie #spoonies #spooniesupport #pots
They mean well, they really do. But sometimes people’s “helpful” suggestions just send you over the edge #amirite Don’t let it ruin your friendships — here are five tips from one of our patient advocates on how to maintain friendships with a chronic illness:
✨First and foremost, determine who you can trust, and who you can’t. There may be some people who you just DON’T confide in about your chronic illness.
✨Tell them what it’s like to be you. A good friend will hear you.
✨Talk about the uncomfortable stuff — it will make your bond even stronger.
✨Keep in mind, you can talk until you’re blue in the face (please don’t do this), but no one else can really know exactly how you feel.
✨If they’re worth it, don’t give up — when we show our pain to our friends, it gives them permission to be honest about their hidden pain, too.
Get more advice on friendships with chronic illness from patient advocate and therapist, @katiejoramsey — link in bio.
A REALLY dark sense of humour Morning guys!! I have a new blog post up all about helpful products for coping with migraines- basically when the meds just don’t cut it & you need a bit more relief! The link is in my stories! Or pop to treatably.co.uk .
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#qotd #quotestoliveby #motivationalquotes #chronicillnesscommunity #meawareness #mecfs #cfsme #cfs #fibro #fibromyalgia #chronicfatigue #chronicpain #chronicillness #chronicillnesslife #chronicillnesssupport #chronicillnessquotes #chronicillnessblogger #chronicillnesswarrior #spooniehumour #myillnessmythoughts #dontforgetaboutME #spoonie #spoonies #spooniesupport #pots #treatably
#Repost @myillnessmythoughts
Oh the accuracy ♀️♀️ #chronicillnesscommunity #meawareness #mecfs #cfs #fibro #chronicfatigue #chronicpain #chronicillness #chronicillnesslife #chronicillnesssupport #chronicillnessquotes #chronicillnessblogger #chronicillnesswarrior #spooniehumour #myillnessmythoughts #butyoudontlooksick #Invisibleillness #arthrits #autoimmunedisease #spoonie #spoonies #spooniesupport #pots #treatably #lifewithanillness
I know many of you can relate to this. I’m feeling completely overwhelmed by everything atm, the last 7 weeks have been horrendous & it’s overwhelming me how sick & alone I am. I’m so thankful & grateful for my family, I quite literally wouldn’t be alive without them. My exciting news is that I don’t have a hospital appt this week (I don’t know when that last happened)!! I’ve lost count of the amount of time I’ve spent there of late but know I was there 8 times in 4 weeks at one point-if I wasn’t exhausted enough already!! I’ve had so many procedures, blows, test results and new meds in the last several weeks my heads all over the shop. My body refuses food & I’ve lost 12lbs in 3wks. But every time I break down my family is there for me, I’m so thankful for that. Me & my fat bruised lip (thanks Biopsy )are somehow going on (I can’t say strong, more tearful, collapse-y & very weak) & today I’m super excited as I’m getting a visit from a friend !! I can count on one hand how many I’ve managed in 12 months so I can’t wait!
I don’t have any words of wisdom except to let the tears come, we have to accept the worst times as much as any. Just know that you’re not alone in this fight, we may not know each other in real life but there is comfort to be found knowing you’re not going through this alone
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#qotd #chronicillnesscommunity #meawareness #mecfs #meadvocacy #cfsme #cfs #fibro #fibromyalgia #chronicfatigue #chronicpain #chronicillness #chronicillnesslife #chronicillnesssupport #chronicillnessquotes #chronicillnessblogger #chronicillnesswarrior #butyoudontlooksick #Invisibleillness #autoimmunedisease #dontforgetaboutME #spoonie #spoonies #spooniesupport #pots
Reminder to myself and anyone who tries to judge what someone who is sick should look like or how they should spend their time. .
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Just because we are sick doesn’t mean our lives are over. Yes, we have to adjust how we spend our time and what we spend our energy on, but it doesn’t mean life still shouldn’t include joy and fun experiences. We are sick, not dead. Don’t forget to still live your life, because you deserve to. ✨
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#splashoflyme #lymediseaseawareness #potsproblems #fibromyalgia #cfsme #moldtoxicity #wherethetiredgirlsare #healthjourney #chronicillnesswarrior #spoonielife #spoonieproblems #butyoudontlooksick #sicknotdead #invisibleillness #healthjourney #chronicillnessquotes #chronicillness #spooniehumor #womenhealth #healthadvocate #invisiblepain
The truest story
So the strangest thing happened. I was at reception after seeing my consultant, making my next appt for 6 months time (for this particular one) & the receptionist gave me a date in December, which genuinely shocked me. That it will be December in 6 months. It took me a little while to work out why. You see, I know it’s June, like in my brain, but in my body I haven’t started living this year (never mind the others), so to me 6 months time is maybe August-inside. Because I haven’t started to live, I haven’t lived the time, I’ve existed as the time has passed. So there’s this strange disconnect. I know that with extreme fatigue & cognitive function/brain fog we already feel this sense of disconnection from others, the ‘real’ world and so on, but I guess I hadn’t factored in this passing of time. I had in the sense of we’re forced to stand (less of the standing tho ) still while everyone around us move on with their lives, but not this kind of disconnection. The ironic thing, I saw this consultant at a consulting room at a campus for ‘Ageing & Vitality’... well I’m certainly not living with vitality and I’m ageing without living that’s for sure!!! (It was also a site for biomedical research, but so random). .
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#DontForgetAboutME #chronicillnesscommunity #meawareness #mecfs #cfsme #cfs #fibro #fibromyalgia #chronicfatigue #chronicpain #chronicillness #chronicillnesslife #chronicillnesssupport #chronicillnessquotes #chronicillnessblogger #chronicillnesswarrior #spooniehumour #butyoudontlooksick #Invisibleillness #autoimmunedisease #missingbutnolongersilent #spoonie #spoonies #spooniesupport
Thought of the day
Some people manage their chronic illness with green smoothies and Pilates. I manage mine with sarcasm and a dark sense of humour. You know, whatever works for you .
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#BNightsCRPS
#CRPS #crpsawareness #crpswarrior #crpslife #crpssupport #chronicpain #chronicpainwarrior #chronicpainlife #chronicpainawareness #chronicpainmanagement #chronicpainquotes #chronicpainsupport #chronicillness #chronicallyill #chronicillnessmemes #chronicillnessawareness #chronicillnesswarrior #chronicillnesslife #chronicillnesssupport #chronicillnessquotes #chronicillnesses #burningnights #burningnightscrps #burningnightscharity #burningnightscrpscharity #bnightscrpscharity #charity #spoonies #invisibleillness