List of the most popular hashtags for theme #HEMANGIOMABABY

“At birth Dominic was in heart failure, caused by an arteriovenous malformation (AVM) in his liver. He had also had a stroke caused by a hemorrhaged AVM in his brain, and his skin was covered in hemangioma. He’s also been been diagnosed with cerebral palsy, hearing loss, and vision loss as well as a genetic mutation on chromosome 13q21. ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀ We almost lost Dominic initially, something I never thought I would be doing was planning his funeral. I was broken, heck I still am, I am sure I have some PTSD over this whole thing. But he’s here and he’s a survivor.⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀⠀ We don’t know what struggles he will have in the future, but I’m just happy he’s here with me.” . . . . #orangesocks #specialneeds #specialneedsparenting #specialneedsmom #advocate #disability #prenataldiagnosis #support #grief #parentsupport #network#yeg #survivor #warrior #raredisease #avm #avmsurvivor #pediatricstrokesurvivor #hemorrhagicstroke #braininjury #braininjurysurvivor #preemie #33weeker #hemangioma #hemangiomababy #cerebralpalsy #ptsd #13q21 #chromosomeabnormality

Oh my friggin ovaries Excuse me while I go pick up the pieces of my heart. I’ll just be over here contemplating whether or not I can really convince Bub that we need just ONE more baby . . . . #fostertoadopt #adoptionrocks #everlyann #letthembelittle #fosteradvocate #adoptionadvocate #littlelovebug #happyvalentinesday #hemangiomababy #kids_unscripted #motherhoodmoments #mynameismama #childhoodunplugged #stopdropandmom #momlifeisthebestlife #ohmyheart #ohmyovaries

My little monkeymonkey. . . . #summeriscoming #spring #gdansk #babywearing #chustonoszenie #forestwalk #sixmonthsold #mamaandbaby #hemangiomababy

A hemangi-what!! You may notice Immi's hemangioma. It wasn't there when she was born but popped up 6 days afterwards, starting off as a tiny pressure point. They occur in 1 in 10 babies and are more common in premmies, girls and babies under 1.4kgs - so Immi ticked ✅ all the boxes. It's not there forever, they do go away on their own but because it's so close to Immi's eye & growing we're treating it with #propranolol. These are sometimes called strawberry kisses or stork kisses but given Immi's battle over the last 38 weeks, we have been calling hers her Wonder Woman kiss because this little girl has shown Ben and I her incredible strength fighting her way through some incredibly tough times in NICU. She's made of stronger stuff than us and after seeing the struggles of some of the parents in NICU if Immi comes out with just a hemangioma, then we're doing incredibly well. I've always said strength is true beauty and Immi already has plenty of that. #goimmi #wonderwoman #hemangioma #hemangiomababy #nicu #premmie #preemie

love!! Is it weird I hope it never goes away? #hemangiomababy

• Vamos falar sobre a pergunta que mais escuto nos (quase) últimos 3 meses? A MANCHINHA DA FIORELLA - O que é essa manchinha no braço dela? Oi pessoal, turu pom? Essa “manchinha” se chama hemangioma, ele é uma má-formação vascular, com caráter benigno, e que pode ocorrer em diferentes partes do corpo. Essa condição é caracterizada por um conjunto de vasos sanguíneos não prejudicial à saúde do indivíduo, porém pode causar um desconforto estético a ele. (Fonte: Google). Ele é SIM mais “grosso”, fica em alto relevo na pele, é SIM bem vermelho como está na foto e SIM existem tratamentos para a retirada do mesmo. Porém nós decidimos aguardar o tempo dela e que ela decida se isso a incomoda ou não. Pode crescer? Pode crescer até o primeiro ano e já cresceu, porém também pode diminuir. Pode sumir “sozinho”? Pode, mas pelo aspecto dele o pediatra acredita que não sumirá. No mais, ainda não consultamos um especialista para falar com propriedade sobre o assunto. Fiz esse post na intenção de esclarecer aos amigos que nos perguntaram e também mostrar as pessoas que as vezes os bebês tem manchinha de nascença sim, isso não significa que eles são coitadinhos, que sofreram maus tratos ou estão machucados. Gostaria de pedir mais respeito em relação a isso. Que vocês tenham sempre AMOR! Bem como Fiorella tem todo o amor do mundo concentrado no seu bracinho ❤️ #marcadoamor #coração

Everybody, meet Eloise. This little doll was born at 29 weeks and was in the NICU for 54 days. She's so precious! ❤ #Repost @my_mini_miracle (@get_repost) ・・・ I’m sure most of you know by now that the spot on Eloise’s head is called a haemangioma but for anyone who missed the last post about it - it’s a type of birthmark (they are sometimes referred to as strawberry marks). These types of marks are actually quite common in full term babies but more so in premature babies, low birth weight babies and in girls (so it’s not surprising she has a ) It will eventually fade over time however due to it’s location and risk of complications we started seeing Dr Warren and his team of dermatologists to treat it with propranolol which just speeds up the process a bit. Now for the update as promised a while back. We had our dermatology check up today at the hospital and they are really happy with how it’s going. It will continue to change colour and flatten over the coming months. Her dosage of propranolol has been increased ⬆️ due to her weight gain and the fact that she has tolerated the medication really well (now I have to remember to give her the new dose ). They were so happy with how it’s going that we don’t have to go back for another check up for 2 months #baby #babygirl #adelaide #premmie #preemie #prematurebaby #haemangioma #hemangioma #hemangiomababy #29weeker #miraclebaby #miraclemumma #myminimiracle @miraclemumma

It’s #rarediseaseday today and I just am continually in wonder at my sons strength and change through these hardships. Some of our new followers might not know that Dominic was born with 2 rare diseases/conditions, diffuse hemangiomatosis and Arteriovenous malformations. Because Dominic’s AVMs he suffered a devastating stroke which destroyed his right temporal lobe and was in heart failure from his AVMs shunting too much blood and making his heart enlarged. We were told it was like being struck by lighting 3 times in a row. Individually his illness are rare but together exceptionally rare. He may also be the only one in the world with his genetic mutation, a gain at 13q21, we hope either my husband or I have this mutation, but are still waiting for genetic tests. This is especially complicated because my husband was adopted and cannot get information on his dad. But my boy has fought and fought darn hard. We don’t know how his life will look in the future and he has does have some deficits, cerebral palsy, partial blindness, feeding issues and speech delay as well as bleeding from his hemangioma periodically , but for now he’s my bubbly, loving, smiley, warrior, cheeky, mammas boy. #yeg #rarediseaseday #rarediseaseday2019 #fighter #warrior #avmsurvivor #strokesurvivor #hemangioma #hemangiomababy #heartfailure #heartdisease #13q21 #chromosome #chromosomallyenhanced #specialneedsmom #skindisease #beforeandafter #transformation #cutest #myson #miracle #faith #godisgood #prayers #mamasboy @theellenshow @ellentube @dr_oz @thedoctorstv @stollerykids #cerebralpalsy #speechdelay @emilia_clarke

It’s shocking to see how far how he’s come when you compare June to now. The medication is working!!!! @vbirthmarks #hemangioma #hemangiomababy #gains #makinggains #progress #gettingbetter #preemie #33weeker #strongaf #clearskin #progress #perfect #lovethisboy #loveyourself @theellenshow @thedoctorstv @oprah #hope #normallife