List of the most popular hashtags for theme #INSTACROHNS

Getting ready to go into surgery. #instacrohns @crohnscolitisfoundation

@mrcolitiscrohns IBD warrior since 2013 | Genuinely the most inspiring transformation I've seen!

@manny.tura Crohn's warrior since 2001

@tall_vintage_ginger 's little sister @ileostomy_crohn_princess - Crohn's warrior since 1999

Let’s talk Cimzia and migraines. . I’ve been on Cimzia for around a year now and as I write this I am experiencing day 5 of a non-stop migraine. How am I doing this? I’ve had headaches on Cimzia since the start. . I have now grown used to having a headache daily. . Sometimes I feel alone. Others say they’ve had headaches on biologics and others haven’t had any. . The bittersweet part of this is that this is the ONLY drug that has stopped my Crohn’s from progressing to get any worse. If I come off of this drug I really don’t have many other options. . Don’t get me wrong, the headaches did go away for 10 days and it was the best life I’ve lived in 12 years. But for now, I’m stuck with the unfortunate life of migraines. . Next steps? Research on acupuncture and how to get more sleep. I won’t give up on finding ways to eliminate all pain and I won’t give up on hope for a brighter tomorrow. . Until then. . Do you get migraines? . . #biologics #cimzia #crohns #crohnsfighter #ibd #chronicillness #patientexperience #stoma #migraines #accupuncture #ostomy #ostomybag #ibdsuperheroes #instacrohns #ostomyinspo

It’s all the latest in fashion accessories. A charming blue and white gown with the thoughtful feature of tying in the back so your bottom shows when you walk. A lovely bracelet with your name and date of birth. Only one color. White with black lettering. And a wonderful medical pole to push along. It has all the latest tubes that get wrapped around you!!!! All courtesy of Parkwest Medical Center. @covenanthealth_easttn @crohnscolitisfoundation @instacrohns #instacrohns

Personally I would choose the floor over a chair any day! I'm not very good at getting my blood drawn because my veins are ruined but I'm very good at getting people poke me til I bruise I even let the medical students have a go last week, aren't I good! @Regran_ed from @mx.spooniedoll - @Regran_ed from @theripleydiaries_93 #chronicillness #chronicpain #chronicallyfabulous #chronicillnessawareness #chronicfatigue #spooniewarrior #spoonielife #spoonieproblems #crohnscolitis #crohnswarrior #crohnsfighter #crohnslife #colitis #ibdandme #ibdsuperheroes #ostomyblogger #ostomybag #ostomywarrior #ostomyawareness #ostomylife #stoma #illness #tired #rest #skills #blogger #bloggerstyle #ileostomy #invisibleillnessawareness #instacrohns

My relationship with Crohn’s disease is complicated. As much as I don’t wish for my illness to be my identity or to define me, I need to give it some credit. Because I wouldn’t be doing what I am now if my own health and well-being wasn’t such an all consuming concern for much of my twenties. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ I don’t really share much about my illness here, but Crohn’s has been my biggest teacher. It’s the reason I advocate for self care and slowness, because for so long I felt like I had to keep up with everyone else. And the truth is I can’t. Finding my own rhythm and designing a life around that has been my biggest achievement. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ When you have a flare up you feel utterly hopeless. You pass blood when you go to the bathroom, you might not see a solid stool for months and months. The fatigue and pain is disabling. More recently I’ve started to experience sudden urgency to use the bathroom and it’s really upsetting and awkward as heck. ⠀⠀⠀⠀⠀⠀⠀⠀ Crohn’s is not just an invisible illness, but it’s also a private one. The blood I see in the toilet bowl has to stay between me and the toilet bowl, because nobody wants to hear about that. And It’s isolating. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Not feeling able to share it, means I often don’t. So this post marks me changing that. More than anything because I am not perfect, it’s chronic and I still struggle with it. So curating a picture perfect wellness feed just isn’t honest. I spend a lot of time at hospital appointments, having screenings and tests and my wife has to inject me every week with my meds. Thanks for seeing me. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ___ #crohnsdisease #crohns #ittakesguts #chronicillness #invisibleillness #ibd #ibdawareness #ccuk #instacrohns

Last #Humira of 2018! ‍♀️ • It’s been three & a half years with this little pen. 108 injections. I’d be lying if I said it wasn’t still a love/hate relationship. I still worry about the side effects. I still dread the pop of the needle. • But it’s given me my life back with officially three years of clinical remission. It’s given me the opportunity to travel (nine times, to be exact). It’s given me a healthy pregnancy & the most beautiful son I could have ever dreamt of. It’s given me a peaceful postpartum without a major flare. It’s given me a joyful wedding day, without the fear of flaring. The fears are still there for what negative effects long term treatment may have. But for now, right this moment, as I push this button for the last time in 2018, I’m just going to be grateful. ✨