jpouchlife jpouch nocolonstillrollin ulcerativecolitis crohnsandcolitis abogtrotterstoiletjourney crohnsandcolitisuk ibdawareness instacrohns toilet toiletsofinstagram toiletsoftheworld crohns toiletsoftheplanet beautifullymade patientcoach blogger colitis crohnsdisease disease savetheworldandliveforever autoimmune autoimmunedisease chronicillness ibdcantstopme invisibleillness abogtrotterstoiletjourney
I was first introduced to your page through my GI doctor. He was like, “You should follow Hannah Witton.” So I did and I absolutely love what you’re doing. Thank you for raising awareness for IBD and Ostomy. You’re truly inspiring.
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: @hannahwitton
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#happybaglife #nocolonstillrollin #ulcerativecolitis #ostomate #invisibleillness #ulcerativecolitisawareness #crohns #spoonie #stoma #ileostomy #ileostomybag #ileostomylife #ulcerativecolitisfighter #spoonielife #spooniewarrior #ostomates #ibd #positivevibes #jpouch #jpouchlife #getyourbellyout #chronicillness #crohnsdisease #ibdgang #ostomy #ostomyawareness #ostomybag #ostomylife
it's easy to get wrapped up in living every day once you actually can. 3 years ago i was laying in bed sick everyday for 9+ months because of #IBD. it's crazy how when you're going through something so traumatic you fight everyday just to get through it but one day you can look back and just think "shit, how did i even get through that?!"
- 3 surgeries later and here i am. -
even though i still have problems on the daily and it's not always easy, this is my normal now and i find a way to deal with it.
do i ever wish i didn't have to deal with this on the daily? sure, but right after i remember that i wouldn't be where i am right now and be able to help as many people as i can with going through what i went through so i wouldn't change a thing.
today is a reminder that i am strong and i am a survivor.
no matter what you're going through and no matter how much it doesn't seem possible, you will get through it and it'll all be okay. happy #WorldOstomyDay
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#worldostomyday2018 #jpouch #jpouchlife #jpouchsurgery #ostomy #ostomyawareness #ostomywarrior #ostomydayusa #jpouchsurgery #jpouchfitness #ibdawareness #ibdwarrior #ibdbeauty
1: October 2017 (total colectomy)
2: March 2018 (j-pouch formation)
3: May 2018 (takedown)
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You can see how bad my #moonface was in the first thanks to #prednisone •
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Before these surgeries I had never had surgery before so you could imagine how terrified I was. I knew these surgeries no matter the outcome would help me feel better and back to myself.
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Surgery is the most terrifying thing to me but without my family pushing me, telling me if was going to be okay, or telling me if I didn’t have surgery I would get more sick, I’m not sure if I would have done it. •
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I push my first surgery out for 8 months because I was so scared of having an ostomy. Turns out it was the best decision I have ever made. My ostomy gave me my life back. 3 weeks after my first surgery I flew from California to St. Louis to surprise my boyfriend because I told him I wouldn’t see him until Christmas break because I didn’t know how I’d feel after surgery. He was so surprised! We even went out to dinner each night and he didn’t have to sit there alone because my dinner date would be the bathroom stall.
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I didn’t only push my surgery out so long because of me being too scared. My family had been talking about going to Disneyland that summer. I went to go find my dad to tell him how much the hotel was and I found him in the back yard face down on the ground and not breathing. I had to begin giving him CPR until the ambulance got there. They had to shock him around 30 times and we had no idea if he was going to wake up but because they froze his body and then warmed him back up he woke up and didn’t have any brain damage. They said it was a miracle and the CPR saved his life. So no matter how sick I was I wanted to make sure he was okay and well before going in for life changing surgeries. •
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I guess my point is, surgery can be scary but no matter what you’ll be okay. I was terrified to have a bag attached to my stomach that I poo in but it saved my life and I would do it all over again if I had to. Sometimes I miss having a bag but I’m so happy with my j-pouch! •
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#nocolonstillrollin #jpouch #jpouchlife #jpouchsurgery #spoonie #ostomy #convatec #hollister
four years ago today my life changed forever. as you may or may not know the struggles i went through, today marks the day of my first surgery, the day i finally started feeling better and the day i was able to start living a “normal” life again without being bedridden for weeks.
as i say all the time, i may struggle on a daily basis but i couldn’t be more thankful for everything.
even though it was a tough 9 months, i wouldn’t trade it for anything because of everything it taught me.
if i didn’t go through all of the things i went through and felt every emotion there is i wouldn’t be able to do the thing i love doing most which is being there for all of you.
i wouldn’t be able to relate and help in any way i could. i wouldn’t be working on and writing books to help people and i definitely wouldn’t be who i am today. ✨
#IBDAwareness #jpouchlife
Vi auguro di potervi innamorare dell’essere vivi.
Tempo fa mi dissero:
“Mi dispiace ma lei ha una malattia cronica”.... •
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⚠️ SCORRERE L’IMMAGINE PER VISUALIZZARE L’ARTICOLO... ⚠️ oppure—> https://m.facebook.com/sara.langella.92
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❌Ringrazio chi dedicherà un minuto del suo tempo a questa lettura abbandonando ogni singolo pregiudizio ma ancor di più ringrazio chi si soffermerà al mero contenuto dell’immagine con la speranza che un giorno la vita possa sciogliere tutti i vostri dubbi.❌ ⭐️
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•I wish you could fall in love with being alive.
Some time ago they told me:
"I'm sorry but you have a chronic disease" .... •
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⚠️ SCROLL THE PICTURE TO DISPLAY THE ARTICLE ... ⚠️ or-> https://m.facebook.com/sara.langella.92
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❌ I thank those who will dedicate a minute of their time to this reading abandoning every single prejudice but even more I thank those who will focus only on the content of the image with the hope that one day life can dissolve all your doubts. "❌
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•IBD TAG: #nocolonstillrollin #humirapen #humira #siallavita #autoimmune #autoimmunediseases #ulcerativecolitis #ibdfifhter #siallavita #coloplast #chronsdisease #cronicillness #ostomy #ostomybag #stomia #rettocoliteulcerosa #amicionlus #immunotherapy #prendisone #ostomylife #ostomyfashion #nocolonstillrollin #megacolon #jpouch #jpouchlife #resilence #chronicfatiguesyndrome #cronicpain #cronicwarrior #womenfighters #ibdawareness #invisiblebodydisabilities @coloplast @instamicionlus @efccayouthgroup
It’s often easy to get frustrated by the restriction health issues can place on us. Thanks @kristenschronicles for reminding us about we shouldn’t forget all the things we can do.
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“Without my ileostomy I would not be walking, running, swimming, singing, dancing, pursuing a degree, working out, spreading love and kindness or trying to change the world. While my ileostomy may make me a little different, I will never apologize for something that saved my life.”
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#ileostomy #ulcerativecolitis #chronsdisease #chrons #chronsandcolitis #chronicillness #chronicillnesses #chronicpain #chronicfatigue #spoonie #spooniestrong #spoonielife #lupus #fibrofighter #fibro #fibeomyalgia #autoimmunedisease #autoimmunedisorder #ehlersdanlossyndrome #ehlersdanlos #lymedisease #jpouch #jpouchlife #fightlikeawarrior #chronicillnesswarrior #spooniesupport #spoonieproblems #spooniefamily
Each day the ring around my stoma scar fades a little more and more and I’m slowly starting to have days where I feel completely normal.
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Sometimes I forget that my body attacked itself and my colon tried its very best to kill me and essentially made two years of my life a living hell.
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It isn’t easy to forget the past. Sometimes you don’t want to, and sometimes no matter how hard you try to forget you can’t.
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I don’t want to forget my journey. Was it fun? No. Did I think I’d never get to the end? Yep. Do I want to do it over again? Not in a million years. But I’m proud of where I’ve come and I’m proud of where I’ve been. I’ll keep telling my story because it isn’t over. There are people out there whose stories are just beginning and they need to see that there’s life after this and that there’s light at the end of some really long, ugly tunnels.
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Lately, I’ve been forgetting I’m not “normal.” I can go for hours doing “normal” things and not even think about my jpouch. And that’s pretty amazing. And you know what, that’s me living life. And that’s me being happy and being proud.
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Don’t ever give up friends. We must continue to fight and tell our stories.
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Det der med at leve med én j-pouch er et mysterium. Jeg var i dag på OUH for at få fortaget en pouchskopi af min j-pouch. ♀️Jeg har i flere uger haft blødninger bagtil, haft svært ved at komme af med aff, set slim og været bange for at det var pouchsitis, altså betændelse i min j-pouch. Efter en lille kikkertundersøgelse, viser der ikke tegn på hverken betændelse, fornævring, blødninger. Min tyndtarm ser så fin ud, lys og sund som lige efter anatomi bogen, som min overlæge sagde. Jeg kunne selv se med på skærmen og ja den så sgu meget nydelig ud.. ❤️ men hvorfor fanden bøvler jeg så, så meget med den? ♀️ Lægens svar: "Trine, du skal drikke væske, meget væske! Du skal nyde livet, tag en dagen af gangen med maden og du skal selv finde ud af hvad du kan tåle, for du er ikke som andre mennesker med en tyktarm og der ting du ikke kan tåle. Du ser også alt for frisk ud til at der skulle være noget galt og at få en stomi tilbage kan der slet ikke være tale om.. Alt er perfekt deroppe " Blødninger er åbenbart normalt... hvilket jeg som patient stadig ikke liiige helt kan forstå. Men hvor er jeg lettet og jeg nu selv kunne få et indblik i hvordan der ser ud deroppe. Nu må jeg tag en dag af gangen, drikke pokkers meget vand og nyde livet og et nyde et liv uden Colitis Ulcerosa.❤️ #colitisulcerosa #colitis #jpouch #jpouchsurgery #ouh #odenseuniversitetshospital #odense #vejle #sygeplejerskestuderende #studerende #fighter #liv #smile #lettet #danish #danishgirl #dk #danmark #denmark #nurse #jpouchlife