List of the most popular hashtags for theme #MCAS

Just a few days ago a receptionist said this to me. The sting that comes after I hear this never gets any easier. It’s the assumption that comes a long with this statement that really gets me. Your assumption that I spend my days lying by the pool, going to spin class and shopping couldn’t be more wrong. I’m a person who prided myself on being an overachiever. I guess in the chronic illness department I’ve followed that stereotype as well with the lovey trifecta of EDS, MCAS and dysautonomia. As I sit here with my neck brace in a pain flare unable to hardly move, I’m not sure this is what that woman imagined she’d rather be doing. Now I spend my days going to several weekly doctor’s appointments, researching new symptoms trying to stay ahead of them, taking supplements and medications at the proper times, trying to be aware of my stress levels, making sure I do all the proper self care regimens, managing my pain levels, trying not to injure myself, and that’s just to name a few. I was a successful businesswoman and professional singer. My choice would be to go back to that. Learning to accept that my life doesn’t allow me the choices it did before is something I still struggle with. I know the majority of people are just ignorant and unaware of what they’re saying. But I’ve stopped letting them remain ignorant. We can’t sit idly by and hide behind an uncomfortable smile. If you want to make an assumption about me or anyone that is different for that matter, then it’s now my responsibility to educate you. Because trust me, you don’t want to trade places with me, I doubt you’d last a day.

What tips or advice do you have for dating and relationships with chronic illness? • Our big themes in today’s episode are authenticity, communication, and self-love. Sometimes the hardest part about any type of relationship with chronic illness is accepting and building that relationship with yourself first ❤️ • • •

Thank you for your time ✌️

We see you, we recognize you, and we honor you • All of you are absolutely amazing whether you are fighting a visible or invisible illness, fight daily or periodically, are full functioning or bed bound. Each and every person who is part of the chronic illness community makes it what it is- supportive and loving • • •

* * お疲れっス * * 岩国FSD予行のグローブマスターⅢ * 超デカ❗️ * * location:山口 米海兵隊岩国基地 MCAS * * #福岡ひこうき部 * *

Tremendous thanks to everyone who came out to support the Race to Beat POTS yesterday! 331 participants raised over $47,000 for Dysautonomia International's research, physician education, public awareness, and patient empowerment programs! If you haven't donated to this amazing event yet, you can help us make it an even $50K by donating at bit.ly/RaceToBeatPOTS2019. Much love to the Harten and Kulp families, who organize this inspiring event each year, volunteer coordinator Emily Kovalesky and her family, and so many others who step up to volunteer and donate. Because of you, someday we are going to #BeatPOTS! . . . . . . . . . #POTS #dysautonomia #autonomic #fainting #syncope #neuropathy #potsies #spoonies #eds #mcas #chronicillnesswarriors

✨I’m seriously missing my infusion porch I had on vacation. It definitely wasn’t the same doing it here, back at home on my couch. Buuuuttt, it was nice because a few neighbors stopped by & my bff/neighbor Shari & her awesome daughter ended up chilling with me. It was nice to see them, I missed them. And also my girl & neighbor Karen also stopped by, too! I love my sweet neighbors. Although I miss vaca, I’m also glad to be back home. . I hope everyone’s having a nice day! Love you ALL!✨ . . . . . . . . . . . . . . . . . . . . #vacation #spoonievacation #infusion #salineinfusion #pots #dysautonomia #chronicillness #chronicpain #heds #eds #ehlersdanlossyndrome #fibromyalgia #endometriosis #mcad #mcas #mastcell #mastcellactivationdisorder #mastcellactivationsyndrome #spoonie #spoonielife #zebra #zebrastrong

A huge self esteem issue I have faced is wearing a mask. The issues I've been having with my lungs got significantly worse over the past year. In crowded spaces this is also neccesity to filter out germs and allergens. I recently got a new @vogmask and I forgot just how great they are. - - - #vogmask #lungs #breathe #mcas #lungsurgery #lungdisease #mastcellactivationdisorder #allergens #dysautonomia #invisibleillness #gerd #dysphagia #chronicillness #chronicallyill #spoonie #spoonielife #spooniesupport #chronicallyfabulous