insomnia msday mssymptoms msawarenessmonth multiplesclerosis msawareness chronicillness multiplesclerosisawareness mssociety multiplesclerosiswarrior mswarrior autoimmunedisease invisibleillness chronicpain fibromyalgia fatigue positivevibes awareness curemultiplesclerosis heroeswithms howmsfeels invisibledisease msfatigue msstudy positiveattitude positivequotes spasticity symptoms lifewithms heroeswithms
On this day a year ago, I was sitting in the ER with the suspicion something might be wrong.
I had lost all feeling in my right leg, could barely lift my left leg off the ground and my right hand wouldn’t follow directions I was telling it. Confusion marred my every thought, my speech was slurred and words seem to escape like blank memories. I felt like a stranger in my own body; I seemed to have lost myself in the matter of a week. Fear filled every corner of my mind that still seemed operational.
I had to figure out what was going on, because nothing made sense and the pain was taking over. After ruling out several possibilities, my doctor ordered an MRI and with my family by my side he confirmed my dark suspicions. He shared with us that they discovered several golf ball sized lesions in my brain and over 15 on my spinal cord.
On March 13, 2018, I was diagnosed with Multiple Sclerosis.
It felt as though the room had collapsed around me and I might fall of the bed. The roar of intense fear rung in my ears the pounding of my heart beat drowned out what the doctor was saying to my dad. In what couldn’t have been more than seconds I scaled all stages of grief, imagining every terrible scenario that could lie ahead: dread turned into relief, relief morphed into anger, and that anger settled into sadness. I was someplace I never thought I would be.
The days that followed were dark. After giving blood for the thirteenth time in a week, I remember throwing up in the doctor’s office alone and exhausted. The needles were starting to give me anxiety and with an already collapsed a vein the thought of one more stick made me ill. My thoughts were not clear, likely due to the intense medication I was taking to return my ability to walk, and I was lost. In those moments, I could not imagine living without the use of my hands or continuing to stumble and drag my feet. I felt it was better off to not be a burden on everyone around me – I thought death would be a better option. I spent the days telling everyone I was fine but it was all a lie.
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Staying positive is the key ♥️
#HeroesWithMS
#multiplesclerosis #ms #mswarrior #msawarenessmonth #invisibledisease #spasticity #awareness #mssymptoms #msday #invisibleillness #fatigue #insomnia #positivevibes #positivequotes #positiveattitude #msfatigue #symptoms #msday #fibromyalgia #chronicpain #chronicillness #curemultiplesclerosis #msawareness #mssymptoms #autoimmunedisease #insomnia #mssociety #multiplesclerosisawareness #multiplesclerosiswarrior #howmsfeels #msstudy
This is so true
#HeroesWithMS
#multiplesclerosis #ms #mswarrior #msawarenessmonth #invisibledisease #spasticity #awareness #mssymptoms #msday #invisibleillness #fatigue #insomnia #positivevibes #positivequotes #positiveattitude #msfatigue #symptoms #msday #fibromyalgia #chronicpain #chronicillness #curemultiplesclerosis #msawareness #mssymptoms #autoimmunedisease #insomnia #mssociety #multiplesclerosisawareness #multiplesclerosiswarrior #howmsfeels #msstudy
What’s up MS Gym Nation!! Ready to get educated? Check out our BRAND NEW feature called ‘NeuroPlastic Nuggets’ !!! These will be added to our already popular existing segments of Mindset And Movement Minutes !
Get ready to learn and be empowered!
Here is the first one :
NeuroPlastic Nugget 1: What The Heck Is Neuroplasticity? ( if you’re finding these mini trainings helpful Please share the love and share on your feed so other MS’ers who need this can learn about it) #neuroplasticity #neuroplasticitytraining #neuroplasticnugget #multiplesclerosissupport #multiplesclerosiswarrior #multiplesclerosis #msawareness #mswalk #multiplesclerosiswarrior #multiplesclerosissociety #msawarenessmonth #lifebydesignnotdiagnosis #youcanheal #trainyourbrain #themsgym #themsgymexercises #themsgymmovement #ms_awearness_ #mswalk #bike_ms
This post is a bit more personal but I hope it inspires others. After a 1.5yr of being off medications for my MS &treating it naturally my MRI confirms no new/enhancing lesions on my brain. The disease that use to impact my life a great deal,does not anymore. I am so grateful!!! There are two very special people that have been a huge source of knowledge and support in this process & their names are Andrea & Luke. My mom and family have also been there every step of the way, every hospital stay, every moment of weakness. Thank you to all of you. I am not a medical professional/telling you what to do with your condition. This is just my story. I was diagnosed w/ MS at 15yr old. I was hospitalized every 6months usually with vision loss&my MRI each time had 4-6new lesions, which is when I was told I had the worst form. I was put on harsh medications-one almost gave me a deadly brain virus, another made me break out in horrible hives & swelling at daily injection site, and the last one was the worst-horrible infections/weak immune system/chronic fatigue/hormonal imbalance. I could not get healthy!! It has now been 1.5yr since I officially cut ties with all my medications. I use vitamin D, Magnesium, Lion mane mushroom, healthy diet and exercise to treat my MS for the most part and I see a naturopath to ensure my body has everything it needs to be healthy. I’m not suggesting anyone go off medication but I have decided to start using my page to demonstrate things that help me in hopes these discoveries and personal trials will help others. Something I thought was impossible to over come & would always be a burden on my life is no longer a dark cloud on my life. It’s the greatest feeling. .
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#MS #mssociety #multiplesclerosis #live #love #laugh #smile #blonde #fitness #health #natural #msawareness #msawarenessmonth #msawarenessweek #behappy #diet #nutrition #appreciationpost #excited fitspo #
✨You can’t force someone to be interested in, or want to understand your illness✨
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This sounds blatantly obvious, but is often a difficult pill to swallow
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When I was diagnosed, the reaction and responses from the people around me varied greatly. Some were practical, others were distraught, some rallied behind me, others didn’t know how to act or what to say. And others didn’t understand the gravity of the diagnosis, and didn’t want to
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This has continued throughout my MS life
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None of these reactions are personal attacks on me, but reactions to what it means for them and to them. For some, it holds significance, and for others it doesn’t, and all of that is OK, despite how painful and often unjust it still feels at times
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Everybody processes and approaches dis-ease, illness and grief differently. Everybody moves at a different pace, and at different levels of comprehension. This type of ‘rejection’ is often just a reflection of their own selves
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Denial is common for those who are living something directly, but also for those who are witnessing it. It calls into question their own mortality and holds up a mirror to something they might not be willing to face just yet
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Even when that person is the one person you want more than anybody else in the world to understand, if they aren’t prepared to open themselves up to investing in the process, and you’ve shown them many possible ways, there is nothing you can do about it
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Remember, it’s not a personal affront or attack on you. They just mightn’t have the capacity to deal with it in this moment, or at this time. That doesn’t make them right or wrong, OR you right or wrong. It just means you are at different levels and requirements for now
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You can provide the information, but it’s up to them what they do with it - they could embrace it or they could ignore or dismiss it
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You can lead a horse to water, but you can’t make it drink
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The people who want to show up, WILL show up and they are the ones you want to remain in this altered life you might now be living
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CONTINUED IN COMMENTS
I’m not particularly pushy or overbearing... unless I’m #hangry . So this post isn’t me being pushy or overbearing at all. Promise.
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I just wanted to pop into your feed to gently remind you that I’m here for YOU. To help you conquer your Multiple Sclerosis symptoms .
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To fight fatigue & not let it get the best of you .
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To exercise without getting heat intolerance.
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To know EXACTLY which exercises to do at HOME to improve your strength and balance ♀️.
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See? Casual, right? Head over to my LINK in bio for more info! Oh... and 10% of your membership will be donated towards @mssociety this month for #MSawarenessMonth