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Honestly this is something I never thought I would share, but I feel like it needs to be seen.
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CF isn’t a pretty disease. On the cellular level our sodium channels don’t function properly causing all the mucus in our body to become thick and sticky. This sticky mucus affects the entire body, the most prominent is in the lungs, creating a perfect home for bacteria.
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Twice a day I have to do an hour of breathing treatments and airway clearance via a percussion vest and a PEP device to help loosen the mucus from my lungs so I can then cough it out. The goal of all of this is to lessen the mucus in the lungs thus lessening the opportunity for bacteria to call my lungs home.
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THIS IS REAL CF. It’s not being able to sleep in because the mucus in your lungs wake you up before any alarm. Having to strap into machines before even beginning your day. Forcing yourself to cough so hard your face turns red, you drool, you pee your pants, you can’t catch your breath, and then spitting a glob of mucus out preparing to do it over and over again for an hour. It’s tiring, it’s embarrassing, it’s not pretty, but it’s what I have to do to stay alive. When I am sick that two hours a day increases to four, and if you have been around me or anyone with CF you know the coughing fits don’t just last for that one hour, they are constant.
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I wanted to share this real side of CF not at all for pity, condolences, or sympathy. I simply share this for awareness, a glimpse into the side of the disease people rarely see especially on social media. To show how strong this disease has made every single person who devotes this time every day to their body, to their life, and their health. Instagram is always so pretty and posed, but I want to be real, I try to show the honesty of life while still staying positive throughout it all. Everyone who fights this battle is such a bad ass and I am so honored to be able to use this account to spread awareness and hopefully help someone out there feel less alone
Bored & waiting so I’m writing a PSA:
Do urself a favor and don’t get fu*king sick for 3 weeks and end up in urgent care like ya gurl over hrr. Take a vitamin and eat shit that tastes gross instead.
Ur new bffs
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#nebulizer #ytho #upperrespiritoryinfection #bronchitis #sinusinfection #gross #overit #no #voice #makeitstop #wasabi #time #psa #gethealthy #bored #ER
I do what I have to do so I can do what I want to do!
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I said this in an interview the other day when I was asked how do I keep motivated!
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The truth is if you want something there is a good chance you will have to do something that you don’t find enjoyable. But the rewards will always be worth it!
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I LOVE playing football! Hours slip by when I am playing. I do all my medications, all my nebulisers, workouts, everything so I can enjoy things like this!
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If you could play any sport professionally what would it be?
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#wontbestopped #americanfootball #quarterback #trojans #flagfootball #cysticfibrosis #nebulizer #inspireandeducate #fitness
Credits: @notthatpatel
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A different type of inhaler, made specially for kids. .
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Portable nebulizer !
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#weeklydesignchallenge #nebulizer #digitalsketch #mobo #medical #medicine #orange #blue #sketchmodel #throwback #ipadpro #sketchbookpro #dogitalart #sketcharchive #sketchwithandesign
Happy #Thorsday
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Why did I do the Thor thing? It’s honestly very simple to answer. I did it to help children with #cysticfibrosis.
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I did it to make taking their nebulisers and treatments not just normal but special!
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I remember thinking (before I bought the suit), what would I have done if I had seen superman or spider-man taking my medications when I was a child? Or just seen that they were like me! It would have been incredible for me!
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I did this for them! But I also did it for me! The ‘Thor’ thing really helps me mentally tackle this illness I have! It makes me do things when I really don’t want to!
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I think everyone needs a hero in their life to strive for. I am so so so grateful that I can hopefully provide that to a small amount of children
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(Don’t worry these children didn’t have CF and it really sucks I can never meet them like this!)
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#thor #wontbestopped #thorsday #lifewithcf #cfwarrior #hero #marvel #endgame #nebulizer #hero #superhero
Thorsday! I started this just for a bit of fun! I had no idea it would have the impact it would have!
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The idea that I have helped so many family’s with dealing with #cysticfibrosis is an incredible feeling and not one I ever expected!
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My lung functions increasing last week was a real testament to hard and smart work! And I don’t care how it sounds I am proud of it! Those bad results could have made me spiral downwards! But I took control of the things that I could control and went to work!
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Hope everyone had a great #thorsday
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#cysticfibrosis #wontbestopped #cfwarrior #thor #pepmask #nebulizer