List of the most popular hashtags for theme #PKUCOOKING

En helt igennem fantastisk oplevelse på @spiretaalborg i dag Brunch med mand og begge unger og personalet var SÅ behjælpelige med en pku-venlig brunch til den store. Tak for den gode service #pku #pkucooking #pkufood #pkudiet #pkumum #lowpro #lowprotein #lowproteindiet #lowproteinfood #lowproteincooking #phe #lowphe #phenylketonuria #raredisease

We are celebrating a family birthday. Large selection of pku friendly cake. My son can eat everything freely - however, the round cakes with colorful crumbles “cost” 1 Exchange (25 mg phe) #pku #pkucooking #pkufood #pkudiet #pkumum #lowpro #lowprotein #lowproteindiet #lowproteinfood #lowproteincooking #phe #lowphe #phenylketonuria #raredisease #nogluten

✨Happy 2nd Birthday✨ . 2 years ago today you came into this world & changed my life . I love you so much sweet little girl, you are my everything, I have enjoyed watching you grow & change so much over these past two years. You are more than I ever could have imagined . I am so sad that we are away from you today, but mom & dad needed a vacay . We can’t wait to celebrate with you when we get back, I hope you have so much fun with your grandma . #pku #phenylketonuria #parenting #myworld #lowpro #pkucooking #toddlersofinstagram #toddlerswithpku #carverspkujourney #metabolic #phe #happybirthday #two #2ndbday #toddlersofig#growingup #myeverything #beauty #rare #pkurare #staylittle #letthembelittle #hawaii #kona #babieswithpku #wellness #wellnessjourney #raredisease #fortstjohn

Mushroom risotto ~3.5 exchanges per portion makes 6 portions . (The whole 6 portion dish is 21 exchanges ) or ~exchange free for whole dish with pku rice ~ Ingredients : 500g Mushroom 1 1/2 ltr vegetable stock 50 grams butter 1 onion 300g risotto rice or pku mevalia rice ~21 exchanges ~ 30g vegan violife cheese Method : Prepare and cut mushrooms then fry in a pan for 5-8 minutes until cooked . Then take half the mushrooms and purée then with a Blender. In a separate pan melt butter and add onions frying for 8-10mins. Then add rice and vegetable Stock allow to simmer for 25-30mins until water evaporates . Then add the mushroom purée and violife cheese . Add the rest of the mushroom cut pieces . Then enjoy Kate x #pkufood #pku #pkudinner #pkurice #pkufoodies #pkucooking #lowprotein #lowproteindiet #phe #lowproteindiet #lowproteindinner #mushrooms #mushroomrisotto #veganrisotto #veganandglutenfree #katesfabfoodforpku #pkulife #gofoodpku

Vandaag met beide oma’s en tante een kookworkshop PKU gehad in Münster van het merk Meta X. Ontzettend leuk om te doen en de gerechten waren heerlijk! Zo’n opluchting, ik was zo bang dat eiwitarme producten heel vies zouden smaken, maar het smaakte helemaal niet gek. Ook leuk om ervaringen uit te wisselen met Duitse ouders. Geslaagde dag! Enne, Levin was gewoon mee en gedroeg zich voorbeeldig. #pkucooking #phenylketonuria #metaboleziekten #metax #cookingclass #pku

✨Low Pro Banana Veggie Muffins✨ . So, this was an experiment, they aren’t the prettiest, they aren’t perfect but Carver LOVED them, she cried when I wouldn’t let her eat more of them. #pkuwin . PKU cooking is difficult, I don’t often spend time making recipes for Carver because most of the time she won’t eat them, then I get frustrated because I wasted so much time making something for her only to throw it all out. I know I need to suck it up and keep trying but some days it’s hard. . These definitely need to be tweaked but overall a success! She also refuses to eat veggies so I hid some zucchini & carrots in these, my dietician said to not hide vegetables, to just keep introducing them to her and eventually she’ll eat them but she refuses to eat any vegetables she lives off of fruit & toast. So I gave in a hid some in these muffins. . These are about 20mg phe per muffin, but Carver is on the simplified diet, this means we only count higher protein foods, so I’m just counting the banana in them, this makes them 13mg counted phe for her. Her intake is 100mg counted phe/day. So these are pretty low & a good snack. . DM if you’d like the recipe‍♀️ . #pku #phenylketonuria #healthypku #pkyouth #lowpro #pkucooking #toddlersofinstagram #toddlerswithpku #carverspkujourney #metabolic #phe #simplifieddiet #health #whatpkuerseat #whatcarvereats #whattoddlerseat #hiddenveggies #geneticdisorder #rare #pkurare #experimenting #newrecipe #pkurecipesharing #pkurecipes #babieswithpku #wellness #wellnessjourney #raredisease #fortstjohn

Pizza with crust made of cauliflower. It was a BIG hit with my little guy #pku #pkucooking #pkufood #pkudiet #pkumum #lowpro #lowprotein #lowproteindiet #lowproteinfood #lowproteincooking #phe #lowphe #phenylketonuria #raredisease #vegan #vegetarian

She is worth every teary PKU “pre-con” day when I didn’t think her life was possible, every time I passed on social gatherings and eating out with friends because my phe levels just couldn’t handle it, every time I questioned if wanting my own baby was selfish, every blood draw, every hold-the-nose and try to chug formula without puking (and every time I chugged more formula again after puking), every battle with pharmacy and insurance companies to get what was needed to keep her healthy, every panicked phone call to the dietician and doctor, and every high-risk appointment. She’s worth it all & so much more ❤️ I’m getting an early start...PKU Awareness Month starts tomorrow (it’s gonna be May...sorry, I had to‍♀️) and awareness of maternal PKU this year means a lot to me after hearing so many young PKU women share with me that they want kids and just don’t know how it will be possible. It is. And whether you’ve prepared your body for months prior to pregnancy or you find out you’re pregnant and are getting healthy now, what a lucky kid to have a mama that loves them so much before they’re even born to do what’s needed to keep them safe. I encourage you to spread awareness this month about this (small) piece of you in whatever way you’d like...I think awareness is so important for acceptance and support! #PKUAwareness

Dinner: PKU friendly "fish cakes" with carrot salad and LP rice. The "fish cakes" are made of cabbage and onions.