prednisone autoimmunedisease chronicillness lupus spoonie vasculitis chronicpain invisibleillness lupusawareness lupussucks lupuswarrior naturalhealing spoonielife asthma asthmaproblems hydrocortisone omad asthmaattack asthmasucks asthmathings asthmatic breatheasy chemo copd copdawareness crohnswarrior diphenhydramine inhaler inhalers momlifestruggles
Please talk to your doctor before stopping prednisone! Abruptly stopping prednisone without a weaning schedule could lead to withdrawal symptoms or even adrenal insufficiency. Have any of you ever experienced this?
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#lupus #lupuswarrior #prednisone #cortisol #adrenalinsufficiency #addisonsdisease #rheumatoidarthritis #sjogrenssyndrome #multiplesclerosis #chronicillness #crohnsdisease #ulcerativecolitis #invisibleillness #scleroderma #autoimmunedisease #adrenalglands
Doing this really big thing tomorrow... running a 10k race and while I’m a little bit intimidated I’m mostly FIRED UP because I was scrolling through my photos and I found this one. Taken on January 9, 2019 the day after I had surgery to remove my colon when I was a sick, sad bean
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And now I’m here. About to run a 10k race in Toronto tomorrow... not trying to get all inspirational on ya but COME ON. You gotta keep going, because the comeback feels so so good
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Can’t wait to accomplish one of my biggest goals tomorrow ☠️❤️⚡️stay tuned
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#lululemon #lululemonto #lululemon10k #crohnssucks #chronicfatigue #ostomybag #crohnswarrior #ostomy #like #follow #goalgetter #goals #selflove #run #running #colitis #stoma #crohnsdisease #crohnsawareness #ibd #prednisone #glowup
Both #crohns and #ulcerativecolitis affect not only your #intestines and digestive tract but every part of your body. When you cannot properly digest and absorb nutrients you become nutrient deficient and as a result start develop symptoms that occur outside of digestive system. This includes fatigue, insomnia, depression, low thyroid, other #autoimmune diseases, #brainfog and many other. For example , a protein deficiency is very common in #ibd and can be one of the reasons why symptoms persist. P. S. I would like to let you know that FREE live potent probiotic is back in stock and FREE high quality premium protein is still available! Both can be very helpful for people with IBD . Protein can replenish nutrients that are often get depleted in people with #crohnsdisease and #uc , may help with energy and supporting recovery and #healing process. Probiotic can help to improve digestion and absorption of nutrients and strengthen the immune system. It’s truly free, no strings attached, worldwide shipping but both are running out of stock! Don’t delay and get it today via my website at https://outsmartdisease.com/IBD-resources or just click the link in my instagram profile description @crohnsresearch <<<===click
Feeling grateful lately health is steady, got a new do thanks to the goddess @tressesbytrinity (guys even my dad liked it which never happens), summer vacation is coming (because perks of working in a school), I'm almost off prednisone, my friend just had her baby (and @warrenxo he looks so cute I cant wait to meet your nugget) , & I got to spend the day surrounded by like minded, inspiring, and empowering people at our first event. •
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Life is so busy and we are always thinking about the future and what's next, but today it was great to just be in the moment and feel genuine happiness. I was able to reflect on all I am grateful for, how far I have come, and how lucky I am to have moments like these. I hope everyone else has been having a good Sunday ✌ now back to puppy snuggles.
This is the result of me being on prednisone for 7 weeks (60/40/30mg wean). Both of these pictures were taken without any makeup on. The prednisone has made me retain crazy amounts of water causing the puffiness in my face. It has caused “steroid acne” which thankfully is starting to improve. My lips have even started to swell up. On the positive side, my hemoglobin levels are back to normal and my eyes as you can see are no longer jaundice. Sometimes this medication is a matter of life and death. I am not as weak as I was over a month ago but these side effects are killer. I wish those of us living with autoimmune conditions had better options for medications when it’s a matter of life or death. Simply put, if it weren’t for this dang medicine I love to hate, I could very well not be here today. Dang antibodies.
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#lupus #lupusawareness #autoimmunedisease #autoimmunehemolyticanemia #hemolyticanemia #prednisone #steriods #hematologist #moonface #sjogrens #puffy #feellikeaballoon #chronicillness #invisibleillness
NEW t-shirt drop what are YOU made of?
i know i’m made up of many many things, one of them being fear that i hide behind my smile.
sometimes we have to abandon our fears.
when i look back on my biggest regrets, they’re 100% due to a decision i made out of fear. because i was too attached to my fears i reacted, instead of acting from of a place of self-love and worthiness.
pisces, type 4, INFP, empath… whatever system or language you speak, your girl is sensitive af and I still struggle a lot with the overwhelm my feelings and how they can really drown me which is particularly dangerous in decision making.
i don’t have any answers right now, other than i’m just trying to do my best as each situation comes through.
comment below what you are or what you resonate with (astrology, enneagram, myers briggs etc) and how you deal
ps shirts now available at rinabloom.com link in bio!
Medication and treatment for #crohns and #ulcerativecolitis isn’t cheap... And if you think about emergency room visits and surgeries it all adds up quickly and is week over tens of thousands of dollars. In fact, if your insurance doesn’t have a good co-pay option you may not be able to afford it. If you have a good insurance coverage please share to let other #chronies know. P.S. I’d like to let you know that through my website you can get a FREE bottle of live high potency probiotic (50 billion good bacteria) and a FREE container of a premium quality protein that can be very helpful for people with #ibd . These 2 supplements provide nutrients that are often lacking in people with #crohnsdisease and ulcerative #colitis It’s truly free, no strings attached, worldwide shipping. You can get it via my website at https://outsmartdisease.com/IBD-resources or just click the link in my instagram profile @crohnsresearch <<<===click
When you have #crohns and #ulcerativecolitis you have pain everywhere and the list of your symptoms can become long and exhausting... They can affect not only your digestive tract and intestines but any part of your body and even change from one day to another. You never know what to expect! Expect the unexpected... IBD doesn’t have weekends! P. S. I would like to let you know that a reputable health company is giving away a FREE container of high quality premium protein that can be very helpful for people with #ibd It can replenish nutrients that are often lacking in people with #crohnsdisease and #uc , may help with energy and supporting recovery and healing process. It’s truly free, no strings attached, worldwide shipping. You can get it via my website at https://outsmartdisease.com/IBD-resources or Just click the link in my instagram profile description @crohnsresearch <<<===clickable link
Today marks my very first day off Prednisone since my UC diagnosis! Being off steroids is a relief because of all the wild side effects, like dark facial hair (my wax girl saw A LOT of me these past few months). It’s also nerve wracking because my body doesn’t yet know what it’s like to have UC and not Prednisone.
I’m going to seize the day because I am feeling awesome! Tomorrow, next week, next month could be a different story though. UC and Crohn’s are unpredictable and can turn on a person reeeeal quick. Our bodies can be so strong one moment and so helpless the next. That’s just the way IBDs ebb and flow. There’s nothing I can do about it so I’m not going to lose sleep over it. I have to roll with the punches because it’s my life with a chronic illness! Enjoy today, be optimistic for tomorrow, and never, ever be discouraged by your own vulnerability.