List of the most popular hashtags for theme #REMICADEINFUSION

My little Warrior’s Monday morning cocktail of #remicade #remicadeinfusion #biologicdrugs #ulcerativecolitis #invisibleillness #ournewnormal #brave #hospitallife #warrior #bravelittlewarrior #healing #strongwomen #strong

I am currently not flaring and my medicine is working really well right now, so my list of foods I can eat is longer. However, I still have quite a few foods on my list of DO NOT EAT. Popcorn used to be it’s own food group for me before I got sick and now it’s one of the quickest foods to send me in a downward spiral to a flare. . . I feel that this picture perfectly describes me trying to explain what I can and can’t eat to someone who isn’t familiar with my diagnosis. There are so many things I can’t eat and for different reasons that it’s just easier to shrug my shoulders when I’m asked what I can eat, especially if I’m flaring. If I’m flaring, I can list the foods I can eat pretty much on one hand. . . I hope this funny picture brings a smile to your face like it did mine. Crohn’s disease can bring so much negativity, that I feel like it’s best to laugh at it whenever you can! . . . . #crohns #crohnsdisease #crohnswarrior #crohnsprincess #stomachproblems #nostomachproblems #mommywithcrohns #momwithcrohns #soontobemom #soontobemommy #soontobemomma #crohnswontstopme #colitis #autoimmunedisease #invisibleillness #butyoudontlooksick #crohnslife #crohnsfighter #remicade #infliximab #remicadeinfusion #crohnsandcolitis #ibd #remission

Capturing the last Remicade infusion of the pregnancy!! Highlights include my favourite, brutally honest nurse ( I LOVE her) declaring the skin surrounding my portocath a little “puffier” than usual and bringing them all cakes to celebrate. Nurses are superheroes. Bring them all the cake. #pregnant #puffthemagicdragon #nurse #nurses #remicade #remicadeinfusion #crohnsdisease #crohns #ibd #hospital #portocath #carpaltunnel

“You need to learn how to select your thoughts just the same way you select your clothes every day. This is a power you can cultivate. If you want to control things in your life so bad, work on the mind. That’s the only thing you should be trying to control.” Elizabeth Gilbert. Today I stand strong with my battle, my heart ♥️, my ulcerative colitis & my infusions. I choose to select my smile, my push through & to stand taller. #ibdwarrior #remicadeinfusion #selectyourthoughts

I’m Prego! Ha just kidding!!! This is my flare belly. Yep it happens. Apparently beans twice in a day is not for me it’s stiff and crampy and it’s extended to the max so hot pack tonight it is

I had my first infusion of 2018 on January 21st. I finally received my bill from the hospital in mid March. After numerous calls to the hospital billing department, my insurance company, and the medicine company who is providing financial assistance (definitely look into remistart from Jansen CarePath if you are on #Remicade), I can happily say the bill is settled with only some coming from out of pocket. Although these phone calls took up lots of time, they did help me overcome my social awkwardness when it comes to phone calls. Dealing with billing can be a pain, but I have learned that persistence pays off. Calling all these people helped me reduce my out-of-pocket cost for the infusion and now I have my out-of-pocket costs covered for the year!

Second Remicade infusion yesterday went great. I got the same nurse and made sure I brought food since I didn’t know how long it would take to get the meds down from pharmacy. Being treated at such a big facility definitely has its challenges. I slept through most of the infusion which was much needed. After I finished I did get belly aches but it could have been because of the food ‍♀️. I took this photo in the bathroom because I wanted to show those that are oblivious to our condition how serious it can really be. How even though we don’t look sick, having this IV on my arm and having to roll it around is just one of the many things we go through to live a “normal” life. Today I am on my way to Miami to see family and I’m very excited I hope you all have an amazing and blessed hump day

I usually don’t post a lot about my rheumatoid arthritis, but today I was just thinking how I’ve started a new medication and for the first time, in a very long time, I am starting to feel normal. Many people don’t know I’m sick or in pain because I try not to let it rule my life. Some days are easier than others to mask the pain and today, I think I might finally be on the path to actually feeling normal again. I am so grateful and happy for that! #ra #rheumatoidarthritis #remicade #remicadeinfusion #medicine #arthritis #invisibleillness #warrior

Ran into this today and I wanted to share because I believe it is 100% truth. Why would pharma companies find cures for the sick? Finding a cure means they can’t generate the massive amounts of $$$ they want to make from us. Even these “awareness” campaigns (Take Steps, Susan G Komen) are massively supported by pharma companies. Yes they spread awareness but that won’t find us a cure, we’ll just be more aware of how many are sick. Finding us a cure is not in their best benefit. We have to be our own advocates and find what is best for our bodies. I went years and years with doctors telling me no diet would give me relief from my disease. 12 years later I learned that was a Lie!!! Don’t be like me, don’t think it’s not possible to find relief through diet and lifestyle because it is. ( sorry for the rant ) I love y’all! Have an amazing weekend ❤️