List of the most popular hashtags for theme #SPOONIEPROBLEMS

And maybe an hour before too #fatigue #chronicfatigue #brainfog #chronicpain #chronicillness #spoonielife #autoimmunedisease #invisibleillness #spoonie #spoonieproblems #spooniestrong #mentalhealthawareness #mentalillness Shared from @gutsydating

Holy giggles I needed that laugh today. And yeah, I’m pretty sure that my pharmacist hates me too .

DON’T COMPARE // This is something I struggle with hugely. I’m so worried that I’ll never get back to “where I was” before I got #lymedisease. But then I realize that I’ve most likely had this since I was a kid, which means I really have NO idea what my true self is like. Is that crazy? Do you ever worry about that, or is it the #medicalmarijuana talking?

Going into the weekend especially, I like to try to “save up spoons”during the week, so I can try to do more with my family on the weekend. Many of you already probably have heard about the spoon theory but if not, this graphic will give you an overview. It basically helps someone with a chronic illness explain to others that part of our challenge is that we don’t have “unlimited spoons” or unlimited energy like an otherwise healthy individual would. Every action we take uses our energy. Some activities use much more “spoons” or energy than others. This has become a way for me to communicate with my husband or my family that it’s not that I don’t want to go do something with them, but I just don’t have enough “spoons” left. Or if I do, then I let them know, tomorrow is probably going to be a down day for me since I’m overusing spoons today. It’s become an easier way for me to learn to say “no” to things sometimes! I hope you all have enough spoons to have a great weekend! #spoonie #spoonieproblems #spoonielife #spooniesupport #edsupport #mastcellactivationdisorder #chronicillnesswarrior #chronicpainwarrior #dysautonomiaawareness #posturalorthostatictachycardiasyndrome #fibromyalgia #lymedisease #mecfs #lupus #dysautonomia #crps #ehlersdanlossyndrome #depressionawareness #ptsd #chronicillness #multiplesclerosis #multiplesystematrophy #als #spooniewarrior

Having an invisible illness means constantly self-advocating and, unfortunately, proving your symptoms are real. Sometimes it feels like a train wreck trying to find the right docs...just gotta be strong and keep fighting for the help you deserve . . . . . #eds #ehlersdanlossyndrome #ehlersdanlos #ehlersdanlosawareness #chronicillness #chronicpain #spoonie #spooniehumor #invisibleillness #selfadvocacy #spoonielife #spoonieproblems #chronicpainwarrior #zebrastrong #chronicallyill #heds #youdontlooksick #potssyndrome #posturalorthostatictachycardiasyndrome

... Tag that one friend... in the comment below . . . Join the support group @spoonie.collective

Self care isn’t always manicures and massages and yoga. Sometimes it is, and that’s so important but sometimes self care is making sure you take your meds, making sure you eat and drink enough water. It could be taking a shower, or it could simply be saying ‘no’ and choosing a day in bed to recover. A phone can only run on low battery for so long. A car can only run on ‘empty’ for a bit before it really does run out of fuel. Look after yourself, and give yourself a break when you need to #selfcare #selfcaresunday #sunday #selflove #selfacceptance #chronicillness #chronicallyill #chronicpain #chronicfatigue #invisibleillness #butyoudontlooksick #itsokaynottobeokay #autoimmunedisease #spoonieproblems #spoonielife #spoonie #spoonies #spooniestrong #mentalhealthrecovery #mentalhealthawareness #mentalillness

Throwback Thursday to the time you took medication and didn’t have to play russian roulette and watch out for a billion different side effects! What’s the weirdest side effect you’ve had from taking medication? . . . #spoonieproblems nvisibleillness #sickbutinvisible #youdontlooksick #butyoudontlooksick #ittakesguts #chronicblogs #chronicinsta #spoonielife #spoonieinsta #chronicpainwarrior #disabledandcute #invisibleillnessawareness #spooniesunite #ittakesguts #fibrowarrior #chronicfatigue #fibrowarrior #exhausted #chronicpain

You should be peeing every hour!⠀ ⠀ ⠀ ⠀ I get questions a lot from people who panic when they start having to pee very frequently after implementing a healing protocol. ⠀ ⠀ But this is actually exactly what you want!⠀ ⠀ Nothing to panic about. ⠀ ⠀ If you are NOT peeing on the hour, then you are not consuming enough fluid.⠀ ⠀ Most people pee only a few times per day ⠀ ⠀ That’s because most people are severely dehydrated!⠀ ⠀ After bringing in lots of lemon water, celery juice, other juices, smoothies, & raw fruits & vegetables FILLED with living water, your body will start to cleanse & eliminate the way that it is supposed to. ⠀ ⠀ This is necessary in order to heal & be healthy!⠀ ⠀ I know that this can be inconvenient with our modern lifestyles....⠀ ⠀ When I was a full time pre-med student, I spent so much of my time on campus & had to plan my life around access to bathrooms ⠀ ⠀ In one lecture I would sometimes have to leave 3 times to pee!⠀ ⠀ I had to get over my fear of disrupting the class, of missing information, & of what other people were thinking of me leaving so often.⠀ ⠀ I debated whether or not it would be easier for me to just lay off of the fluids, AKA suppress my body’s needs.⠀ ⠀ But I knew better than that, because when you are not hydrating enough to be peeing every hour, then detox doesn’t happen as efficiently.⠀ ⠀ We need lots & lots of fluids in order for our healing protocols to be complete.⠀ ⠀ So drink your fluids proudly!!! Hydrate the F out of your body, & find a way to make it work bathroom-wise!⠀ ⠀ If you feel like you are peeing 100x more frequently than everyone else...⠀ ⠀ It’s because you ARE , & that’s a GOOD THING.⠀ ⠀ You are giving your body what it needs to thrive.⠀ ⠀