absenceseizures epilepsy seizures epilepsyawareness grandmals epileptic seizuredisorder dravetsyndrome chronicillness epilepsyyouarenotalone invisibleillness epilepsysucks brainsurgery ucla 420girls cannabiscommunity epilepsywarrior neurosurgery shavedhead epilepsymemes neurology seizuressuck therapy fundraiser neuro painting anxiety brains dravetsyndromeawareness epilepsyadvocate grandmals
I get it all the time; “but you don’t look like you have epilepsy.” So what exactly is epilepsy supposed to look like, please tell me.
#butyoudontlooksickchallenge #butyoudontlooksick #ucla #cannabiscommunity #shavedhead #brainsurgery #420girls #invisibleillness #chronicillness #epilepsy #seizures #seizuredisorder #epilepticseizures #neuro #neurosurgery #neurology #brains #grandmals #absenceseizures
This week is #NationalEpilepsyWeek a time to raise awareness for those who are affected by it To look at this little lady you would never know that she was one of the many who live with #Epilepsy #NationalEpilepsyAwarenessWeek #GoPurple #photosensitiveepilepsy #eyelidmyoclonia #seizurefirstaid #ThisIsEpilepsy #absenceseizures #youngepilepsy
SUCH A GOOD BOOK I hope it’s made into a movie -
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EEGs suck, they are tiring, especially when they try to induce seizures. But this is the best EEG I’ve ever had still not cleared to drive but I’m learning it’s the small wins that matter! I just want my brain healthy
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One more day (even tho my doc wanted me to stay an extra ♀️) and I can shower, sleep in a bed wire free, and go the bathroom without an audience
#eeg #silentpatient #epilepsy #epilepsyawareness #petitmalseizures #absenceseizures
I am enjoying the chunky smiles we are getting more often
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#blytheshopeteam #blytheshope #epilepsyawareness #dravetsyndromeawareness #absenceseizures #dravetsyndrome #dravetwarrior #epilepsy #epilepsyawareness #dravetsyndromeawareness #thisisdravet #dravetmonth #dravetfacts #dravetsyndromeunfiltered #dravetsyndromehasnofilter
Hmm how weird it must be like that. But on another note I get my head back; done with stitches for this round and I get to shower like a normal human being once again. I never thought I’d be so excited to get something yanked out of my head. Again, thank you for being a part of my surgery diary; I’m keeping tabs for my epileptologists and neurosurgeon.
#cannabiscommunity #ucla #shavedhead #brainsurgery #420girls #epilepsy #baldisbeautiful #epilepsymemes #epilepsysucks #epilepsywarriors #epilepsyawareness #seizures #stitches #grandmals #absenceseizures
I am really annoyed with life at the moment. I am tired of all the tests and contacts with doctors... Hopefully, I get the seizures under control but first, I have to spend a day or two getting a video EEG. I will look at it like a break or vacation from the drudgery of daily life. #SilverLinings
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#actuallyautistic #seizures #seizuredisorder #epilepsy #tiredmom #autismacceptance #autismawareness #onthespectrum #spectrum_inspired #neurodiversity #seizuressuck #annoyedaf #irritated #eeg #videoeeg #veeg #eegtest #epileptic #autisticadults #autisticadult #annoyedwithlife #tryingtostaypositive #absenceseizures #temporallobeepilepsy #focalseizures
Super proud of this kid and how well he’s doing on his modified keto diet. Week 3 and ketones are according to his dip strips. Seizures are notably shorter in length and I’d estimate we are seeing at least a 50% reduction already! He has had some days where making the right food choices are harder than others, but this has been 100% his decision (with our support of course), and when we ask him what he’d rather do (meds or diet change), he chooses diet change every time. Sidenote: if my 6 year old can conquer an entirely new diet in less than a month, then whats my excuse, right?! Talk about motivation! #foodnotpharmacy #myrolemodel #myhero #epilepsyawareness #childhoodabsenceepilepsy #absenceseizures
Never been a smoker, never knew much about “weed”. This year the meaning of #420 has completely changed for me. Unfortunately the stigma about it has not. Canibis isn’t about just “getting high” anymore, as people like to peg it. It’s about saving lives, changing lives and protecting lives. We are so thankful we’ve learned so much and have @charlotteswebcbd @charlottesweb_california to keep @foofssissy new life with epilepsy, a more peaceful and healthier one. We will continue to fight and be advocates for this amazing plant and all the equally amazing humans that are helping all of us with children or loved ones who’s lives have been forever changed by it
#happy420#cbd#cbdoil#ourmiracle
#charlotteswebcbd#cwcalifornia
#cannibisismedicinal#canibisisnotadrug
#endthestigma#absenceseizures
#thisisepilepsy#forrache
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