crohnicillness crohnsdisease ibdawareness bagforlife spoonie ostomate ostomy spoonielife ulcerativecolitis crohns bodyconfidence endthestigma babeswithbags crohnicallyawesome ibdlife ileostomyawareness ileostomylife loveyourself notalldisabilitiesarevisible ostomyfashion sepsissurviour sickbutinvisble stoppoobeingtaboo therealityofacrohnicillness wearwhatmakesyoufeelgood whatbag ibdsuperheroes stomalife ostomyawareness notreenuts
#throwbackthursday It’s so scary to look back at these photos of me 3 years ago when I had my ostomy surgery. The first photo was a few hours after I woke up from my operation, can see I was still high on morphine and sleepy from the anaesthetic but managed a thumbs up, the second photo is either the next day or two days later and I’m back eating again. Food never tasted so good and I was out of bed finally and sitting down. Man was that hard to do, my core muscles were so weak and I could barely hold myself up, but I knew I had to do it to get better and home. The last photos are few days before my op. The day previously to this been taken I was fine, sitting up and laughing, then I changed over night. Looking and feeling so weak, Then I had the docs come round and fit me with an NG tube for little over a week.
Seeing these now and comparing how I am today is strange. I remember all of this but I’m proud of myself for how I managed to push through one of the hardest times of my life. Hospital for 5 weeks was not easy. I’ve been able to accomplish so much in the 3 years I’ve had my bag, but I’ve still more I’d love to do and places I want to go see. I couldn’t have got through the hard times if it wasn’t for my parents, friends and my partner.
The possibilities are endless and If my body allows me I want to do as much as I can. My bag has allowed me to live my life In a way I never dreamt of. I know in time it will be made permanent and I will tackle that head on like I did this. I have to be strong and keep fighting. You only get one life, so live it.
#crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #ileostomylife #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #IBDlife #spoonie #ostomy #stomalife #getyourbellyout #IBDsuperheroes #sepsissurviour #endthestigma #sickbutinvisble #wearwhatmakesyoufeelgood
#therealityofacrohnicillness #aeriereal #bodyconfidence #loveyourself
Contrary to what Instagram might make you believe, it’s not always rainbows & unicorns over here. Tonight, I’d like to bring your attention to 3 little words. Obsessive. Compulsive. Disorder.
For the most part, I’ve learned to control my OCD after several years of counseling. Nowadays, it only flares up on the occasions when my anxiety is at its peak, which I’m proud to say occurs about once every few months. Even still, on those random days when it does choose to awaken, it’s not a very pretty sight.
I’m not sharing my struggles in order to make you believe that I am stronger than I truly am, or even so that you will feel sorry for me. I talk about mental heath because someone, somewhere is silently fighting a battle they think they won’t win. I’m here to tell YOU dear one that it is possible to defeat the things that once defeated you.
Did you know that people who live with crohnic diseases like Crohns have DOUBLE the risk of experiencing mental illnesses such as ..
⇢ anxiety
⇢ depression
⇢ burnout
⇢ OCD
⇢ PTSD
So let’s START talking about it & STOP thinking these types of issues make us less than or broken.
This past weekend, I experienced massive OCD. After 7 years of practice, Charlie & I have learned how to navigate these flares. I tend to get overly agitated, so he’s realized it’s better to just sit silently instead of trying to talk through it. We hit the road, cranked worship music, & he sang over us.... all while I ran my fingers through my hair over & over & over & over & over & over & over.... a truly cringeworthy sight.
After an hour or two, my skin didn’t feel as tight, the repetitive thinking lifted, & finally peace flooded over me.
I am so thankful for my understanding husband who paints such a picture of God’s love for me during my moments of weakness.
For He loved my WHOLE heart through. Flaws & all.. & yes, sometimes I still snap @ Charlie & he grumbles at me like an old man. We are not perfect, but we’re perfectly free by grace through faith.
Be encouraged today friend. You ARE an overcomer, & this too shall pass !!
The face you don’t always see.
Im just so blessed I’ve my parents and my partner as I’d be a worse mess then I am right now.
Slowly but surely my body is falling apart. I know it may not seem like much but, I’m under 3 doctors now. Gastro, colorectal and now a bloody rheumatologist for suspected inflammatory arthritis. Have to go back into hospital tomorrow to have fluid drained off my knee and go back again on 3rd October to discus meds more as the doc needs to get help from my gastro with what 3 meds May work and all depends on the results of my scans. I’ve just finished 5 day course of antibiotics for a UTI and now I’m on a 2 week course of pred til I see the rheumatologist again. My brain is all over the place along with my emotions right now. I’m not as active on here as I’m trying to deal with it all. Have gastro check up on the 19th and two MRI’s two days later and then my infusion on 28th. I need a holiday!! #crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #ileostomylife #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #IBDlife #spoonie #ostomy #stomalife #sepsissurviour #endthestigma #sickbutinvisble #wearwhatmakesyoufeelgood
#therealityofacrohnicillness #bodyconfidence #loveyourself
Looking at this First photo does make me sad. I miss my scar and bag free tummy and I know It won’t look like that anymore. But I know I’ve been through so much and last night my partner did remind me that my bag and op saved my life. If I didn’t have that I wouldn’t be here, I wouldn’t be able to go out and do things. I know some days we all get down about how things used to be. But I’m forever grateful for my gastro and colorectal team for saving my life. I know I still have had a few bumps this year being a tough one and down the line my bag will be made permanent. But I know with all the love and support of family, friends and my partner I can get through it. Having my bag has given me a second chance at life, yes my tummy may not look perfect but I’m proud of my scars. #crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #ileostomylife #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #IBDlife #spoonie #ostomy #stomalife #getyourbellyout #IBDsuperheroes #sepsissurviour #endthestigma #sickbutinvisble #wearwhatmakesyoufeelgood
#therealityofacrohnicillness #aeriereal #bodyconfidence #loveyourself
My heart breaks for this poor boy and his family. More needs to be done to prevent this from happening ever again. Ostomates around the world united and are showing their love and support by sharing photos of their ostomy bags, Here is mine. #bagsoutforseven #stopthestomastigma #stopthebullying #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #ileostomylife #crohnicillness #whatbag #bagforlife #stoppoobeingtaboo #ulcerativecolitis #IBDlife #spoonie #ostomy #stomalife #getyourbellyout #IBDsuperheroes #sepsissurviour #endthestigma #sickbutinvisble
#therealityofacrohnicillness #sevenbridges
i don’t count calories, or participate in fad diets. i don’t focus on my weight. i don’t stress about my appearance or getting my body ready for summer or an upcoming event. but at one time i did, and i don’t advise anyone to take that route to a “healthier you.” it contributed greatly to my stress and anxiety. and i never saw the “results” i was looking for. i never felt i was good enough.
it took me getting diagnosed with a disease that caused me to lose 20 lbs in a short time, to realize that skinny does not mean happy or healthy.
throughout the year, i’ve begun to crave movement and nutritious foods simply bc they make my body and my soul feel good, NOT bc society says i should, and that makes all the difference in my quality of life. all it took was some lifestyle changes, i just happened to be forced to make a few of them
be mindful of why you are setting your intentions this new year ♥️
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#yoga #yogastrong #corestrength #felxibility #fitflexyfolk #splits #splitsprogress #poweryoga #ibdwarrior #crohnicillness #yogaflow #movement #ashtanga #ashtangayoga #crohnswarrior #asana #mentalhealth #movementismedicine #mindfulnutrition #antidiet #antidietculture #vegan #yogateacher #njyogacollective #njyoga #yogagirl #sunsalutation #jumpbacks #jumpthroughs #yogaeverydamnday
Trips to trauma, unconscious, being admitted to theatre for feeding tubes to be inserted (TPN), severe weight-loss, hair loss... and today i stand, stronger than ever! The issues surrounding gut health are serious and overlooked, due to the undignified aspect that it could lead to.
#guthealth #mentalhealthmatters #IBD #awareness #crohnsandcolitis #ulcerativecolitis #stoma #health #crohnicillness #autoimmune
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