rheumatoidarthritis spoonie spoonielife spoonieproblems spooniesupport pain dmards chronicillness invisibleillness autoimmunedisease juvenilerheumatoidarthritis fatigue anxiety autoimmunediseases chronicillnesswarrior depression invisibleillnessawareness juvenileidopathicarthritis livingwithra majordepressivedisorder rheum4today rheumatoidarthritissucks spooniestrong spooniewarrior spoons youdontlooksick rheum juvenilerheumatoidarthritisawareness invisibleillness
My last chapter is finally done! ✨Time to start reviewing everything. My final is in 2 weeks. Please wish me a good luck guys
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Rheumatoid arthritis treatment includes medications that slow the progression of joint damage from rheumatoid arthritis. These drugs are called disease-modifying antirheumatic drugs (DMARDs), and they are an important part of an overall treatment plan. What are these drugs, and how do they work?
Disease-modifying drugs act on the immune system to slow the progression of rheumatoid arthritis. This is why they are called "disease-modifying." Many different drugs can be used as DMARDs in the treatment of RA, but some are used more often than others. #dmards #rheumatoidarthritis
I was supposed to start taking my methotrexate (MTX) 2 months ago.
I was scared, so I put off picking up the prescription.
Then I was supposed to start taking it 2 weeks ago. My doctor added Leucovorin after we found out that my body has issues with metabolizing folic acid. I was supposed to start taking that 2 weeks ago, too.
1 week ago, I finally chose my “MTX Day” of the week & was going to suck it up and open up this bag from the pharmacy. The night before I planned to take the first dose, I was asked to sub in at a family member’s office job for 2 days. I decided to put it off again.
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The MTX will take 4-5 weeks before the full (or even some) effects can be felt. But the side effects can be felt immediately.
Being emetophobic, the side effects seem like my worst nightmare. My stomach can hardly handle my morning prescriptions that I take with food, and none of them are stereotypical nausea-causers. My stomach is weak with meds; I can’t even take doxycycline because I throw up every time. My doctors added it as an allergy on my chart. So how in the hell am I supposed to take something as strong as MTX and not be absolutely terrified?
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MTX is a chemotherapy drug when given in high doses, but considered a DMARD (disease modifying anti-rheumatic drug) at a small dose, like the one I’ll be taking.
I have lupus and rheumatoid arthritis, so there’s a lot of potential for truly life-changing effects. There’s also a lot of potential that it won’t do anything but make me feel extremely sick for a couple of months before we rule it out. The latter makes me want to curl up in a ball.
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I hate admitting that I’m scared. I’ve always had a hard time with it, particularly with my family. Having chronic illnesses since I was young is tough because if I’m afraid of something, they are too. I don’t like to worry my family & friends, and I also don’t want to risk being trapped in fear by well-intentioned advice from the people who love me.
But yeah. Tonight and for awhile now, I’m scared.
And I’m putting off my MTX for another week.
(Also, I know y’all mean well, but any suggestions of dietary changes are not helpful for me. ED recovery makes it hard. Thanks❤️)
Staying alive ah ah ah ouch
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#DMARDS #livingwithra #invisibleillnessawareness #autoimmunedisease #chronicillness #invisibleillness #chronicillnesswarrior #spoonieproblems #spoonie #JRA #JIA #rheumatoidarthritis #rheumatoidarthritis #rheumatoidarthritissucks #spoons #spoonie #spoonielife #spooniesupport #spooniewarrior #spoonieproblems #spooniestrong #youdontlooksick #spooniesupport #Rheum4today #spoonielife #pain #depression #majordepressivedisorder #anxiety #pain #fatigue #autoimmunediseases #juvenileidopathicarthritis #juvenilerheumatoidarthritis #juvenilerheumatoidarthritisawareness
From my Instagram story ⤴️
TW: emetophobia, nausea, vomiting, ED/OCD behaviors
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Today I finally got that infamous MTX nausea. I started my second month today of weekly pills. It felt a lot like how I feel after I take doxycycline, which makes me throw up and feel like I have the flu. I went from standing up and casually talking in middle of a conversation, to excusing myself so I could sit down in another room and try to stop this sudden dizzy feeling. I genuinely feel horrible, and of course, freakin terrified.
I’ve posted before about having emetophobia, which is an irrational fear of vomiting and anything associated with it (hearing or seeing others, feeling nauseous, etc). I’ve been like this since I was a kid, but didn’t find out that it was abnormal to feel so much dread, anxiety and fear until a psychiatrist diagnosed me with emetophobia. It made eating disorder treatment extremely tricky for me, especially because whenever I felt this anxiety being triggered by someone’s behaviors, I couldn’t talk about how I was feeling without triggering someone else’s eating disorder. It also largely impacted my OCD, as I had countless behaviors to reassure myself that I would not vomit if I did ____, and so on.
And now, here I am, taking a DMARD (disease modifying anti-rheumatic drug) which is a low dose of chemotherapy, and I’m grasping at straws to keep myself grounded. I can’t resort back to my OCD magical thinking so that I feel safe, I can’t restrict, and I can’t self-harm. (All of the “can’t”s can be replaced with “won’t”s)
So I’m going back to basics and doing what I used to do when I was struggling in recovery: distractions. I’ll sit with my dog, draw if I feel up to it, watch tv, and eat when the time comes to. I know that this feeling is going to pass, and that each time I get through it, it’s going to make the next time easier.
Be gentle with yourself today, friends
Great stick!
4th infusion of Simponi!
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#DMARDS #livingwithra #invisibleillnessawareness #autoimmunedisease #chronicillness #invisibleillness #chronicillnesswarrior #spoonieproblems #spoonie #JRA #JIA #rheumatoidarthritis #rheumatoidarthritis #rheumatoidarthritissucks #spoons #spoonie #spoonielife #spooniesupport #spooniewarrior #spoonieproblems #spooniestrong #youdontlooksick #spooniesupport #Rheum4today #spoonielife #pain #depression #majordepressivedisorder #anxiety #pain #fatigue #autoimmunediseases #juvenileidopathicarthritis #juvenilerheumatoidarthritis #juvenilearthritis
So this happened last night! We met in our local Slimming World group last summer and decided to carry on our weight loss journey together ❤ #slimmingworld #slimmingwordmember #couple #coupleoftheyear #swfood #swrecipes #rheumatoidarthritis #osteoarthritis #fibromyalgia #cfs #pcos #endometriosis #ibs #biolgics #dmards #steroids #weightloss #chronicillness #relationshipgoals
Collecter les statistiques #DMARDS effectuez une recherche à l'obtention des statistiques (Aller à la sélection).