Liste des hashtags les plus populaires par sujet #EOSINOPHILICESOPHAGITIS

Some of you may not know that when I’m not on Instagram, I’m a nurse! This is my pet hooman brother, Tristan. He suffers from a rare chronic disease called Eosinophilic esophagitis. He feels pretty sick a lot! An amazing foundation called Dream Factory, grants wishes to critically and chronically ill children. Today they revealed they are sending Tristan and the rest of my hoomans on a Trip to California to fulfill Tristan’s wish trip, to go to VidCon! If you want to learn more about how to help kids like Tristan fulfill their dreams check out @dreamfactorykc ! My hoomans and I are incredibly grateful to Dream Factory for doing this for our family!! . . . . . . . . . . #eoe #eosinophilicesophagitis #dreamfactory #italiangreyhound #italiangreyhounds #italiangreyhoundsofinstagram #sighthoundsofinstagram #sighthounds #greyhound #greyhoundsofinstagram #greyhoundsofinstagram #iggy #iggies #iggylove #iggiesofinstagram

What happens when I try to get him to smile for the camera. #woodsthewarrior

This one turned out amazingly well! Top 8 free, plant based dyes, delicious! The top was a 6 layer rainbow cake and the bottom was chocolate! Recipe for my never fail vanilla cake to follow! ❤️ #top8free #peanutfree #treenutfree #eggfree #soyfree #glutenfree #glutenfreevegan #vegan #eosinophilicgastroenteritis #eosinophilicesophagitis #egid #allergysafe #allergymum #pensacola #navarre #fortwaltonbeach #deliciouslyalternative #mermaidcake #vegancake #glutenfreecake

There is no greater worry to a parent than when their baby isn’t well! For me, having a first born with numerous severe allergies, and a chronic illness EOE it’s almost made me hypersensitive to small symptoms that could foreshadow baby o having the same problems. I am constantly paranoid for him to have a reaction or a problem. When he gets a bit chesty and a cold I almost second guess is it something more severe. I never used to be like this. I used to be the calm rational one assessing each situation as it comes. I remember going through the very same worrying about MM having any problems. I don’t think I could handle anymore scares and yet I have no say it in either. Lately I feel like things get thrown at us that we have no say in at all. It’s hard to swallow that but one must stay positive, stay motivated and move ahead. #lifecloseup #eoe #eosinophilicesophagitis

Hey guys, for my digital marketing class we have to start a blog about something unique to us, so I chose to do mine on an illness I was diagnosed with a few years ago. I will be writing about my journey and how it has impacted my life and be giving tips and sharing stories starting from getting diagnosed to where I am now. I hope sharing my story and tips will help people who are dealing with this as well! I will be making weekly posts and have put a link in my bio for anyone who is interested and wants to check it out! #eoe #eosinophilicesophagitis #foodallergies #blog #healthblog #nola #nolablog

I can not wait for my future I absolutely love this school my only issue is if they will do online classes. Everything else is accessible and they’ll work with my food allergies and all of that #eds#pots#ehlersdanlossyndrome#zebrastrong#eosinophilicesophagitis#mastcellactivationdisorder#posturalorthostatictachycardiasyndrome#disabled#disability

Great News!! Woods is in a normal room and will hopefully be discharged tomorrow! His bloodwork is continuing to normalize and we are able to manage pain today without morphine. He has been his normal flirty self with our wonderful nurses, he’s pulling on cords, and chewing on everything like usual. I won’t even start on his dance moves We don’t have pathology results yet, but we are hoping they show us he’s all clear. Chemo will start again in a few weeks to make sure nothing is left behind (pray that goes smoothly!) We still aren’t on our way back home with a cancer free baby, but we are one HUGE step closer. This week has been especially tense because it’s what we’ve all been waiting on for what feels like forever, and it could have gone wrong at any minute. Thank you for all of the prayers and support!!! We are so grateful he’s gotten to this point! #woodsthewarrior #hepatoblastoma

Guess who was kicked out of the PICU?!?! Back to a regular room for hopefully a short stay before going back to the Ronald McDonald house for a much needed break while we plan the next steps for Woods! #hepatoblastoma #eosinophilicesophagitis #childhoodcancer #woodsthewarrior #chemo #cancermom #cancer #gofundme #picu #icu

I rarely talk about this but today as every 6-12 months for the past 4 years, I am going into surgery to treat an autoimmune chronic disorder called EoE (Eosinophilic Esophagitis). Had the thing in me since I was born but only recently discovered and recognized. EoE pretty much causes my eosinophils (type of white blood cells) to exponentially multiply in my esophagus, as they would to protect against allergies. But they do so in response to a wide variety of foods, leaving me with only celery and kale to eat in full safety. Which means that every meal and even every breath a take on a spring day is damaging my esophagus by creating a new layer of white cells that slowly but surely tightens it. By the time a surgery is necessary, my esophagus is a third or less of the diameter of a regular sized one, resulting in choking, stomach aches, difficulty breathing etc. The surgery’s aim is to remove the extra layers and any strictures that may have happened, the goal is not to eradicate the disorder unfortunately but allow me to leave comfortably until the next one. There is 1 unorthodox treatment that exists though, to slow down the EoE impact, which is to take a high dosage of acid reflux medicine every day for the rest of my life. The only issue is that this medicine at that dosage and for a long period of time causes early onset of dementia, which I’d prefer to keep for my late 90’s. Literally have to pick my poison! I decided to go medicine-less and be careful with my food consumption until one day hopefully, a cure or an actual targeted treatment is invented. #eoe #livingwitheoe #EosinophilicEsophagitis #livingwithEosinophilicEsophagitis #asthma #acidreflux #autoimmune #whitecells #esophagus #surgery #medicine #whenlifegivesyousourlemons #pickyourpoison