Liste des hashtags les plus populaires par sujet #ICHTHYOSISLIFE

My favorite weather is bird-chirping weather. And today there had been a ton of blue Jays flying around. ❤ #springtime #favorite #weather #selfie #feelinggood #alldayoutside #girlsinhats #disabledandcute #ichthyosislife #ichthyosis

#foodislife #teamanna #ichthyosislife

And the comment of the day goes to the little girl who said "Look! Someone ate his eye!" #missingeye #ichthyosis #ichthyosislife #youhavetolaugh #funtimes #skingrafts #shouldputmyglassesbackon

Orange tears of joy after a run in with the eye specialist!!! The joys of ichthyosis mean my orange tears of joy will be apparent for the next day or so #ichthyosis #ichthyosislife #keepsmiling

This is what happens when you mouth off at your surgeon! (Skin grafts to allow my right eye lids to close, happy with the results 3 days post surgery - stitches come out next week) #IAM2018 #Ichthyosisawareness ##ichthyosislife #lucky #goodlook

I went for a paddle. Afterward, my friend washed my feet with nothing less than sparkling water. Such. A. Diva. #IchthyosisLife

Man (a stranger, fellow customer) in chemist today: "when I was a kid I used to get eczema. And dermatitis. My skin got like yours." I. Don't. Want. To. Discuss. This. Today. I just wanted to pick up my prescriptions in peace. #ichthyosislife

My indoor footwear of necessity at the moment - I cannot wait for the day my feet are back to my normal. For now, I smile at my foxy feet. #ichthyosislife

RARE DISEASE DAY 2019 I am a big supporter of Rare Disease Day, which is held 28 February every year. As someone who has lived with a rare disease (ichthyosis) all my life, I believe it is more important to awareness of the unique challenges faced by anyone with a rare disease (and their family) than about ichthyosis specifically. Rather than ask my family and friends to donate to a specific charity, I would rather ask everyone to be kind to those around you! (even if they don't have a rare disease) If you do wish to donate, please consider supporting the Steve Waugh Foundation, which aims to support children living with a rare disease. https://www.stevewaughfoundation.com.au/ #rarediseaseday #stevewaughfoundation #ichthyosis #ichthyosislife #livingthedream