Liste des hashtags les plus populaires par sujet #INBORNERRORSOFMETABOLISM

Sprinkles & Almonds | A little bit childish, a little bit adult #pku #phenylketonuria #phe #phenylalanine #raredisease #iem #inbornerrorsofmetabolism #lowprotein #lowproteindiet #chronicillness #metaboliccondition #metabolicdisease #metabolicdisorder #geneticcondition #genetics #geneticdisorder #rare #raredisease

From Ireland to Australia I had the pleasure of meeting @pete.lavery in Bondi for a PKU-friendly lunchPete is on 5 and I am on 6 grams of protein, which meant we ended up ordering the exact same meal! We received some weird looks with our meal alterations but we're both used to that by now ‍♂️‍♀️ I learned we share a passion for healthy eating which we believe is so important to being an all-round healthy PKU individual. Hopefully catch you on the other side of the world one day Pete! #pku #pkulife #phenylketonuria #phe #phenylalanine #iem #lowproteinfood #lowprotein #eatingoutwithpku #raredisease #inbornerrorsofmetabolism #metaboliccondition #metabolicdisease #metabolicdisorder #protein #bondi #australia #ireland #bondibeach #sydney

Join us on May 22nd at 7pm for a #webinar with @dietitians_life, Specialist Metabolic Dietitian Louise will be discussing healthy eating on a low protein diet for #PKU ✅ To join the webinar, click the link in the bio!

We are gonna be brave and try to have some Easter fun now that we have Jack better managed than yesterday. Relying on that Motrin/Tylenol switch + extra #pyridoxine to try and keep any #febrileseizures at bay until we can see his Ped tomorrow! . . ☀️It’s such a beautiful day so hopefully the vitamin D will help Jack Jack too! He barely moved yesterday and was completely catatonic for much of the day so I’m wary, but glad to get him on his feet again. Thanks for all the love for my little guy yesterday...my heart was hurting so bad bc we missed such an important celebration w/family. That’s why we’re making the extra effort today! . . PLUS, look what the EB brought Jack (and Rowan)—> @rubysrainbow + @pridesocks Ruby’s Dream Big socks!! I’m pretty in love with these socks and their message so check them out when you have a chance! HAPPY EASTER, my sweet peeps! ☀️ #easter2019 #easterfun #trottertraditions #epilepsywarrior #pyridoxinedependentepilepsy #rarewarrior #feversandseizures #inbornerrorsofmetabolism #wheelchairrapunzel #rubysrainbow #rubysdreambig #pridesocks #ikikishoes #surestepsmos #surestep #kayewalker #jackjacklove #rowaneliza #rowanandjack #aldh7a1 #raregeneticdisorder #globalgenes #metabolicdisorder #epilepsylife #parenthood_moments #epilepsydoesnthavejack

Babyface | Having PKU generally means ordering multiple dishes just to get some variety in your low protein restaurant meal. You end up with a bill bigger than your meat-eater friends AND ridiculous amounts of leftovers. But tonight I was able to have a personalised 'mini' spread of everything PKU-friendly on the menu (with quite a few adjustments!) thanks to the Chef. I want to sincerely thank @chefandyburns at @babyfacekitchen for your understanding and willingness to cater to my low protein needs. It makes the biggest difference to someone who isn't able to just 'eat out'. ☺️ #pku #pkulife #eatingoutwithpku #lowproteinfood #lowproteinmeals #lowprotein #phe #phenylalanine #phenylketonuria #iem #inbornerrorsofmetabolism #raredisease #chronicillness #metaboliccondition #metabolicdisease #metabolicdisorder #babyface #babyfacekitchen #wollongong

5 minute dinner. Pre-cooked low protein spaghetti from the fridge, pre-chopped cabbage, carrots, mushrooms and onions. All stir fried in oyster sauce. Literally 5 mins. • • • • #pku #phenylketonuria #inheritedmetabolicdisorders #inbornerrorsofmetabolism #raredisease #rareisbeautiful #vegetarian #vegetariandiet #lowprotein #lowproteindiet #quickdinner #pkustrong

Who else is a fan of brunch? | Love these brunch dishes I've ordered the past few days while I've been on the road for work. Full of fresh fruits and veggies 1st - @artscentrecafe 2nd - @jallys.cafe Healthy & PKU friendly #healthyfood #brunch #campbeltown #camden #healthybreakfast #healthy #vegan #vegetarian #plantbased #pku #phenylketonuria #phe #phenylalanine #raredisease #iem #inbornerrorsofmetabolism #lowprotein #lowproteindiet #chronicillness #metaboliccondition #metabolicdisease #metabolicdisorder #geneticcondition #genetics #geneticdisorder #rare #raredisease

Indian mulligatawny soup with coconut milk prepared by my sweet mum! ❤️ Contains ginger, garlic, onions, chicken broth, garam masala, coriander powder, turmeric, potatoes, spring onion, baby corn, coconut milk, carrots. Added couple exchanges of rice to make it even more filling. My little guy refused to eat his pesto pasta for lunch, but this dish he LOVED! And kept wanting more! ❤️ • • • Ingredients: • 1 tsp of fresh ginger • 1 tsp of garlic paste • 1/2 onion • 1 carrot • 2 medium size potatoes • 100 gram spring onions • 1/2 bell pepper • 2 cups coconut milk • 1 cup water • 1 tsp tumeric powder • 1 tsp cumin powder • 1 tsp coriander powder • 1 tsp garam masala • 1 chicken stock cube • Oil to fry Fry onions until transparent, add garlic paste and ginger and fry all until golden. Then add vegetables and fry for about 5 minutes. Add the spices and fry for another 2 mins. Add water plus coconut milk and cook under low heat until all vegetables turn really soft. The end result should be a thick soup. If it is too thin, dissolve 1 tbsp of cornflour in a little water and add to the soup. This will thicken it. Add rice if you want. • • • #pku #phenylketonuria #inbornerrorsofmetabolism #raredisease #pkuinfo #inheritedmetabolicdisease #vegan #vegetarian #lowproteindiet #mulligatawnysoup #indiansoup #pkustrong

Pumpkin fries with half a veggie burger. Half of the fries are breaded in low protein crumbs and turned out better than the non-breaded ones. Started baking them in the oven, but then popped them onto a pan to make them crispier. Will cut thicker slices next time, as they fell apart quite easily. The fries are free, but the veggie burger is 3 exchanges just for the half. Plus one exchange of ketchup. So need to make my own veggie burger, as this just won’t be enough to fill my son’s tummy as he gets older. • • • #pku #phenylketonuria #inbornerrorsofmetabolism #inheritedmetabolicdisease #raredisease #rareisbeautiful #pkuinfo #vegetarian #vegan #vegetariandiet #vegandiet #lowproteindiet #lowphe #countingexchanges #pumpkinfries #veggieburger #pkustrong