Liste des hashtags les plus populaires par sujet #IVIG

home from the hospital & here’s the “now”: • basically, i got ~2000cc’s of fluids mon-wednesday. i retained the majority of that, which built up all over and caused a burning sensation all over my body. i was admitted to emergency on thursday morning from the infusion center. • they gave me toradol for my burning pain, and put me on diuretics (BLESS), but in the meantime i developed a bad migraine, which i’m assuming is from the pressure build up from the fluids in my neck, however this could just be a side effect of the ivig. • last summer when i tried ivig at @mayoclinic , i got this mad migraine, and stopped treatment. my doctors here at hopkins told me they were going to put me on some heavy premeds and that it wasn’t going to happen again.... welp • we’re unsure how things are looking moving forward, but the idea of lowering my ig dose and stretching it over a longer time is a possibility. we’ll see. obviously i do not tolerate this treatment well. • SO, i’m home, trying to shake this migraine, and it’s definitely improved since yesterday. i’ve been hanging fluids trying to flush the ig out of my system. any more migraine tips

This is my 6 year old sister Faith. She was diagnosed with autoimmune encephalitis back in February. Her immune system is mistakenly attacking her brain cells and causing inflammation of the brain. She just finished her second day of IVIG treatments. They are hoping this will help. March is autoimmune disease awareness month. Having two autoimmune diseases myself I have become aware of many of these types of diseases. I had never heard of this......Well it’s still a long road ahead but she is such a strong and brave little girl. Love you sissy! ❤️

Tonight is IVIG (Intravenous immunoglobulin therapy) night. Here’s a little time lapse of me setting up the infusion while Peter accesses my port. I accessed my own port through college and then Peter took over when we got married #cysticfibrosis #ivig #portacath #doingmybest #thefreylife #ichoosejoy

Infusion day! Fingers crossed for no reactions or alerts this time. He’s had to alert wayyy too often recently. Hopefully my body will give him a break today #IVIG

Resting up. Getting plasma. #ivig So moved when I realized it takes from 1k to 15k donors for a single dose. That is an incredible gift I am receiving and has helped immensely. Nice set up here too. Warm blankets. At peace. Also look at all my love tokens. @jemmasands @a.fierlifestyle @collectivemetals This is not a sad post. Nor am I showing any tubing although I find it all curious. This is me grateful. Thank you universe. Thank you donors. Thank you my friends and all who aim to find their way to feeling their strongest. Whatever form that takes. Love. #plasmashortage #lucky #savingme #myexperience. Different for everyone. ❤️

It’s been a CRAZY whirlwind last 24 hours. After we moved to the pediatrician wing of the hospital we met with the infectious disease doctor he informed us that Levi hit a few markers that made them concerned he had Kawasaki Disease and would need a echo to see if Kawasaki had hit that stage where it was effecting his heart. after a few test we found out Levi’s has Kawasaki Disease and has inflammation in one of the arteries of his heart. He has already received the IVIG treatment to treat the Kawasaki disease and Levi had to be fever free for 36 hours to be in the clear. If the fever returns we will do another round of IVIG treatment and start the clock over again. As for his heart we will have regular echos for the next six months to monitor his inflammation. . Kawasaki Disease: A condition that causes inflammation in the walls of some blood vessels in the body. Immunoglobulin is part of your blood’s plasma. It has antibodies in it to fight germs or disease. When people donate blood, this part can be separated out. Then it can be given to you through a vein in your arm, or IV. If you get IVIg, it can help strengthen your immune system so you can fight infections and stay healthy. #IVIG #momtribe #littleandbrave #letthekids #magicofchildhood #kidsforreal #documentyourdays #momsohard #justbeinghonest #thehonestcapture #advocatelikeamother #selflovefirst #mompreneur#motherhoodrocks#motherhoodalive#motherhoodthroughig#motherhoodmoments#motherhoodunfiltered#motherhoodjourney #momstruggles#momsohard #momlife #stopdropandmom

Monday vibes

Drugs. Treatments. It’s often part of the journey with multiple sclerosis and many other chronic diseases. Pills, shots, infusions and treatments, oh my! There’s no cure for MS, but there are some drug therapies that may help assist in slowing progression. In the past I’ve done rebif (a shot, 9 months, ruled ineffective due to mri progression), tysabri (infusion, 4 months, developed an antibody against the drug-it was super not cute), tecfidera (pill, 6 months, side effects and mri ruled ineffective), nothing (nothing, 2 years plus sporadic/ technically currently, my favorite always), rituxan (infusion, the sister drug of ocrevus before that came on market, 2 years with a break in between, couldn’t rule effectiveness and side effects were ), ivig (plasma treatment, 4 months, developed allergic reactions). Currently I’m doing plasmapheresis (plasma treatment, on and off 7 years, this round- 2 months, hopeful). There are some interesting, sometimes hard to find, statistics when it comes to drugs- number needed to treat (NNT) and number needed to harm (NNH). These statistics help to evaluate the effectiveness of the drug as treatment compared to the drugs chances of side effects. I’ve used both of these in helping to determine if a drug would be beneficial to try, or to not. At the end of the day though, you have to make the decision that brings you the most peace. What MS drug therapies are you on or have you tried? Have questions about? Chime in below! ❤️ #thisisms

pain management one of the hardest topics for me it took me about three years to finally accept that i needed help bc before that i felt like i “wasn’t bad enough” & didn’t want to seem like a drug seeker my geneticist said it’s imperative we get my pain under control so i went to a new doc this morning & ... oof i’m not sure what i was expecting, but certainly not what i got he kept referencing how “active” i am he never asked me if i’m able to work or how much it interferes with my life or sleep or really... anything? even as i was on the table sitting there crying in pain saying how uncomfortable i was, he just... sat there? i left feeling like he didn’t really see me he just saw a young physical therapist & assumed the rest i KNOW the opioid epidemic is a serious issue i wasn’t even asking for that, i just wanted to be listened to & believed & i wasn’t i am SO tired. SO tired of being downright miserable all the time & missing out on things because i can’t manage my pain i eat clean, i go to PT, i take epsom salt baths, i meditate, i use CBD, a pain cream, go to acupuncture & i’m still struggling the truth is, chronic pain patients are being hurt it shouldn’t be this hard it really shouldn’t