Liste des hashtags les plus populaires par sujet #METABOLICCONDITION

Finally he’s earning his keep #lyttleman is the cutest housekeeper I could ask for . . . . . . . . . . . . . #2yearsold #rarewarrior #raredisease #ureacycle #ureacycledisorder #metaboliccondition #asa #epilepsy #metabolicmom #specialneedsparent #boymom #sweeping #ginger #gingerhair #blessed #heartisfull #thisisus

This is Kierce! “Kierce is 8 years old and diagnosed with Autism and a rare metabolic condition. He has spent a lot of his life hospitalized on and off but continued to do well despite his struggles. He loves fishing and is very resourceful when it comes to educating others about fish.” follow his journey @kierce8 #kierce #autism #rare #metaboliccondition #hospital #fishing #fish #smart #handsome #strong #brave #fighter #warrior #spreadingawarenessforall

MDDA WESTERN AUSTRALIA RETREAT | What a beautiful weekend spent with old and new inborn errors metabolism (IEM) friends. New parents fresh to the IEM family, their babies, teens, tweens, fellow adults, parents, grandparents, dieticians, specialists, researchers and medical product manufacturers When your condition is rare, it feels amazing being surrounded by people who just 'get it'! More photos coming #pku #pkulife #phenylketonuria #phe #phenylalanine #hcu #homocystinuria #mma #iem #inbornerrorsofmetabolism #raredisease #metaboliccondition #metabolicdisease #metabolicdisorder #mdda #loprofin #cambrooke #cortexhealth #vitaflo #perth #mddawaretreat2019

I never lose, I only win or learn | A running theme during the Western Australia @mdda_australia retreat was . Most people living with an inborn error of metabolism (IEM) in Australia are solely treated by lifelong dietary therapy. This means discipline is needed to keep our brains undamaged by the harmful effects of certain metabolites. we're only human, we are far from perfect! And that's OK! @healy.louise presented beautifully on this! Being resilient focuses on how we 'bounce back' after getting a high level or eating a wrong food. ᴅᴏɴ'ᴛ ʟᴇᴛ ᴏɴᴇ ʙᴀᴅ ᴄʜᴏɪᴄᴇ ᴅᴇꜰɪɴᴇ ʏᴏᴜʀ ɴᴇxᴛ. Pick yourself back up and keep going. I was lucky enough to present on personal empowerment as an IEM patient. I believe we should use our shortcomings as a way to understand where we may need extra support. There is no shame in asking for help. I do it all the time I have so much respect for our worldwide IEM community. The strength of families, kids and adults dealing with all IEMs is hidden but so great! You are all awesome! Keep striving and keep making your choices count #pku #pkulife #phe #phenylalanine #phenylketonuria #iem #inbornerrorsofmetabolism #raredisease #resilience #mindfullness #hcu #metaboliccondition #metabolicdisease #metabolicdisorder #mdda #vitaflo #cortexhealth #cambrooketherapeutics #nutricia

My new favourite café | When you have PKU, carrying 'back-up' food is normal. You know, just in case. We all know the feeling of rocking up to a café to find no low protein options. However, sometimes a cafe is accommodating enough to tweak their items. I brought along 2 slices of @wellandgoodfoods bread as well as my formula. Without any pku-friendly menu items I asked the @theheights_cafe for a favour! They were kind enough to make me smashed avo toast on my bread AND mix my @vitafriendspku_au PKU Sphere in with a coconut and fruit smoothie Kindness and understanding like this actually makes my day! #pku #phenylketonuria #phe #phenylalanine #lowproteinfood #lowprotein #eatingoutwithpku #lowproteinmeals #iem #inbornerrorsofmetabolism #metaboliccondition #metabolicdisease #metabolicdisorder #theheightscafe #vitaflo #pkulife #pkusphere #glutenfree #vegan #vegetarian #plantbased

Sprinkles & Almonds | A little bit childish, a little bit adult #pku #phenylketonuria #phe #phenylalanine #raredisease #iem #inbornerrorsofmetabolism #lowprotein #lowproteindiet #chronicillness #metaboliccondition #metabolicdisease #metabolicdisorder #geneticcondition #genetics #geneticdisorder #rare #raredisease

☀️ Aussie Autumn | I needed to pick up a suitable lunch for today's beach picnic. I wasn't feeling well enough to prepare anything ahead of time. Found this berry & coconut sago at @westfieldmiranda which tasted delicious. Beautiful day out with perfect weather #pku #pkulife #phenylketonuria #phenylalanine #phe #lowproteinfood #lowprotein #lowproteinmeals #raredisease #inbornerrorsofmetabolism #iem #metaboliccondition #metabolicdisease #metabolicdisorder #vegan #vegetarian #cronulla #australia #autumn #beach #picnic

@cambrooke_therapeutics Eggz Omlette | After I posted this on my story last weekend I had a lot of people contacting me asking how I got the Eggz mix turning out this good. So here is what I do: 1) In a bowl add 3 tablespoons of @cambrooke_therapeutics Eggz powder. In Australia this is available from @cortexhealth_aus 2) Add 140ml water and whisk until combined 3) Let mix sit for ~2 minutes - mix will thicken 4) In a pan, add 1 tsp of coconut oil and add mix 5) Cook on medium heat and add cherry tomatoes , spinach or whichever vegetables you prefer 6) Flip and cook opposite side (good luck here may end up in a mess!) 7) Enjoy! #cortexhealth #cambrooketherapeutics #eggz #pku #phenylketonuria #phenylalanine #phe #lowproteinfood #lowproteincooking #lowproteinmeals #lowprotein #iem #inbornerrorsofmetabolism #raredisease #metaboliccondition #metabolicdisease #metabolicdisorder #omlette #vegetarian #egg

CrossFit essentials... The Single-Leg Squat! . The single-leg squat is a challenging body-weight movement requiring a combination of balance, coordination, strength, and flexibility. This highly athletic version of the basic squat is worth the investment of time and energy required to develop it. . NOTE Use these guidelines for motion study, but always rely on a Certified CrossFit L-Trainer. . Il Single-Leg Squat è un movimento impegnativo per il peso corporeo che richiede una combinazione di equilibrio, coordinazione, forza e flessibilità. Questa versione altamente atletica dello squat di base vale l'investimento di tempo e di energia necessari per svilupparlo. . NOTE Usate queste linee guida per lo studio del movimento, ma affidatevi sempre ad un CrossFit L-Trainer Certificato. . #CrossFit #CrossFitCefalu #Training #SingleLegSquat #CrossFitAddict #MadeInSicily #MetabolicCondition #Weightlifting #Powerlifting #HWPO #NoPainNoGain #RoadToBeFit #WorkInProgress #stamina #strength #endurance #speed #coordination #agility #accuracy #balance #flexibility #power #Athletes #Judges #CrossFitJournal #CrossFitEssentials . Credits by: @crossfit @crossfitgames