Liste des hashtags les plus populaires par sujet #MYALGICENCEPHALOMYELITISAWARENESS

This thought goes through my head most days what even is a "normal" day anymore?! ‍♀️ . ✨ . #cfswarrior #cfsawareness #chronicillness #chronicfatiguesyndrome #meawareness #myalgicencephalomyelitisawareness #myalgicencephalomyelitis #spoonie #spoony #spoontheory #CanYouSeeMeNow #invisibleillness #cfs #spoonielife #spoonylife #MillionsMissing #butyoudontlooksick #thyroidproblems

Those were the days.. . . ✨ . #cfswarrior #cfsawareness #chronicillness #chronicfatiguesyndrome #meawareness #myalgicencephalomyelitisawareness #myalgicencephalomyelitis #spoonie #spoony #spoontheory #CanYouSeeMeNow #invisibleillness #cfs #spoonielife #spoonylife #MillionsMissing #butyoudontlooksick #thyroidproblems #hypothyroidism

Hi pals It was International Wheelchair Day two weeks ago and so, ever late to the party, I decided to write this little ode to my own Hot Wheels and the journey of acceptance that we’ve been on together. Link in bio. . . #myalgicencephalomyelitis #myalgicencephalomyelitisawareness #meawareness #mecfs #pwME #chronicillness #internationalwheelchairday #ambulatorywheelchairusers #ambulatorywheelchairusersexist #mobility #mobilityaid #chronicillnessblogger #spoonie #spoonielife #wherethetiredgirlsare #sickbutinvisible #thespooniesisterhood #meandmychair #babewithamobilityaid #iam♿️

MAY PHOTO CHALLENGE ANNOUNCEMENT! So if you’ve seen the stories lately I asked for your opinions about a photo challenge I did last year & I’m going to repeat again this year. Last year I did a ME/CFS photo a day challenge geared about raising awareness and sharing your ME story. I did get some feedback from people then about opening it wider than just my illness. ⁣ ⁣ This got me thinking since last year and honestly I struggled a lot. I did the poll because personally I have ME/CFS and so can only share my experiences about that and feel super passionate about raising awareness for it. At the same time I don’t want you to feel like excluded from joining in if you don’t have it, especially those who did reach out. We are community open to anyone living with or supporting someone with any illness so I was a bit torn. The poll was fairly even in the end but I did get some lovely messages from people sharing what they thought and so it took a while but I’ve decided on the following:⁣ It will be similar to last years however it is open to anyone with any illness who wishes to join in. The theme is “use your voice, share your story” and where I have wrote ME/CFS on the prompt page there is a * explaining you just swap it for your condition/disability. Majority are already neutral so there’s only a couple that have ME/CFS in them. I’ve considered doing 2 separate and rewriting them became more complicated so for my own health and amount of work involved I’ve kept it this way. The hashtag has changed so it encompasses people with ME, people who have ME and other conditions and those who have totally separate conditions to ME. It’ll be #chronicillnessandME playing on ME but also brining it back around to sharing your chronic illness story whatever that might be! I know it won’t please everyone but I also know it’s impossible to do that too when there’s so many opinions on it! Either way it is open to anyone who wants to take part and I’m looking forward to seeing all your creativity and stories when it starts May 1st!⁣ ⁣ There will be a FAQ and info page about how it works on the website over the weekend so watch out for that & prompts released end of the month!

Feeling it already ‍♀️ . . ✨ . . #cfswarrior #cfsawareness #chronicillness #chronicfatiguesyndrome #meawareness #myalgicencephalomyelitisawareness #myalgicencephalomyelitis #spoonie #spoony #spoontheory #CanYouSeeMeNow #invisibleillness #cfs #spoonielife #spoonylife #MillionsMissing

... 50? . . #cfswarrior #cfsawareness #chronicillness #chronicfatiguesyndrome #meawareness #myalgicencephalomyelitisawareness #myalgicencephalomyelitis #spoonie #spoony #spoontheory #CanYouSeeMeNow #invisibleillness #cfs #spoonielife #chronicillness #spoonylife #MillionsMissing #chronicpain #chronicpainwarrior

A picture from my first day at secondary (little me had no idea what was coming) and a picture from prom. I wasn’t sure if I wanted to go, it didn’t feel like it was my thing to celebrate but so many teens with M.E have been refused entrance. I felt like I should go because so many people couldn’t. I’m sorry if you were one of those people, our schools have failed us. Within the first few years of senior I had planned what college I was going to go to, what subjects I was going to take and what I could and wanted to do with my life. I had lists and notebooks full of what I wanted to do. I have a lot of mixed feelings about finishing school. • I’m proud that I still sat four exams but gutted that school and my health have robbed me of sitting any more. • I’m shocked at how quickly the last few years have gone but I am not upset to be leaving - I’d done that already. • It’s daunting choosing if I can further my education. I don’t think I’m going to cope well with not contributing - I’ve got to teach myself that it’s okay. • This isn’t really a happy post or a sad one. Since finishing school I’ve kind of felt like the emotional equivalent of the word adequate if that makes sense? A bit in-between. Now it’s just time to work out what I can do and take the school to court. • I hope that everyone is coping in the heat and sorry I’ve been a bit inactive. The hot weather effects your health I’ve recently found out. • (Also I am smiling and have got dressed up in the prom photo but I was bricking it and didn’t sleep for two nights the week before and stayed for a few hours and then went to the hotel room and laid down - it’s a nice photo but it definitely doesn’t show fully what I was feeling. This is just the opinion of an introvert but prom was overrated if it’s any consolation.) Also PEM is a bitch and I can barely walk safely. Drink water and stay safe - Neve Xx

Amen . . ✨ . #cfswarrior #cfsawareness #chronicillness #chronicfatiguesyndrome #meawareness #myalgicencephalomyelitisawareness #myalgicencephalomyelitis #spoonie #spoony #spoontheory #CanYouSeeMeNow #invisibleillness #cfs #spoonielife #spoonylife #MillionsMissing

So accurate. I know suggestions about improving health are always meant with good intentions but a lot of the time there is nothing that will improve it. Preventative actions are the most beneficial but at the same time the thing that takes the longest to learn. Some days you know that going to a family event or something really difficult is going to absolutely kill you and leave you in bed for a week or more but sometimes it’s completely mentally worth it. The frustration of not being able to do what you used to causes us to occasionally over exert and go for it and that is okay. We know that it isn’t in our healths best interest but it’s in our overall well-beings best interest. It’s a small reclamation of our former selves. I hope that everyone’s symptoms are manageable today, as always feel free to message me if you want to talk about anything - Neve Xx •••••••••••••••••••••••••••••••••••••••••••••••• #chronicillness #myalgicencephalomyelitis #myalgicencephalomyelitisawareness #chronicpain #millionsmissing #spoonie #babewithamobilityaid #butyoudontlooksick