phenylketonurie phenylketonuria eiwei lowprotein pkustrong metabolicdisorder raredisease lowpro pkuawareness pkufood phenilketonuria vegan vegetarisch stoffwechselst alinapku health letskickass lowprodiet pkuawarenessmonth vegetarian diet gesund healthy pkuer fruits lowproteinfood metabolicdisorder
Mañana es 29.... SALEN ÑOQUIS!!!! #bajaproteina #cocinamuybajaenproteinas #phenil #verylowprot #lowprotein #lowproteinfood #lowproteindiet #lowproteinlifestyle #lowproteinlife #phenilketonuria #phenilketonuria #fenilcetonuria #fenilketonuri #fenilketonüri #pkufood #tyrosinemiatype1 #tyrosinemia #msud #veggie #veggiefood #veggierecipes #veggieworld #phenylketonuria #phenylcetonurie #phenylketonurie #ñoquis #ñoquisremolacha #ñoquiszapallo @volaideas @clarivinuesa #phenilketonuria
** CHALLENGE DAY 7 ** (advertisement/ Werbung)
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It is the last day of the 7 days - 7 pasta recipes challenge and I cannot be more proud of myself! ♀️ #alinapkuchallenge
I managed eating pasta at least once a day and I created recipes of which I never thought I was able of!
I hope, you liked this week as much as I did!
Let's end this challenge with a veggies all over recipe I made a vegetable mince It tastes absolutely delicious and is very healthy #winwinsituation ________________________________
Ingredients
1 big onion
1 small red bell pepper
1 courgette
1 egg plant
6 carrots
400g diced tomatoes
400g sieved tomatoes
3tsp Pasta Allrounder
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Preparation
1.Cut the veggies very finely.
2.Sautee the veggies in a hughe pot.
3.Add the diced and sieved tomatoes.
4.Season with pasta allrounder.
5.Let simmer for about 20mins.
6.Enjoy!
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Per 100g: 44mg Phe and 28kcal
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#diet#diät#healthy#health#gesund#vegetarian#vegetarisch#vegan#plantbased#veggies#fruits#gemüse#früchte#pku#pkuer#pkustrong#phenylketonurie#phenylketonuria#metabolicdisorder#stoffwechselstörung#raredisease#lowpro#lowprotein#eiweißarm#lowprodiet#eiweißarmediät#alinapku#letskickass
** CHALLENGE DAY 4 ** (advertisement/ Werbung)
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It is the fourth day of the 7 days - 7 pasta recipes challenge ♀️ #alinapkuchallenge
I made two delicious pasta casseroles! One for me and one for my boyfriend
It is easy to make and not healthy at all Buuuut.. It is totally low in phe! Sometimes it is more important to eat less phe than less calories And, sometimes you just crave something #unhealthy __________________________________________
Ingredients (PKU and NON-PKU are similar)
100g pasta
200g diced tomatoes
200g sieved tomatoes
100ml vegetable stock
100ml vegan cream substitute
50g vegan cheese
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Preparation
1.Cook pasta.
2.Mix diced and sieved tomatoes in a pot and add the vegan cream and the vegetable stock.
3.Season the sauce with the spices you like. I used salt, black pepper, paprika, garlic powder, basil and oregano.
4.Mix pasta and sauce in a greasy casserole and put in the oven for 15mins.
5.Add cheese and broil until it has the texture like.
6.Enjoy! ⭐
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Whole casserole: 171mg Phe and 788kcal
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#diet#diät#healthy#health#gesund#vegetarian#vegetarisch#vegan#plantbased#veggies#fruits#gemüse#früchte#pku#pkuer#pkustrong#phenylketonurie#phenylketonuria#metabolicdisorder#stoffwechselstörung#raredisease#lowpro#lowprotein#eiweißarm#lowprodiet#eiweißarmediät#alinapku#letskickass
#lebenmitpku
[Tina]:
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Heute habe ich mich mal an einem Kuchen versucht und sämtliche Reste, die ich vom Backen noch da hatte, verwertet. Bis vor ein paar Minuten habe ich noch gebangt und gehofft, dass der Kuchen so lecker schmeckt wie er aussieht - und das tut er . Auch wenn er mir leider etwas eingefallen ist. Egal, ich bin zufrieden und kann ihn daher jetzt hier präsentieren .
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Lange war es ruhig hier auf der Seite. Denn wir stecken immer noch im ständigen Auf und Ab. Die Maus nimmt im Moment alles an Krankheiten mit, isst regelmäßig schlecht und beschäftigt uns den ganzen lieben langen Tag . Nebenbei arbeiten gehen und den Alltag meistern ist momentan echt eine Herausforderung. Aber auch das geht wieder vorbei .
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Ich wünsche euch jedenfalls eine tolle Woche und einen schönen Feiertag.
#PKUnaund #lowprotein #lebenmitpku #pkustrong #pkumom #pku #pkualltag
#pkukochen #pkubacken #PKUleben #eiweissarm #phenylketonurie #phenylalanine #Phe #pkufood #pkuDeutschland #pkuminis #pkumaus #pku #vegan #diät #vegetarian #vegetables #phenylalaninearm #KitamitPKU #pkukids #pkuwelt #pkumama #pkumädchen #pkuessen
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*Phe-Werte beruhen auf eigenen Berechnungen und erheben keinen Anspruch auf Richtigkeit! Ggf Nährwerte und Phe-Angaben prüfen!*
** FULL DAY OF EATING ** (advertisement/ Werbung)
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Today, you had the opportunity to choose what I should post today. And you choose a #fulldayofeating ♀️ So, here it is
I try to lose weight and try to get down my phe levels. I try to eat less than 1650kcal and 600mg Phe. Today, I managed eating less phe, but not the calories But for me, it is much more important to get lower phe levels than losing weight at the moment.
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BREAKFAST
1 GMP
2 slices lowpro bread
7g margarine
2 slices @violife_foods chicken
1 tomatoe
110g pickles
/ 358 kcal / 100mg Phe /
LUNCH
1 GMP
80g lowpro pasta
175g Asian vegetables
25g @heinz soya sauce
/ 458 kcal / 99,9mg Phe /
SNACK 1
1 GMP
1 small banana
1 plum
1 kiwi
/ 111 kcal / 48,5mg Phe /
SNACK 2
500ml @sodastream ginger ale
4g nori seaweed
/ 94 kcal / 35mg Phe /
DINNER
1 GMP
100g lowpro pasta
500ml @knorrdeutschland tomatoe soup Toscana / 607 kcal / 244,5mg Phe /
DESSERT
1 Langnese Capri ice cream
/ 53kcal / 14,5mg Phe /
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In total: 542,5mg Phe and 1731 kcal
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#diet#diät#healthy#health#gesund#vegetarian#vegetarisch#vegan#plantbased#veggies#fruits#gemüse#früchte#pku#pkuer#pkustrong#phenylketonurie#phenylketonuria#metabolicdisorder#stoffwechselstörung#raredisease#lowpro#lowprotein#eiweißarm#lowprodiet#eiweißarmediät#alinapku#letskickass
Wist je dat PKU in Nederland bij 1 op de 16.000 mensen voorkomt? Door middel van de hielprik worden pasgeborenen getest op onder andere PKU. PKU was zelfs de eerste ziekte die ze met de hielprik konden vinden! PKU staat voor phenylketonurie en het is een zeldzame, erfelijke, aangeboren stofwisselingsziekte waarbij het lichaam het aminozuur phenylalanine niet goed kan afbreken. Phenylalanine zit in eiwit, alle soorten eiwit, dus (veel) in dierlijk eiwit zoals vlees, vis, eieren en melk, maar ook (veel) in plantaardig eiwit zoals soja, peulvruchten, tarwe en noten. Doordat Levin phenylalanine niet goed kan afbreken, hoopt het zich op in het bloed en veroorzaakt het hersenschade. Als we de hielprik niet zou bestaan, dan zou Levin een steeds grotere ontwikkelingsachterstand krijgen en binnen een aantal jaar zwaar geestelijke gehandicapt zijn. De behandeling klinkt simpel; op een eiwitarm dieet, maar zo simpel is het niet. Daarover later meer. Voor nu zijn we zo blij met de hielprik! #hielprik #newbornscreening #pku #metaboleziekten #eiwitarm #phenylketonurie #phenylketonuria
"I have PKU and I have to take care of what I eat." Sometimes these are the first words I have to say to someone when I meet someone new or when I am eating out.
I hate PKU, I really do.
It is hard to be the only one in your family who eats differently and it is hard to explain your metabolic disorder to kind of every person you meet in your life. My co-workers and my boss did not know about my disease for up to 6 months until we had our christmas party and I only had a plate full of salat because I hate explaining PKU over and over again. Hard enough that I cannot eat everything, but if I explain PKU to others, they always feel pitty for me. I never realise that PKU is something so rare because it is normal for me, but when I talk to others, they always show me how different I really am, and I don't want to be different. I want to be normal, but I never will.
I know that on my IG account PKU looks so easy, but it isn't. I have been off diet for almost 10 years and it is so hard for me not to eat all the high protein food that I loved in these 10 years. I have the feeling that PKU controls my life much more since November '18 and it makes me sad that I never will be able to eat normally. I don't know if I want to have my own children or if I want to adopt them because PKU pregnancy is so hard and I don't know if I could manage it. PKU influences so many parts of my life and I hope that one day I am able to manage it perfectly.
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#diet#diät#healthy#health#gesund#vegetarian#vegetarisch#vegan#pku#pkuer#pkustrong#phenylketonurie#phenylketonuria#metabolicdisorder#stoffwechselstörung#raredisease#lowpro#lowprotein#eiweißarm#lowprodiet#eiweißarmediät#alinapku#letskickass#thoughts#thoughtful#unhappy#happy#normal#different
** CHALLENGE DAY 2 ** (advertisement/ Werbung)
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It is the second day of the 7 days - 7 pasta recipes challenge #alinapkuchallenge
Today, I made a delicious cream sauce for me and my boyfriend, who has to do this challenge with me
I made this #sauce for the first time and it turned out delicious
I hope you like it as well
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Ingredients
100ml vegan cream substitute (Schlagfix)
150ml vegetable stock
230g peas and carrots
10g lowpro flour
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Preparation
1.Mix cream substitute and vegetable stock in a pan and bring to a boil.
2.Mix flour with a little bit of water and add mixture into the pan.
3.Season sauce as you like. I used salt, black pepper, paprika and garlic powder.
4.Add peas and carrots and let simmer for about 5 mins.
5.ENJOY⭐
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Per 100g: 59mg Phe and 80kcal
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#diet#diät#healthy#health#gesund#vegetarian#vegetarisch#vegan#plantbased#veggies#fruits#gemüse#früchte#pku#pkuer#pkustrong#phenylketonurie#phenylketonuria#metabolicdisorder#stoffwechselstörung#raredisease#lowpro#lowprotein#eiweißarm#lowprodiet#eiweißarmediät#alinapku#letskickass
Collecter les statistiques #PHENYLKETONURIE effectuez une recherche à l'obtention des statistiques (Aller à la sélection).