Liste des hashtags les plus populaires par sujet #PWME

#chronicfatigue #cfsme #myalgicencephalomyelitis #mecfs #chronicfatiguesyndrome #cfids #pwme #invisibleillness #chronicillness #chronicallyill #canyouseemenow #potsie #spoonie #dysautonomia #chronicpain #spooniewarrior #youdontlooksick #postexertionalmalaise #chronicillnesswarrior #dystonia #posturalorthostatictachycardiasyndrome #tooyoungtobesick #fibromyalgia #sensoryoverload #autoimmunedisease #ehlersdanlossyndrome #connectivetissuedisorder #lupus #chargie #chargiewarrior

‍♀️ Just sayin like.... ⁣ ⁣ Pretty sure we’ve all wanted to sent this message some Point right? Awareness is essential about symptoms, impact on life etc but the number one thing people can never fully grasp (and to be honest I struggle with) is that this illness is just like what Forest Gump famously said about life and chocolates... you never know what you’re gonna get.... ⁣ ⁣ Just because we did the thing yesterday, last week, last month even last year it doesn’t mean we can again, or will right away again. Some days are better, some days are literally the hardest to get through. Hell life can change from morning to afternoon. It’s not a one size fits all day in day out. ⁣ ⁣ But with that in mind I just want you to take a moment to realise actually what that means for you. That you have so much strength, courage and perseverance to get through every single day, waking up not knowing what you’re facing but dealing anyway and keep on keeping on. You’re fabulous, you’re amazing and you need to remind yourself of that more often. Like right now. Go on give yourself some credit. You deserve it.

Take note! ⁣ ⁣ So this week like much of last week has been a fatigue bomb. Like an explosion of fatigue that I can’t stop so I just rest. Today like yesterday hasn’t gone to any kind of plan I made and mentally that’s more tough. Especially when you’ve had a week where fatigue has faded a bit as the major problem and them comes back even harder. It’s okay though, sometimes we are forced to slow down and it’s a good thing, we just don’t always recognise why. Here’s a reminder if you too are struggling with it all...⁣ ⁣ Fatigue isn’t laziness or being unmotivated. Fatigue is real, it sucks the life out of you and you’ll be left with no choice but to rest. It’s okay to give your body and mind what it needs. Rest is productive! Rest is vital and above all rest will allow you to get where you want to be, not hinder it.⁣ ⁣ We are conditioned to see rest as bad. As lazy as though some how it’s going to stop us in our tracks and prevent all the good stuff happening and honestly, it’s utter rubbish. You don’t have to push through and fight your way to get things done. Balance it out. Feel it out, recognise there are no deadlines for how you live your life. If it takes a bit longer than anyone else it doesn’t mean it’s somehow worth less. Learn as you but above all honour yourself, your needs and keep faith all things happen when they are supposed to.

#chronicfatigue #cfsme #myalgicencephalomyelitis #mecfs #chronicfatiguesyndrome #cfids #pwme #invisibleillness #chronicillness #chronicallyill #canyouseemenow #potsie #spoonie #dysautonomia #chronicpain #spooniewarrior #youdontlooksick #postexertionalmalaise #chronicillnesswarrior #dystonia #posturalorthostatictachycardiasyndrome #tooyoungtobesick #fibromyalgia #sensoryoverload #autoimmunedisease #ehlersdanlossyndrome #connectivetissuedisorder #lupus #chargie #chargiewarrior

We have just heard some wonderful news! Gigi is being allowed home from hospital to be with her family. She is still very ill but will have rest, peace and care at home. #StandUpForGigi #pwME #MillionsMissing

Repost @meme_the_sick_away #chronicfatigue #cfsme #myalgicencephalomyelitis #mecfs #chronicfatiguesyndrome #cfids #pwme #invisibleillness #chronicillness #chronicallyill #canyouseemenow #potsie #spoonie #dysautonomia #chronicpain #spooniewarrior #youdontlooksick #postexertionalmalaise #chronicillnesswarrior #dystonia #posturalorthostatictachycardiasyndrome #tooyoungtobesick #fibromyalgia #sensoryoverload #autoimmunedisease #ehlersdanlossyndrome #connectivetissuedisorder #lupus #chargie #chargiewarrior

It’s Sunday so here’s something for the coming week. Cut yourself some slack. Quit being so hard on yourself. Take time to process, breathe and focus on the next step. You got this

Hello! Whether you have just joined the village or you’ve been here a while here’s a little reminder of why I created this account and why were on a mission to do more. If you want to know more about us just pop to the about section of the website. We are currently undergoing a lot of major changes behind the scenes of what we do so do bear with us and so glad you’re with us for the exciting journey ahead! ⁣⁣ ⁣⁣ Whether you’ve got a diagnosis, or you don’t, whether you’ve been though, going through or supporting someone going through a tough time, we’re here to say you’re not alone in this. ⁣⁣ ⁣⁣ Life is hard as it is, lots of challenges and complications and that’s before you even throw in any type of long term physical and or mental illness or disability. But, life can also be full of joy, excitement and most importantly LOVE. Often during the worst times of our life we make the best discoveries and find people we now can’t imagine living without. One the magical things we now have is the internet and the ability to connect with people from all over the world who can say, I get it, I’m the same, I’m here if you want to talk/share/vent/celebrate and sometimes get together. ⁣⁣ ⁣⁣ We know social media has a bit of a bad rep a lot of the time, but, in this community the focus is LOVE, support and encouragement. We are here for you and we want to say thank you for being here for us. We’re so glad you exist and so happy to have you as part of the village. ⁣ ————————⁣ Lets spread some love and kindness and tell us who is now super important to you and you’re grateful to have met online

Repost @gwenjen_eds_awareness ME/CFS isn't rare but I thought the sentiment was appropriate. #chronicfatigue #cfsme #myalgicencephalomyelitis #mecfs #chronicfatiguesyndrome #cfids #pwme #invisibleillness #chronicillness #chronicallyill #canyouseemenow #potsie #spoonie #dysautonomia #chronicpain #spooniewarrior #youdontlooksick #postexertionalmalaise #chronicillnesswarrior #dystonia #posturalorthostatictachycardiasyndrome #tooyoungtobesick #fibromyalgia #sensoryoverload #autoimmunedisease #ehlersdanlossyndrome #connectivetissuedisorder #lupus #chargie #chargiewarrior