congenitalheartdefect chdawareness heartwarrior chdwarrior openheartsurgery 1in100 zipperclub heartsurgery chdaware downsyndrome family love congenitalheartdisease disability epilepsy hearthero heartmom invisibleillness quadruplets szafranskiquadruplets adhd angelmansyndrome autism brothers chargesyndrome chdsurvivor criduchat disorder dwarfism heartwarrior
We had to take Aria to the hospital yesterday because she was experiencing some breathing issues. She’s doing much better now after some med adjustments but we have to stay another night for observation. You guys, this baby girl is such a fighter and has swooned the hearts of every doctor and nurse here. She brightens everyones day everywhere we go
Glad My (1 out of ) Mr. #stealyourheart #teamchace cleared that up because we don't have any money y'all .
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#tloce #thelifeofchaceelijah
#niafa #neverinafightalone
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#congenitalheartdefect #chdwarrior #chdawareness #chdsurvivor #heartdefect #heartwarrior #heartsurgery #chd #tetralogyoffallot #openheartsurgery #tof #smib #pha #gtube #feedingtubeawareness #openheartsurgery #childrenshosptial #trultfocusedfilms #ifonlyyouknewchd #feedingtube #nymmg #ipopla #locs #locstyles
Alhamdulillah.. Adam Musa has successfully underwent Glen Shunt operation by Dr Sivakumar, Consultant Cardiothoracic Surgeon and IJN team.
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We wish Adam Musa a speedy recovery.
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#IJNMalaysia #IJNfoundation #glenshuntoperation #IJNPchc #penyakitjantungkanakkanak #peadiatrics #chd #congenitalheartdefect
"Our family is truly blessed to have Jeni our oldest daughter. She completes her brother Justice. Their connection is strong and transparent. They are best friends! They support each other’s dreams. Jeni is Justice #1 Cheerleader! She includes him in everything she does! They are blessed to have each other!"
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Special Needs Siblings of the Day!! : @giababyy18
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Submit A SIBLING -☝️ Link In Bio!☝️ Be sure to follow @special_needs_siblings !!!
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. #specialneedssiblings #specialneedsparents #specialneedssister #specialneedsmoms #specialneedsdads #specialneedsbrothers #specialneedsfamilies #support #epilepsy #autism #downsyndrome #brothers #family #congenitalheartdefect #disability #disorder #dwarfism #wheelchair #therapy #sensory #sisters #lupus #lyme #criduchat #angelmansyndrome #rettsyndrome #adhd
Last year I dreamed of Lucy doing this...and this year, well with a LOT of hard work, my dreams came true! It was so fun to watch Lucy giggle and swing with her family like a big girl! Your progress is amazing us all Lucy! {and this was before her cute little bob haircut. I’m missing that little side pony already !} #downsyndrome #luckyfew #physicaltherapy .
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#downsyndromeawareness #joubertsyndrome #13qdeletion #tubie #congenitalheartdefect #gtube #openheartsurgery #heartwarrior #lowmuscletone #t21 #trisomy21 #dsdn #hardofhearing #bilateralhearingloss #specialneeds #downsyndromediagnosis #ASL #babysigns #sharingdownsyndrome #sharingdsaz #hearingaids #downsyndromeadvocate
Mitos y verdades: .
Las personas con síndrome de Down tienen una vida muy corta .
Realidad: La esperanza de vida para las personas con síndrome de Down se ha incrementado drásticamente en los años recientes, acercándose al promedio de esperanza de vida de las personas que no tienen síndrome de Down.
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Bonito fin!!
This is year 6 and I love taking this (Past, Present & Future) picture with My (1 out of ) Mr. #stealyourheart #teamchace and my Dad every year. It shows Rj's growth over the yrs and I know one day our titles will change with me being the (Past) and him the (Present) but I just hope that he'll carry on our lil traditional picture with his family. ♥️
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#tloce #thelifeofchaceelijah
#niafa #neverinafightalone
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#congenitalheartdefect #chdwarrior #chdawareness #chdsurvivor #heartdefect #heartwarrior #heartsurgery #chd #tetralogyoffallot #openheartsurgery #tof #smib #pha #gtube #feedingtubeawareness #openheartsurgery #childrenshosptial #trultfocusedfilms #ifonlyyouknewchd #feedingtube #nymmg
Happy birthday sweet Brett. How we wish you were celebrating with us today. We love you. Always our Queen Bee Posted @withrepost • @brightforbrett “Last night I had a crazy dream
A wish was granted just for me
It could be for anything
I didn't ask for money
Or a mansion in Malibu
I simply wished for one more day with you First thing I'd do is pray for time to crawl
I'd unplug the telephone and keep the t.v off
I'd hold you every second
Say a million I love you's
That's what I'd do with one more day with you
One more day, one more time
One more sunset maybe I'd be satisfied
But then again I know what it would do
Leave me wishing still for one more day with you. “
Happy 3rd birthday my darling Brett.
Join us honoring Brett’s life by helping us in the fight against congenital heart disease. Link in bio
#congenitalheartdefect #zipperclub #thebrettboyerfoundation #1in100 #heartangel
Be still my heart. ❤️ I remember holding you as my newborn baby when the nurse looked at me with tears running down her cheeks and said, “I’m sorry”. She meant it out of love and I know she truly meant well. Now I see your toddler self being held by your sisters wearing your matching pjs just like another one in the group, and all I can think of is that I’m sorry for everyone who doesn’t get to have you in their family and life. You are the best thing that’s ever happened to us Lucy bug. We sure love you and the joy you bring! #downsyndrome #luckyfew #happyhannas .
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#downsyndromeawareness #joubertsyndrome #13qdeletion #tubie #congenitalheartdefect #gtube #openheartsurgery #heartwarrior #lowmuscletone #t21 #trisomy21 #dsdn #hardofhearing #bilateralhearingloss #specialneeds #downsyndromediagnosis #ASL #babysigns #sharingdownsyndrome #sharingdsaz #hearingaids #downsyndromeadvocate
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