Liste des hashtags les plus populaires par sujet #CRPSWARRIOR

Drop a ❤️ if this resonates with you!⁣ ⁣ We can’t always control what life throws our way, however we CAN choose how we react to it. We CAN have the life we have always imagined even if things don’t go as planned.⁣ ⁣ You decide who you want to become and you decide how you get there. It’s not necessarily the reality that shapes us, but the lens through which your brain views the world that shapes your reality. ⁣ ⁣ Everyone’s life comes with their fair share of trials and tribulations. We can be on top of the world one minute, only to come crashing down the next. ⁣ ⁣ It is in the crash that we have one of the most clear choices life will ever present—be the victim or be the victor.⁣ ⁣ And what I've found is that there is something incredible that is woven in the choice to be victorious over tragedy. It is a choice of self love that we are worth enough to make the most out of the devastation.⁣ ⁣ It started out as little daily choices to be the victor instead of the victim—writing in my gratitude journal when I could have stayed sulking in bed, believing I COULD DO it when everyone else told me I couldn't, trusting in the innate power of resilience to break through the yellow tape of recovery and healing, and a choice to accept my new life. ⁣ ⁣ So wherevever you stand (or sit or lay) on this walk of life today, recognize the daily choices as they present themselves to be the victim or be the victor. ⁣ ⁣ YOU GOT THIS!⁣ ❤️ @amberlylagomotivation⁣ ⁣ @stylewithkat⁣ #werisetogether #yougotthis #attitudeofgratitude #victor #cantstopwontstop #resilience ⁣ ⁣ ⁣

Jo (Fibromyalgia 6 years) came to the clinic in a wheelchair. It’s her sixth week of treatment and she is up and WALKING! #chronicpain #fibromyalgia #crps #complexregionalpainsyndrome #invisibleillness #fibro #ehlersdanlossyndrome #potssyndrome #crpswarrior

We captured a moment of PURE JOY between Sam & her therapist, Tamie, after Sam ran without her pain spiking for the first time in 8 years. #crps #complexregionalpainsyndrome #crpswarrior #speroclinic #eds #pots #POTSsyndrome #chronicpain #crpssucks #painrelief #hope #crpsawareness

4th year of being an amputee! This is the first time on amputation anniversary day, that I have not had the dread of reliving this monumental / life changing day. They say that times a healer and I agree to a point, but I also think it’s how you are prepared to deal with these life changing situations. I sought help through psychologist from my accident all through to post amputation. I wanted to help myself accept and deal with what had happened, physically and mentally but most importantly I wanted to move on from it. I didn’t want it to define my life, I wanted to see it as a change in my direction and my outlook to life. I truly don’t believe I would be the person that I am today without the help from those influential people. They have taught me invaluable life lessons, given me the tools to help manage in my future. I am forever grateful to the medical and psychological angels that saved my life! #amputee #amputation #4yearstoday #stump #leftarmamputee #adaptivelifestyle #adaptive #crps #crpswarrior #chronicpain #disability #disabilityawareness #psychologicalhelp #mindfullness #counselling #mentalhealthawareness #ptsd #thingsyoudontsee #myjourney #mylife #owningit #thankful

Update on my rheumatology appointment I saw the paediatric rheumatologist today, to discuss the new symptoms I’ve developed over the past few months. To be honest, it wasn’t the greatest appointment. We went over my history, my symptoms etc. But we hardly talked about the things we went to see him for in the first place. He spent SO much time talking about my crps (which I personally don’t think he should have done, as it isn’t his specialty & it’s not what we went to see him for). He told me that I need to not have big expectations when it comes to treatment, getting better etc, but then he said that I need to “believe I’ll get better & I actually will” (despite the fact that majority of my conditions are CHRONIC) The good news: he’s 99% sure I don’t have Lupus, because all the special blood tests (don’t ask me which ones) they did came back negative. The bad news: 1. He doesn’t know what’s causing the symptoms. It’s mimicking/is very similar to Lupus, but it isn’t Lupus. We’re going to get a second opinion though, so we can hopefully get some answers. 2. He diagnosed me with Ehlers Danlos Syndrome (EDS) - hypermobile type. A few different doctors have suspected EDS/some form of a connective tissue disorder for a while, but we were waiting to get into a geneticist, as my old pain specialist suspected either hEDS or cEDS (classical type). He said he just thinks it’s hEDS, so he doesn’t think it’s necessary to see the geneticist. I have to keep up with my physio & go back to hydrotherapy, to try and build up the strength/muscles in my legs. So yeah, that’s pretty much the summary of appointment. (Photo from when I went to the shops the other day)

I’ve been so angry & so sad the past few days. I just want my life back. My 16th birthday is in 29 days & I have no idea what I’m doing for my birthday. I don’t really have any friends here, because they’ve all abandoned me over the years due to me being sick. I want the sweet 16th that I’ve always dreamt of; lots of friends, a big party, alcohol, a sleepover etc. I’m so mad that my illnesses have taken that from me. I hate that my old dance teacher caused all of this, purely because she didn’t want to pay the stage hire fees. I hate that I’m missing out on the proper ‘high school experience’ because I’m sick. I don’t get to do science experiments, go on many/any school trips, I don’t get a proper opportunity to find someone to date, I’ll probably miss out on prom. It’s not fair. This shit is so not fair. I want a my life back. I’m not going to spin this around & somehow give it a positive message at the end. This is reality. Being sick is HARD. Missing out on a normal life is HARD. I just seriously hope that I’ll get to experience some ‘normal’ things again. And I’m sorry if this comes across as me whinging, but I just needed to vent & this is my safe space.

I know that I may not seem disabled, but I am. I know that I may look ‘normal’, and although I AM normal, I’m not healthy. I know that my disability is invisible when I’m not on my crutches, or in my wheelchair, but that doesn’t mean I’m not disabled. I’m disabled. No I’m not differently abled, humanly different, special, inspirational, crippled, physically challenged or broken. I am disabled. It’s not a bad word. At all. Please remember that invisible disabilities are JUST as valid as visible disabilities & that disabled is NOT at all a bad word

Today my pain is indescribable . Beyond medication. Debilitating. Yesterday, I had an amazing day with a friend. My pain was there, but it allowed me to enjoy my life for a moment. Today, I am trying to just breathe through. I want to share this with you so you can understand how much my life has changed, but how much I’m fighting to get control back. #live #fightthefire #itburns #breaththrough #chronicpainwarrior #centralpainsyndrome #invisibleillness #spoonie #chronicpain #survivor #bodypositive #bodypositivity #invisibleillness #chronicillness #strongwomen #painwarrior #neurologicaldisorder #crps #crpswarrior #strongwoman #painsomnia #weightlossjourney #staystrong

Fun at the CRPS Convention in Disneyland ️ Thanks to @crpsforum for organizing! I had such fun meeting warriors including the @rsdsisters . . . . . #CRPS #RSD #FindACure #WheelchairDontCare #BeTheChange #CRPSWarrior #CRPSConvention #complexregionalpainsyndrome #DisabledAndCute #Disneyland #Disney #wheelchairlicious #wheelchairbarbie #wheelchairlife #wheelchairgirl #wheelchair #chronicpain #chronicillness #chronicallyill #pain #CRPSAwareness #BabesWithMobilityAids #cannabis #CBD #MMJ #medicalcannabis #medicalmarijuana #spoonies #spoonie