phawareness pulmonaryhypertension phaware pulmonaryhypertensionawareness brest gomel goodphnews grodno iamphaware minsk mogilev pahbelarus phbelarus pulmonary легочнаягипертензия легочнаягипертензиябеларусь минск raredisease жодино лгбеларусь phday pulmonaryhypertensionday rarediseases wphd легочныезаболевания редкиеболезни редкиезаболевания редкоезаболевание деньлегочнойгипертензии phbelarus
Last night, after 8 days in the hospital, getting emergency IV treatments and being poked and prodded like a lab rat, Penny and I finally broke out.
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We thank God for the UCHealth Pulmonary Hypertension team, they are the best of the best, we’re thankful for the great team of doctors and nurses that cared for me and will continue to track my health throughout my life. We’re also thankful for friends and family who dropped everything to be here, and the ones who stepped up in our time of need, we couldn’t have gotten through it without y’all. Thank you again to everyone for the love from afar, the texts, calls and prayers have been overwhelming. Here’s to finding the new normal! #pulmonaryhypertension #phawareness
Thanks for the warm welcome into the PH/ chronic illness community on the gram. Having a serious long term condition can be a rollercoaster - tell me one thing you do to make yourself feel better?
I like to get outside and get some fresh air and some sun on my face - but winter is making this less appealing! ❄️
These kids (and hubs obviously) are the best parts of even my hardest days.
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I think that at this point, I’m pretty much a medical professional. Today has been a particularly hard day, on the phone with nurse after nurse trying to figure out a good course of action and prevent another potential infection... to no avail other than what I’m already doing. I’m exhausted and I’m angry. I just feel like I’m spinning my wheels and not getting anywhere. The one thing I want to preach is being an advocate for yourself because sometimes you have to yell to be heard.
Just chatting with Penny 2.0 about her diet and how heavy she is. Jk, but really, this chick is a beast to push and pull around for my daily (all day) walks to keep occupied here in the ICU. The docs officially know what the infection is, so we’re on our way to treating it and getting the old Penny back. I’m shocked that I miss her Here’s to getting better and getting fresh air before I lose my mind.
I am saddened to hear about the the passing of a beautiful and brave little girl, Humayra Bhodania, who battled idiopathic pulmonary hypertension (PH). Your struggle is over little angel. May Allah SWA place sabr in the hearts of your parents and loved ones and may they find comfort in knowing that your brother awaits you in Jannah إِنْ شـــــــاء اللَّــہ
#humayrabhodania #pulmonaryhypertension #phawareness
What an honor it was to meet and greet w @chloetemtchine This strong #phwarrior has been through so much and continues to stay true to herself her passions and her purpose. Way to set the example. We’re all so lucky to have you on our team!! In this post you’ll see me putting a lung necklace on Chloe as a part of the @saphsg initiation. #pulmonaryhypertension #smiletour2019 #strengthinnumbers #PHighting #hopeforacure #phawareness #chronicallycool #oxygenwarriors #PHuckPH #smiletour2019
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