Liste des hashtags les plus populaires par sujet #RAREDISEASES

Time for a double! When I got diagnosed with a life-threatening type of #scleroderma in 2014, there was no cure. But we found an experimental treatment in the Netherlands. Today, 3 years after my second bone marrow transplant, the disease is almost non-detectable and I can lower the drug doses. Still some bugs in the system, but with a long relaxing summer to recover I’ll get there! Had to buy a double portion of ice cream to celebrate medical breakthroughs like this, that give hope to patients around the world! ❤️ #nevergiveup #alwayshope #innovation #rarediseases

Steve Martin (my tank) is singing backup for me Let it rip, Steve!

#repost with the lovely @reesewitherspoon at the @vanityfair party☺️ #thesmiletour #thesmiletour2019

Happiness with my little baby @razztberry

Greatest time ever with my favorite person on earth! ❤️❤️❤️

definitely the best hospital admission ever!! Abbie grace has marfan syndrome along with many other comorbilities and it has been the best hanging out with her!! my trial with the temporary gastric stimulator has worked so my surgery for the permanent is august 9th! i was able to eat and it was amazing. i will still keep my gj tube but this drastically improves my symptoms!! - - - - #feedingtube #gastroparesis #rarediseases #chronicillness #smasyndrome #gjtube #inspiration #superiormesentaricarterysyndrome #tubie #dysautonomia #pots #eds #ehlersdanlossyndrome #hypermobility #dance

Such a great time @gratitudekitchenandbar with my lovely and wonderful friend @emilyrose_shaw Not only is Emily the sweetest person ever but she’s the greatest chef ever and she focuses on plant-based cuisine (aka my medicine ) ❤️

A . New vlog is up on my second channel Youtube.com/chloesPHriend ☺️