Liste des hashtags les plus populaires par sujet #ZEBRASTRONG

EDS/HSD can be incredibly overwhelming when symptoms flare. It can be incredibly difficult to talk about these days, but it’s a true depiction of what those with EDS and HSD can suffer frequently. Help us raise awareness, share your reality. #EhlersDanlos #ChronicPain #hypermobile #hypermobility #EhlersDanlosSyndromes #pain #EDS #EDSAwareness #ChronicIllness #Spoonie #ZebraStrong #DazzleTogether #Zebra #hEDS #vEDS #cEDS #HSD #myedschallenge #myhsdchallenge

Who can relate to this? I remember I would lash out at times because my pain level was so high... and I really didn't mean it. Please let us know if you can relate ❤️ ~Nicole~⠀⠀⠀⠀⠀⠀⠀⠀⠀ --------------------------------------------------------------------------------------------------------- WIN unique chronic illness clothes from The Unchargeables Shop. Link to giveaway in bio.⠀⠀⠀⠀⠀⠀⠀⠀⠀ .⠀⠀⠀⠀⠀⠀⠀⠀⠀ .⠀⠀⠀⠀⠀⠀⠀⠀⠀ #chronicillness #chronicillnesswarrior #chronicpain #chronicpainwarrior #migraine #fibromyalgiaawareness #spoonieproblems #spooniewarrior ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #chroniclife #autoimmunedisease #chronicillnessawareness #anxietywarrior #sicklife #disabledandcute #invisibleillnessawareness #disabled #zebrastrong #spooniesunite #raiseawareness #butyoudontlooksick #disabilityawareness #invisibedisability #chronicpainwarrior #eds #spoonie #pcosawareness #arthritis . [Image description: Black text against a white and grey marble background reads 'No I'm not angry - I'm just in lots of pain.']

TODAY'S Chargie of the Day is Hayley:⠀⠀⠀⠀⠀⠀⠀⠀⠀ .⠀⠀⠀⠀⠀⠀⠀⠀⠀ Hey guys I'm Hayley! I'm 28 and I have a series of chronic illnesses including Chronic Pancreatitis, Exocrine Pancreatic Insufficiency & Gastroparesis. My pain is constant and indescribable which can make life difficult. After years of repeated acute attacks, hospitalizations & feeding tubes, biopsies & failed experiments, I have finally been approved for a Total Pancreatectomy with islet auto transplantation, splenectomy, partial gastrectomy & a small bowel resection. I am hoping these surgeries will greatly improve my quality of life! ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Making the decision to have a major open surgery and to deal with the side effects, like being insulin dependent, was difficult. But life's about choices ....and I chose hope. My illnesses have taken too much from me but I won't let them take my spirit or my desire to raise awareness. I try to do that on my Instagram @asecretspoonielife and challenge people's perceptions of what it means to "live with chronic illnesses" ...all with a little humor. I share my journey with rare diseases in the hopes that I can connect with other Chargies and maybe make someone's journey a little easier! I hope you join me! ⠀⠀⠀⠀⠀⠀⠀⠀⠀ . ⠀⠀⠀⠀⠀⠀⠀⠀⠀ WIN unique chronic illness clothes from The Unchargeables Shop. Link to giveaway in bio.⠀⠀⠀⠀⠀⠀⠀⠀⠀ .⠀⠀⠀⠀⠀⠀⠀⠀⠀ .⠀⠀⠀⠀⠀⠀⠀⠀⠀ .⠀⠀⠀⠀⠀⠀⠀⠀⠀ .⠀⠀⠀⠀⠀⠀⠀⠀⠀ .⠀⠀⠀⠀⠀⠀⠀⠀⠀ . #chronicillness #chronicillnesswarrior #chronicpain #chronicpainwarrior #migraine #fibromyalgiaawareness #spoonieproblems #spooniewarrior ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #chroniclife #autoimmunedisease #chronicillnessawareness #anxietywarrior #sicklife #disabledandcute #invisibleillnessawareness #disabled #zebrastrong #spooniesunite #raiseawareness #butyoudontlooksick #disabilityawareness #invisibedisability #chronicpainwarrior #spoonie #spoonielife #invisibleillness

here’s a victory from yesterday honestly things have been really tough. pain, nausea, throwing up, dizziness, difficultly swallowing...all the things. i haven’t been on my phone very much, but thank you for all the sweet messages. i will read them all when i’m feeling a bit better! as always, we press on! #wegotdys #spinalfusion

it’s less than one week until my craniocervical fusion + chiari decompression surgery. i can’t believe that in a week i’ll literally have rods and screws holding up my head on spine. i have lots of mixed feelings, but i know it’s the right next step. i’m more scared of staying the way i am than i am to have the surgery. i think that says a lot. of course i’m aware that this is not a cure, but i have so much hope that it will help me have a better quality of life. it will be hard, but God will be with me every step of the way.

Today is day 5 of #EDSAwarenessMonth and I wanted to talk about mobility aids. In my years I have used a variety of methodologies to get around; crutches, braces, a wheelchair, a walker, some pretty amazing robot legs, and my own two feet. Lately I have had to start using a cane (both for balance and for when the waves of pain hit.). So much for an “invisible illness, am I right? Sometimes I could not feel MORE visible ➡️I am not ashamed though! I will never be ashamed to have to use a mobility device. Before I had to use one, even I fell for the, “Confined to a Wheelchair” phenomenon. ➡️ I think most people, even some doctors, view mobility aids and devices as some sort of huge downgrade in quality of life. I get it, sometimes medical supplies aren’t SUPER glamorous, but what some really fail to consider is the FREEDOM that they can supply for those who truly need them. ➡️So I will continue to use my cane. I will continue to wear my braces. I will continue to answer questions, but I will continue to do my best to live my life to the fullest. ➡️ Tomorrow I begin an intensive outpatient physical and neuro therapy program here in PA. (Furthering my superhero training). Little apprehensive, it’s going to be a lot of work, but I’m most definitely excited. ➡️Bonus: Me “Zaching” against cancer on #zachingday

I am not my diagnosis, that I spent years trying to find. I am not the burden, that I wish I could leave behind. I am not the pain, that comes and goes like the dancing breeze. I am not weakness in my hips, wrists and knees. I am not the frustration, that I feel with every deep sigh. I am not the exhaustion, that pulls me down when I want to soar high. I am not the tightness that I feel when breathing in, I am trying to fight, and the rope I balance on is thin. I am not failure when the day is to hard to bare, I am not as fragile as the tissue that lives under there. I am not excuses, or labels and reasons why not. I am defiant and brave and I won’t fade and rot. I am a zebra dancing with horses in a world not built for my fragility, I am fierce and determined and my disease won’t stop my ability. I am strong. I choose life. I choose to fly despite my fragile wings. I am not my diagnosis and all that it brings. Lara Bloom #myedschallenge

Check out this organized way to track your health, by @theautoimmuneadvocate #bulletjournal and #selfcarehacks

THIS. THIS. THIS. Seeing a new specialist today. Doctor appointments are common occurences in a #chronicillness life. It feels almost silly to be nervous when we do have to go. But nerves is the only way to describe the feeling of having to lay out your years of medical history to this new person and trust they'll understand. Doing my utmost to breathe in calming energy and remember that the doctor is there to help ME.