illness chronicillness health pain chronicpain disease invisibleillness sick fibromyalgia mentalhealth life love spoonie support anxiety awareness mentalillness depression fibromyalgiaawareness healing nevergiveup wellness couple crohns crohnsdisease depressed fibro fibrofighter cruisereiziger
UPDATE & weight warning:
I’m sorry I haven’t posted much & kept y’all updated lately! It’s been a hectic week. Last Friday, my tube got completely clogged and I couldn’t push anything through it. We decided to wait until my GI appt Monday because if it needed to be replaced they would admit me & we’d be sitting in the hospital. I was able to drink some fluids and eat a little. When we got to the GI doc, she said that since my nerve block and surgery to fix my MALS is going to be at least another couple of months, she recommended a GJ tube be placed for longer term nutrition. So, they admitted me Monday. The doctors here refuse to place a tube until I gain some weight (About 10 lbs) and I’m able to tolerate feeds better. I’m unable to run them at the full rate, when I do run it I get extremely sick. That being said, they decided to keep me to monitor me and get nausea and pain under control. I’m not able to run @ full yet, but we’re slowly trying to get there. My POTS is also acting up again. I’m very lightheaded and I’m not able to move around much. My body doesn’t like to keep its temp, so one second I’ll be freezing and another I’ll be burning up! I’m also dehydrated despite drinking the right amount (gotta love POTS) We also have to get motility and bowel stuff under control.
Idk how long they’re keeping me tbh, it’s probably going to be a while, which makes me sad but at the same time I know I’m under good care. This hospital is much better than the other one I used to go to. I am working back up, but it’s taking time. I hate how one minute I’ll be fine and the next I can’t move I’m so sick.
#mitochondrialdisease #mitowarrior #mitochondrialdiseasewarrior #pots #postorthostatictachycardiasyndrome #dysautonomia #crps #crpswarrior #medianarcuateligamentsyndrome #spoonie #spoonielife #hospital #sickchick #spooniesister #spooniesupport #potswarrior #illness #chronicpain #chronicillness #invisibleillness #malnourished #fightingforacure #invisibleillnesswarrior #god #jesusismysavior #christianspoonie #chronicillnesswarrior #dysautonomiawarrior #malswarrior #giissues
Happy Mother’s Day! I have no idea how my mom does it all, seriously she is the strongest person I know who has to deal with a lot on top of my illness. Through it all she has stayed positive. She’s helped me grow closer to God and has been a shoulder to cry on. She is so selfless and always puts others before herself. I wanted to take my mom out today, but the past day has been one of the hardest pain days I’ve had. You know the pain is bad when you can’t remember the day before other than you crying and screaming. My MALS pain has flared back up to the MAX and I literally felt like I was dying. All of my symptoms hit me like a train all at once and I was so out of it all day yesterday I couldn’t even form a sentence. It’s truly terrifying but God has really helped me stay calm although pain episodes are scary. I ended up having to take some of my strong pain meds, which I try not to do unless I absolutely need them. They help me sleep, which really is the only escape when my pain flares up. I have an appt Monday to get things checked out. I haven’t been able to get out of bed today, which is crap because I wanted to go to church and take my mom somewhere nice! :( When we’re ill, we tend to feel like a burden. I constantly apologize to my mom for having to take up her time with all of my medical needs. Most of her days revolve on taking me to doctors appts and distracting me from pain, and she rarely has time for herself! I used to be a very independent person, but being sick has made it to where I have to rely on others for certain needs. I’m still struggling with not being in control of my life, and it’s so hard having to adjust. Anyways, a huge thank you to my mom for being my advocate and fighting for my medical needs. She is constantly on the phone with doctors trying to find the best of the best that won’t break the bank! I love u mom♥️ (PS we’re having a hard time finding a skilled doc for my MALS nerve block who does ped patients, so prayers are needed. The sooner I get the block the sooner i can hopefully get surgery. I know God has a plan but I’m really down in the dumps about it, and living with this pain everyday really wears a person down)
summer tacos if you follow my stories you’ve seen me eat this taco combo everyday for a week it’s that good! @potapas grain free tortilla, mashed avocado, romaine lettuce, alfalfa sprouts, red onion, strawberries and a mango dressing on top! the dressing is mango, zucchini, dates, garlic, and maple syrup-it’s in my first ebook! LOVE this combo, light and fresh for the hotter weather!
#tacos #summer
If we all had a dollar for everytime...we’d all be able to afford the proper care we need...
.
.
this quote from @emotionalautoimmunity (and her feed and insight, check it out)!
.
.
I was the one to diagnose myself with Hashimoto’s Disease. Just needed to find the right doctor to order the TPO antibody test for me and sure enough...
.
.
It took so long to get diagnosed (5 years) because I gave up a few times in my search for an answer to why I was so sick. All the doctors (3 military and 1 civilian) told me I was just stressed because I was married to an active duty serviceman.
.
.
I had the antidepressant medications prescribed. I have been told its all in my head. I’ve had endocrinologists refuse to retest antibodies (as they say it's a useless number beyond diagnosis).
.
.
How have you been #docblocked?
.
.
.
.
.
#hypothyroidism #chronicfatigue #inflammation #healthyish #butyoudontlooksick #immunesystem #hashimotos #thyroid #illness #chronicillnesswarrior #autoimmunewarrior #chronicpainwarrior #leakygut #adrenalfatigue #chronicallyill #sickandtired #thyroidwarrior #hashimotoswarrior #brainfog #hashimotosdisease #thyroidproblems #thyroiddisease #hashimotosthyroiditis #remission #thyroidhealing #invisibledisease
#fibromyalgiawarrior #illness #autoimmunedisease #spoonielife
Honestly, it hasn’t sunk into my head yet and when I really think deep into it I could probably faint from the panick attack and stress I get from thinking about it. God help us go day by day and and help us stay strong thru the bad days. We are warriors so keep ur head up and keep walking. #staystrong#illness#fibromyalgia#roughtime#shareyourstory#hard#life#nocure#cure#help#eachother#stress#depression#therapy#positivevibes#relate#quotes#page#share#follow#like#support#staystrong#warriors#amen
Every family gathering
-
#memes #exammemes #chatmemes #eyebrows #eyememe #hearteyememes #rubbingeyes #surgery #surgerymemes #illness #plasticsurgery #medicinememes #doctormemes #dogmemes #singleandhappy #tommemes #tomandjerrymemes #picassomemes #artmeme #artmemes #photoshopfail #meme #friendmemes #friendshipgoals #friendshipmemes #xbox #nintendo #endgame #thanos
“regardless of what they’re told by those who have never struggled with sickness, people are getting better. regardless of what they’re told by the lost souls who don’t understand, millions of people are healing, gaining control over their lives, and witnessing miracles. they’re discovering that it is not a dream. it’s real.”
@medicalmedium celery juice
that’s beautiful and true ❣️
.
who else is excited to find what is written on the pages of this book!? ♀️
I accidentally archieved this
-
#memes #exammemes #chatmemes #eyebrows #eyememe #hearteyememes #rubbingeyes #surgery #surgerymemes #illness #plasticsurgery #medicinememes #doctormemes #dogmemes #singleandhappy #tommemes #tomandjerrymemes #picassomemes #artmeme #artmemes #photoshopfail #meme #friendmemes #friendshipgoals #friendshipmemes #xbox #nintendo #endgame #thanos
:)
+
#memes #exammemes #chatmemes #eyebrows #eyememe #hearteyememes #rubbingeyes #surgery #surgerymemes #illness #plasticsurgery #medicinememes #doctormemes #dogmemes #singleandhappy #tommemes #tomandjerrymemes #picassomemes #artmeme #artmemes #photoshopfail #meme #friendmemes #friendshipgoals #friendshipmemes #xbox #nintendo #endgame #thanos