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Having a day.
I try to be as positive as I can but the reality is it’s impossible to stay that way 24/7. It hurts to walk, to stand, to sit, to be. I have to miss the LFA party in the city tonight. I’m just bummed, and I’m as honest as can be on this page so that means the good and the bad, right?
Not looking for pity or sympathy. Just venting, and I’m sorry for anyone else who lives in pain. No one deserves it.
Tomorrow will be a better day.
This is pretty cool and a great way to raise awareness! (It’s happening today at 4pm Eastern Time)
#Repost @exagen.inc
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We are so proud to be part of this event! @lupusorg We have exciting news! This afternoon we will be ringing the
@Nasdaq closing bell with @exagen.inc to raise awareness of #lupus and the importance of early diagnosis. Tune in at 4pm ET and RT to #RingItLouder! #Exagen #AVISE #rewritetomorrow
More facts for Lupus Awareness Month For me, Lupus has attacked most of my body. Pain, hair loss, extreme fatigue, cognitive issues, chronic inflammation, rashes, and more! Though every lupus patient is different many of us have lots of similar symptoms! #autoimmunedisease #lupus #lupusawareness #lupusawarenessmonth #lupuswarrior #lupuswolfpack #lupusflare #lupusfacts #knowlupus #prednisone #benlysta #lifewithlupus #lupusfoundationofamerica #chronicillness #chronicpain #chronicfatigue #jointpain #butyoudontlooksick #invisibleillness
So, I did a thing this past Saturday.
I became an IRONMAN on #WorldLupusDay which seemed very fitting! I raced 140.6 miles this weekend for those #lupuswarriors that can’t. Lupus may be part of my identity, but I will not let it define me, it WILL NOT hold me back from crushing my goals!
Saturday I proved to myself that my body is still an unbeatable force as I tackled the hardest thing I’ve ever done in my life! Not to mention the hardest and mentally challenging course I’ve ever experienced. Though I am now sick and my immune system hates me, my muscles and body recovered really well and I feel stronger than ever!
I’m so happy I achieved what only 7% of the worlds population has ever achieved! Thank you to my family, friends, coworkers and the IRONMAN community for all the support and good vibes! I couldn’t have done it without you! Onto the next one! #worldlupusday #lupuswarrior #thisisforyoukatie #ironman #ironmanfinisher #ironmansantarosa #lupusfoundationofamerica #raceforacure #autoimmunedisease #chronicillness #bethechange #goalsetter #goalcrusher #triathlete #triathleteonamission
May is lupus awareness month. According to a recent survey, 63% of Americans have never heard of or know little or nothing about lupus.
Approximately 5 million people live with some form of lupus worldwide.
SLE is an autoimmune disease that can involve any organ of the body.
Symptoms can range from fatigue and arthritis to multiple organ failure.
I recommend American college of rheumatology website for accurate information. Here’s the link:
https://www.rheumatology.org/I-Am-A/Patient-Caregiver/Diseases-Conditions/Lupus
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#lupus #lupusawarenessmonth #lupustruth #lupusfoundationofamerica #arthritis #rheum #rheumatology #rheumatologist #rheumatoidarthritis #doctor #doctors #physician #mbbs #indiandoctor #somedocs #womeninmedicine
May is Lupus Awareness Month! I want to share facts about my story that go along with actual Lupus facts!! I think it’s very easy to find information online that’s misleading or incorrect! We need facts so that we can make impact. I love sharing my story and love seeing you all share yours! We are going to make an impact! We are the drivers of CHANGE This is a true fact about myself. I NEVER heard of lupus until I was diagnosed. And that needs to change. More and more people need to kNOw lupus!! We will not stand for any less. We need more options and better treatment! #autoimmunedisease #lupus #lupusawareness #lupusawarenessmonth #lupuswarrior #lupuswolfpack #lupusflare #lupusfacts #knowlupus #prednisone #benlysta #lifewithlupus #lupusfoundationofamerica #chronicillness #chronicpain #chronicfatigue #jointpain #butyoudontlooksick #invisibleillness
Me and Lou joining in with @thelupustrainer & @kazytauginas #worldlupusday #worldlupusday2019 #lupusday #putonpurpleforlupus #purple #lupusawareness #lupus #lupusfighter #lupusflare #lupuswarrior #mayislupusawarenessmonth #invisibleillness #chronicillness #chronicfatigue #lupusfoundationofamerica #lupuswolfpack #butyoudontlooksick #jointpain #rashes #fever #dontgiveup
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