chronicillnessawareness chronicillness chronicillnesswarrior chronicpain invisibleillness spoonie spoonielife chronicpainwarrior fibromyalgia invisibleillnessawareness butyoudontlooksick chronicillnessblogger chronicillnesslife fibromyalgiaawareness chronicallyill chronicpainawareness fibro chronicfatiguesyndrome chronicillnesscommunity chroniclyme chroniclymedisease lyme lymedisease maladiedelyme spooniewarrior chronicfatigue mentalhealthawareness depression fatigue crps
And it WAS okay
#fibromyalgiawarrior #fibromyalgiafighter #fibromyalgia #fibromyalgiaawareness #fibro #fibrofighter #fibrowarrior #chronicpain #chronicfatigue #chronicillness #chronicillnessawareness #chronicillnessfighter #invisibleillness #invisibleillnessawareness #fibrolife #fightingpain #chronicfatigue #cfs #chronicfatiguesyndrome #chronicfatiguefighter
I used to have the mindset that my body was broken. I loathed it for not working the way I wanted it to. I hated it for making me cry in front of everyone on the first day of dance practice, for making me struggle graduating college, for making struggle working a 9-5, for making grocery shopping the most tiring task, for making travel more difficult, for making me feel isolated.
And that self-hate wasn’t doing me any good. Those toxic thoughts lead to the worst thing— passivity. I didn’t take any action, I didn’t write like I do now, I didn’t intentionally take any care of myself which fed to the cycle of me feeling powerless and hence, always sick.
I really believe cultivating self-compassion and letting go of who we think we’re supposed to be or what others think, and accepting our situation is really the fire starter for any kind of healing. I’m not saying it’s easy (it’s not) but if you’re going to fight for yourself, you’re gonna have to start with the practice of loving (or at least sorta liking) yourself.
Start here: your body isn’t broken. It’s healing.
Mini ebook on self-care and self-healing on my website, link in bio
#lupuswarrior #lupusawareness #chronicillnesswarrior #invisibleillness #invisibleillnessawareness #chronicillnessawareness #lupuslifestyle #chronicillnesslifestyle #selfloveisselfhealing #selfhealing #selflove #spooniecommunity #spoonielife @themightysite
Okay but this has been me the past few days. I started having trouble with feeds last week, and I’m down to about 25% of my goal rate. I’m having a rough time with vomiting and pain, and I’m hoping this doesn’t last forever because it’s miserable. Today has definitely been better, so I’m hoping I can go up on feeds tomorrow and get back to goal by the end of the week. #gastroparesis #pots #posturalorthostatictachycardiasyndrome #potssyndrome #chronicillness #chronicillnessawareness #chronicallyill
Fibro fog is one of the most infuriating symptoms.
I hate how powerless, stupid, confused, disoriented and scared it can make me feel!
#fibromyalgiawarrior #fibromyalgiafighter #fibromyalgia #fibromyalgiaawareness #fibro #fibrofighter #fibrowarrior #chronicpain #chronicfatigue #chronicillness #chronicillnessawareness #chronicillnessfighter #invisibleillness #invisibleillnessawareness #fibrolife #fightingpain #chronicfatigue #cfs #chronicfatiguesyndrome #chronicfatiguefighter
#fibrofog #brainfog #cognitivedysfunction
Despite having a back spasm I have gone to work this week. I did this because I did not want to do nothing all week. I am tired of doing what my body wants. Yes I listen by relaxing or taking time out every now and again but not every day. I compromised and went work for 3/4 days but left 1-2hours early on each day. Now I refuse to be that person who shows my pain in public so yes there was the occasional groan, the extra quietness and slow movement but there was no complaining. I have started to wonder if management have taken this for granted, not that I want praise or anything. They now have this augmented reality of what pain looks like for me. I may be overthinking but when you do things in pain people take your pain less serious, they want you to stay in bed dosed up on pills to “look and act sick” - whatever that looks like. ♀️ #jointhypermobilitysyndrome #jointhypermobility #jointhypermobilityspectrum #jointhypermobilitydisorders #jhs #ehlersdanlossyndrome #eds #ehlersdanlos #ehlersdanlosawareness #ehlersdanlostype3 #lupusflare #lupusawareness #marfansyndrome #marfanawareness #chronicillnessawareness #chronicpain #chronicillness #disabled #disabledmemes #chronicfatiguesyndrome #mentalhealth #mhawareness #anxiety #depression
ATALLTIMES Capeesh?
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#hidradenitissuppurativa #hidradenitis #hidradenitissuppurativawarrior #hidradenitissuppurativaawareness #hidradenitissuppurativasupport #hswarrior #hswarriors #hswarriorsunite #hsawareness #likeforlikes #like4likes #autoimmunedisease #autoimmunewarrior #chronicallyill #spoonie #spoonielife #spoonieproblems #spooniestrong #chronicpain #chronicpainwarrior #chronicpainawareness #chronicillness #chronicillnesswarrior #chronicillnessawareness #pcos #pcosawareness #pcosfighter #pcoscysters #invisibleillness #invisibleillnessawareness