trisomy21 downsyndrome theluckyfew nothingdownaboutit downsyndromeawareness morealikethandifferent upsyndrome downsyndromelove downsyndromerocks changingthefaceofbeauty downrightperfect lifeisbetterwithyou dsdn homiewithanextrachromie motherhood wouldntchangeathing savedownsyndrome shouttheirworth sindromededown babiesofinstagram downsyndromebaby inclusion specialneedsmom momblog advocatelikeamother babyboy chdwarrior inclusionmatters love рас
2 years ago, I was told my baby would have Down Syndrome. Those 2 words managed to strike fear and sadness through the heart of me.
But that's all it was. A diagnosis.
They told me you would have a flat nose, almond shaped eyes, small ears. They never told me those features would combine to create the most perfect little face I've ever seen.
They told me you'd have health problems, they never told me my own heart would grow an inch every time I witnessed you having to work a little harder than others to fight a common cold and come out the other side, how any challenges you face just make you more resliient.
They told me you'd be slower to do things, they didn't tell me I wouldn't actually care.
They generalised and told me "he'll always be happy", they never told me how my heart would break when you're sad, in pain or distressed.
They told me you'd be slow to communicate, they never told me I'd hear you chuckle from another room when you're playing with your Dad. Or how your favourite time of the day is when you get to wrestle your sister on the couch and raise the roof with the laughter.
They never told me how your big smile beaming out of your cot every morning lights up your room, even in the dark.
The medical professionals told me you *had* Down syndrome. But the greatest minds in the world could never anticipate who you would be.
And that my darling, is the most extraordinary little boy I know.
A diagnosis is 2 words., not a sentence.It's simply the start of the story. The rest is yet unwritten so lead the way my best little pal.
#downsyndrome #trisomy21 #theluckyfew #mylittlehero #homiewithanextrachromie #shouttheirworth #nothingdownaboutit
Evie had an ortothics appointment this morning which we actually got to on time I couldn't believe it anyway all went well
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Evie's feet don't seen to be as bad as what I initially thought, she is flat footed and her low muscle tone just adds to the problem, in saying that the boots we bought her a few weeks ago seem to be supporting her well & her physiotherapist is pretty happy with her progress so far
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The plan now is to keep doing what we are doing & we will reassess in a couple of months to see what stage we are at
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I'm delighted she is doing so well I couldn't be more proud of her ❤️
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#morealikethandifferent #downsyndrome #myworld #upsyndrome #downsyndromeawareness #downsyndromelove #changingthefaceofbeauty #candidchildhood #babystyle #theluckyfew #photography #parenting #motherhood #wouldntchangeathing #lifeisbetterwithyou #trisomy21 #t21 #homiewithanextrachromie #irishparentingblogger #inclusion #learning #downrightperfect #differentisbeautiful #momblog #irishmammy #irishblogger #specialneedsmom #dontbesorry #downsyndromelove #discoverunder10k
In den letzten Monaten ist so so viel passiert ey. Und vor allem so rasend schnell. 14 Tausend Menschen folgen uns hier jetzt und da fragen sich bestimmt zurecht einige: Wie findet eigentlich Mari das Ganze? Ein paar Zeilen dazu könnt ihr jetzt auf dem Blog nachlesen! Link ist im Profil und in der Story
#notjustdown
Essa é a Sandra, do projeto Galera do Click (@galeradoclick)! Ela proporciona curso de fotografia para jovens com síndrome de Down. Ela é mãe do Felipe, que possui T21. O projeto permite que os jovens se desenvolvam profissionalmente de maneira divertida e dinâmica
Parabéns pelo lindo trabalho, Sandra! ❤️
#familia21 #trissomia21 #cromossomo21 #cromossomodoamor #sindromededown #sd #t21 #inclusaosocial #inclusaonaoefavor #umnovoolharparainclusao #trisomy21 #downsyndrome #diversidade #serendipidade #projetoserendipidade #serendipity #serdiferenteenormal #criancasespeciais #autonomia #maternidade #minibloggersdown #miniinfluencer #influencer #comprometimentointelectual #diainternacionaldat21 #diainternacionaldasindromededown #ninguemficapratras #9simposiointernacionaldasindromededown
Uncle’s wedding party
Egypt, November 2018
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#BabyKinda #KindaKilany #DSDN @thedsdn #DownSyndrome #TheLuckyFew #T21 #Trisomy21 #ChangingTheFaceOfBeauty #متلازمة_داون #NotBroken #DownSyndromeLove #SpecialNeeds #MoreAlikeThanDifferent #DownRightPerfect #UpwithDown #DownSyndromeAwareness #NothingDownAboutIt #SaveDownSyndrome #LifeIsBetterWithYou #WouldntChangeAThing #LoveWhatMatters #babygirl #baby #babies #weddingparty #wedding #beachwedding #happybaby
Guess who gets to leave the hospital on World Down Syndrome Day?!..
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#wdsd #wdsd19 #heartmonth #heartmom #ds #downsyndrome #pulmonaryhypertension #1in100 #Tri21 #Trisomy21 #extrachromosome #chosenfew #chicksdigscars @special_needs_siblings #extrachromosomeextracute #nothingdownaboutit #downrightperfect #zipperclub #heartwarrior #downrightperfect #rockyoursocks #downsyndromerocks #downsyndromelove #chdawareness #chd #chdwarrior #vsd @frobabies #heartmom #inclusion #disability #specialneeds #sindromededown @upsidesofdown @downrightwonderful @sdpadresaccion #sdpadresenaccion
Mother’s Day lunch at Albion Farm Cafe ❤️ @albionfarmshop #mothersday #heartwarrior #nicugrad #babysmiles #downsyndrome #downsyndromebaby #downsyndromelove #downsyndromeawareness #downsyndromerocks #upsyndrome #trisomy21 #extrachromosome #extrachromosomeextracute #nothingdownaboutit #wouldntchangeathing #downrightperfect #morealikethandifferent #theluckyfew #babiesofinstagram