Список из самых популярных хештегов по теме #FORMERTUBIE

I'm a little over two months post tube removal. I've come a long way. #formertubie

Baby's first pickle "Yummy! Wait, what's this? Oh yeah, it's good!" #jaxalexander #littlegameofjax #cdh #cdhawareness #babysfirst #yummy #picklejuice #formertubie #ngtube #oralfed #tubiegrad

Jax has been tube free since October 2nd, but Rosie still rocks his NG stickers whenever she pleases Also, this kid scaled the rock wall today LIKE A BOSS. Her bravery truly catches me off guard sometimes. (Also, I walked into @carters today to pick up an online order and saw that their big packs of bodysuits like Ro's are 70% off!!!! Please, let me live vicariously through your purchases because I've already bought them all ) #rosiequinn #rosiesarerad #ngtube #formertubie #tubiessister #sillygirl #optoutside #play #playground #thatsdarling #rockclimbing #rockwall #toddlerhood #bravery #toddlerclimbing #wow #amazing #carters #lovecarters #bodysuits #sale #babyboom

It's #feedingtubeawarenessweek and although Jax is finally 100% oral fed, he will always be a former #tubie. We have been through the ringer with this kid regarding feeds + things still aren't "normal", but he's made such strides. As much as I hated his NG, that little yellow tube was his life line (literally) for 5 months, so for it I will be forever grateful. People always asked me if I could "just feed Jax (orally)", but trust me when I say that feeding tubes aren't the "easier alternative to eating"; kids who have tubes either can't eat orally or don't take enough in orally to sustain themselves. I think I speak for most, if not all, tubie parents when I say we WISH our kids would "just eat normally". In Jax's case, for 5 months he couldn't eat via bottle and then once I took the tube out, we learned he aspirates thin liquids, which means taking breastmilk via bottle is almost impossible without risking serious health problems. We are still working with speech to get him drinking breastmilk (not only because he'll need to be able to drink thin liquids in the future, but also because I have so much if it ➡️), but it's a slow process. In the hospital just recently, he aspirated the saline they squirted in his nose to clear out his chest + throat and he had another regression in eating. Because of that, he ended up on the IV due to poor intake (they said they'd rather put an NG in, but I was too scared - it felt like a step back ). So ride the rollercoaster we do , but seriously, this kid is amazing and has come so far. So here's to all the tubies, past, present, + future, and to all the tubie parents out there just trying to get through another day without a clogged line, listening to the pump beep the song of it's people. #jaxalexander #littlegameofjax #cdh #cdhawareness #tubie #feedingtubeawareness #ngtube #formertubie #onceatubie #tubieparent #nicumom #momlife #tubielife #tbt

I'm not really sure I believe this - Jax is 10 MONTHS OLD! Like, it's time to start planning his FIRST birthday. This is baffling to me. Partially because I feel like we've known him forever, partially because I feel like he just got here! Jax has had a huge month and is really starting to show his personality more and more. He now squawks to get our attention and "talks" to us as loud as he can He pulled to stand from a sitting position and was able to get BOTH feet under him (big deal for this little dude) TWICE in the past two days!! He fell off the couch and got his first goose egg this weekend (which you might be able to see if you look through the pudding ), but handled it like a champ. He loves to scoot around and is tolerating tummy time so much more now! Jax has been given the green light to gain those LBs, hence the breastmilk chocolate pudding face But, big news, he's drinking almost ENTIRELY breastmilk now through a regular bottle!!!! This is SO HUGE!! We're not placing another formula order after we run out...so it's boobie milk from here on out and I couldn't be more proud of this kid. We just got the call to schedule a sleep study for Jax, so I'll keep y'all posted on that! #jaxalexander #littlegameofjax #cdh #cdhawareness #tubie #formertubie #breastmilk #breastfeeding #10monthsold #babypicsapp #milestones #puddingface #thatsdarling

No matter what may happen mommy will protect you. To say allergy testing was rough on him and his sensory needs was an understatement yesterday.  #formerpreemie #preemie #miraclebabies #preemiemommy #sonofahairstylist #LandonJace #specialneedsmom  #medicallycomplex #momblog #motherhoodunplugged #nashvillemom #chronicallyill #cerebralpalsy  #epilepsy #blogger  #formertubie #NICU #AFO #boymom #momlife #bearcub #preemieawareness #wrappedinlandonslove #ahandcraftedwarrior #wordpressblogs #notalldisabilitiesarevisible

I will never tire of watching you sleep, sweet boy Also, I'm totally game to watch you sleep at 3am if you want to start doing it then, too, but I mean, whatever you want, nbd. #jaxalexander #littlegameofjax #cdh #cdhawareness #cdhsurvivor #hopeforcdh #sleepingbaby #notatthreeam #lethimsleep #babyboy #specialneeds #formertubie #thatsdarling

I once posted a photo of Rosie that said something along the lines of, "Did you really have a childhood if you don't have a photo of yourself covered in spaghetti?!" I said it once and I'll say it again #jaxalexander #littlegameofjax #cdh #cdhawareness #hopeforcdh #formertubie #anythingforbaby #skettiface #thatsdarling

You shouldn't be here. Every odd was against you. CDH. Right-sided. Liver up. One lung. ECMO. ECMO Circuit change. 3 infection scares. Fluid on your lung. Surgery. Surgery. Surgery. 2 month NICU stay. All of this in 8 weeks...you shouldn't be here. But here you are. Thriving. CDH Awareness Day is one day for the entire world, but every day for us because of you. I know more about this defect than I'd ever cared to know, but now that it's a part of our every day lives, I can't help but spread the awareness needed to bring light to this defect that is so unknown and so underfunded; as common as spina bifida and cystic fibrosis, yet almost unheard of. I'll never stop raising my voice for you, sweet boy, as long as you never stop spreading hope for CDH. So proud of you, little fighter. #jaxalexander #littlegameofjax #cdh #cdhawareness #cdhawarenessmonth #cdhawarenessday #spreadhope #hopeforcdh #rightcdh #ecmosurvivor #cdhsurvivor #nicubaby #nicumom #ecmo #tubie #ngtube #formertubie #hospitallife #littlefighter #warrior #chop #miracle #miraclebaby #herviewfromhome #lovewhatmatters #41919 #47weeksold #beattheodds