g6pd leukemia raredisease kidadvocate curecancer morethan4 pediatriccancer childhoodcancer advocate inspiration motivation hot97 nevergiveup kingstrong queens bestoftheday coach coachinglife comment cycling cyclinglife fitness follow followforfollowback followme g6pdsurvivor hellenicredcross hiphopgamer igers minyaktelonbaby
I need all my prayer warriors to keep my good friend Hector Avila in your prayers ! Hector is so strong ! I heard horror stories about how painful and stressful bone marrow transplants can be and my friend Hector has recieved 2 ! If you think I am strong Hector is stronger ! Hector was the only one in my hospital to be my friend and play with me when my intense and experimental chemo had me looking crazy and swollen (2nd pic) ! Hector is my inspiration ! God bless him and his amazing parents ! We pray daily for his family and others in the same position ! Cancer life is not easy ! We need all the support we can get ! I am almost finished my treatment and I pray Hector and every person with cancer is HEALED ! GOD is Great ! No child should have to go through what we go through ! #morethan4 #leukemia #warriors #g6pd #raredisease #kidadvocate #love #hope #faith #inspiration #motivation #nevergivein #nevergiveup #noweakness #staystrong #loveyourself #beyourself #kickingcancersbutt #fightlikeakid
Congrats to @iamrajarose for earning that blue check ! 2 Fly KINGS ! My name is KING and Raja means King ! We both are walking miracles and the #universe linked us together ! Can't wait to see you wear my shirt on stage ! #Art is the way I escape cancer life ! Thank you again for the #love and #support ! #kingstrong #curecancer #rajarose #rosegang #believeinyourself #dreamchaser #g6pd #raredisease #kidadvocate #leukemia #younglegend #youngking #model #kidmodel #leukemiamodel #inspiration #motivation
@iamrajarose gave me way more then the $65 it cost to have a hand painted shirt made by me. So it was only right I showed the love right back ! 1 of 1 Thank you #Raja for supporting me and believing in me ! #kingstrong #rosegang #roses #rajarose #believeinyourself #staystrong #loveyourself #beyourself #thinkpositive #youngking #legend #fashion #custom #shirts #g6pd #raredisease #leukemia #curecancer
I N S E P A R A B L E ! ❤❤❤
I love my #brother and #sister ! They need me and I need them ! They are one of the reasons I #fight so hard ! There every step of the way ! They always put me and my needs first even when they dont fully understand why ! #Loyalty #family #siblings #foe #bestbuds #Mesiah #Faith #Kingstrong #pediatriccancer #childhoodcancer #morethan4 #curecancer #leukemia #g6pd #raredisease #kidadvocate #love #photography #kidmodels
Hey guys!
Olá #maesg6pd vamos interagir?
Sei que o feed está diferente do que vcs estavam acostumados, mas ainda estou aqui para atende-los sempre que precisarem. .
Estou reorganizando minha rotina já que as crianças estão entrando de férias e em pouco tempo estaremos de mudança, então estou passando menos tempos nas redes sociais, e o tempo que eu tiver para vcs quero que seja um tempo de qualidade, por isso, quero saber de vcs quais temas, assuntos ou duvidas VCS querem que eu coloque em pauta aqui. Irei anotar tudo e preparar conteudo para vcs.
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Então escreva nos comentarios tudo querem vê por aqui, to pensando em voltar com as dicas de liberados e restritos no feed tambem, o que vcs acham? .
#g6pd #g6pddeficiency #deficienciadeg6pd #favismo #viciafaba #criança #infancia #maternidade #pediatria #hematologista #hematologia #dicasg6pd #αlegres
تكسر الدم أنواع
واليوم راح أكلمكم عن نوع مشهور إسمه أنيميا الفول البقولي G6PD Or Favim
خلايا الدم الحمراء هي المسؤلة عن توزيع الأكسجين لخلايا جسمك، الله معطي هالخلايا أنزيم يحميها من التكسر عند تعرضها لعوامل معينه اسمه G6PD، بعض الناس ماعندهم هالانزيم الحامي
تكسر الدم البقولي مرض جيني X linked يعني الأهل يورثونه لعيالهم عشان جذي مشهور انه موجود في عوائل معينة والعجيب فيه انه الحريم يحملون الجين ( ممكن إصابتهم في حالات قليلة جداً ) ولا يظهر المرض عليهم وإنما يعطونه الرجال ( قمة النحاسة )
#مثيرات_التكسر
الفول-العدس-الفاصوليا-الأدوية المحتوية على السلفا-فيتامين سي-الأسبرين
#الأعراض
شحوب-تعب-ألم في البطن-اصفرار في الوجه-خروج بول غامق
#العلاج
لايوجد علاج - يجب على المصاب تجنب تناول مثيرات المرض
التكسر البقولي موجود بالكويت والخليج ومن المهم جداً إكتشافه بسن مبكرة عن طريق تحليل الدم
#ملاحظة_مهمة
النساء حاملات المرض أعراضهم معدومة او خفيفة جداً - حتى الرجال المصابين تتفاوت ظهور الأعراض لديهم
تعرفون أحد فيه تكسر بقولي؟
#G6PD #Thanks_Girls
A deficiência de G6PD é uma doença genética ligada ao cromossomo X. No Brasil está presente em 7% da população.
Seu diagnóstico pode ser identificado através da triagem neonatal (teste do pezinho). A grande maioria dos pacientes é assintomática. Mas em alguns pode se manifestar como anemia hemolítica aguda, quando o paciente entra em contato com alguns fármacos, alimentos ou infecções.
O tratamento consiste em medidas de suporte e prevenção (evitar alimentos, medicações - deslize a imagem para ver a tabela acima, algumas infecções, corantes,...), pois a doença não tem cura.
Dúvidas? Direct!
#deficienciadeg6pd #g6pd #testedopezinhoampliado #triagemneonatal #pediatria #dicasdepediatra
Minha reação quando alguém diz: " tadinho dele não vai pode comer danoninho"
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Quando falo para as pessoas sobre a Deficiencia de G6PD e as restriçoes muitos falam frases do tipo: "tadinho e nas festinhas?" "Pobrezinho nunca vai poder comer uma guloseima".
Mas a realidade é outra, existe tanta guloseima liberado que as restriçoes não os tornam excluidos ou coitadinhos.
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Hoje postei algumas opçoes de danones liberados, passe para o lado e confira e aproveite para salvar esse post e ter as informarçoes salvas
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#deficienciadeg6pd
#g6pd #g6pddeficiency #restricaoalimentar #dicasg6pd #maesg6pd #maternidade #pediatria #infancia #αlegres #вoαnoitee