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Niah is home ❤️ Niah was able to come home with us last week and after almost 6 weeks in NICU. The journey is not over & she is still on oxygen but it feels amazing to have her home. It has honestly been the hardest time in my life, not being able to hold my baby for 5days was heart wrenching but she's fought & is going from strength to strength. I could not be prouder. Thank you to everyone who has prayed for her & wished us well. Pregnant ladies make sure you are Group b strep aware. Click the link in my bio for our birth story.#groupbstrep #sepsissurvivor #prematurebaby #31weeker

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Sitting and reaching with just a little support for his left arm This is INCREDIBLE!! This boy has been amazing this week! This afternoon got a little bit too much for him so we had to quit a little early but the rest of the time he has been absolutely incredible. A huge HUGE thank you to my brother and sister-in-law who bought this weeks course of ABM for Frank’s birthday. It’s such a generous present and as it turns out has by far been our best week of therapy EVER!! We love you lots ❤️ #abmtherapy #anatbanielmethod #cerebralpalsy #quadcp #bemorefrank #lifeaftermeningitis #gbsmeningitis #groupbstrep

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Growing up I always felt like I was meant to be a mum. I knew that I didn’t want to travel the world or chase a career until I had children first. When I met the right guy that had the same vision as me we would plan for our future and talk about our future children. We would have four children and I’d be done by the time I was thirty! It meant I wanted to start having children as soon as we were secure and knew our relationship could last. Two years in, the purchase of a home and jobs that made it all seem like it was the perfect time to start! We fell pregnant. It happened quick! We began to plan, tell our friends and share our excitement. Our 12 week scan showed a baby with no heartbeat. I thought that was the worst pain I could have felt. It was at the time. It was crushing. Another pregnancy and loss occurred shortly after and then we fell pregnant with Foxx. My vision of pregnancy was already so distorted knowing that as quickly as things are going good they can change. I didn’t believe for five whole months of his pregnancy that things could go right and so when we surpassed each trimester I began to trust the world. I began to feel like my chance at being a mother was really going to happen. I had bad visions that would shadow me of someone losing a child to stillbirth and I would shiver as I tried to block this from my mind. I knew other pregnant women at the time and I thought my mind was fucked up for having these thoughts. I didn’t lose our son to stillbirth, I still got to see him breathe, cry and feed. I got to kiss him while he looked at me and hold his hand as he clenched it shut. I got to hear his last breath and see his soul exit his body. He took apart of my soul that day and #groupbstrep took my confidence in ever becoming an earthside mother so this moment right here. The day we welcomed our #rainbowbaby Elle will forever be painted in my mind as the moment apart of my soul returned. Some people dream of cars, money, travel and careers. I only ever dreamed of this, creating my own family #pregnancyafterloss #babylossawareness #lifeafterloss

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Finally able to get dressed in my own bedroom, sleep in my own bed, hold my baby whenever I want to. Life back home is so awesome. 2 weeks in the NICU is no joke. Infant infections are no joke. If you are pregnant or planning on becoming pregnant, I urge you to talk to your doctor about putting you on an antibiotic drip during delivery. Every mother (in the US) is tested for a normal bacteria called Group B Strep, which doesn’t affect adults, but is lethal to infants. I tested negative, but somehow it was passed onto my baby during delivery. I did not get an epidural or use any pain medications, I delivered naturally, but I definitely would have opted for an antibiotic drip, had I known then what I know now. Most babies that develop Group B Strep are born to mothers who test negative. 5% of babies who are treated will still not survive, and many who do survive will have some form of long-term effects life deafness or blindness. Thankfully we caught this early enough to avoid long-term effects, and I breast fed every 3 hours and lived in the hospital for 2 weeks with my little love. I wish someone would have told me that my baby was still at risk, even though I tested negative. 33% of the population has Group B Strep bacteria living in them as a natural part of their body’s micro life. Be aware. Be prepared. Talk to your doctor about prophylactic antibiotics during delivery. #baby #pregnancy #postpartum #mom #morherhood


Хештеги на тему #GROUPBSTREP

Brave dad says, "the NHS albeit very good, won't tell you about Group B Strep unless you tick all of the boxes to be deemed at risk - and the chances of that are very low. "Don't risk it, just test for it. For £35 it is the difference between life and death." https://www.thesun.co.uk/fabulous/9359682/baby-girl-died-minutes-group-b-strep-infection/ #groupbstrep #GBSaware #groupBStrep #pregnancy #pregnant #groupbstrepsupport #bstrep #baby #strepb #prevention #groupstrepb #babies #gbss #awareness #groupbstreptest #informedchoice #meningitis #infection #sepsis #thirdtrimester #pregnancyhealth #pneumonia

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My birth/Foxx's story is now on my blog. I wanted to remember it for all the good, before I shared the pain. I feel that these words below sums up perfectly our feelings. We are hurting, but we are staying strong. "When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting. After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland." "Holland?!?" you say. "What do you mean Holland I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy." But there's been a change in the flight plan. They've landed in Holland and there you must stay. The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place. So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met. It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts. But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned." And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss. But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland." #groupbstrep

Хештеги на тему #GROUPBSTREP

You are always here with me. There were two extra special rings I wore on my wedding day. They held the ashes of my son and his sweet hair. The closest I could get to feel like I am holding him there. They say that in loss you find a way to remember them, you look for the signs that tell you they are here with you. Like the way my television turns on every Sunday at 11am the day and time that we left for hospital when I was in labour, or the way I keep meeting people with a birthday on the same day as his or the way I feel safe now when I hear thunder in the skies because the sky rumbled it’s heart apart on the night we lost you or the way my daughter had adapted the constant need to ‘hug’ ever since she was little she’s always been a hugger and I feel like her constant need to hug is to tell me it is all okay. These are the signs we hold onto in loss. These are ways we remember them for the time they lived. My son will always walk with me, through every special moment. You may not see it, you may not feel it but he is apart of everything. It’s hard to believe I would have a 2.5 year old. It’s hard to believe the way I welcomed a beautiful boy into the world one minute and within hours he was fighting for his life. It’s hard to believe we sat in NICU for days just watching, hoping, we hoped so hard. We even spoke about the day of his 18th birthday and how we would be able to tell him about his rocky entry to the world. I never dreamed of anything else. I never saw what would really happen and instead each birthday, milestone we would be wishing he was here but on this day, our wedding day. We carried him through every moment, through our speeches, our favours, his rings and his ashes so that others could have a glimpse of the way our emotion, our action, our life is lived to remember to always include him. #loveandloss #childloss #weddingday #groupbstrep

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In aid of NICU awareness month look what a difference 3 months makes ❤️ If anyone reading this is currently in NICU, things do get better. As amazing as the nurses are and how phenomenal the treatment is it's not a full term healthy baby at home. The back & forth is tough, watching your LO going through everything is unbearable but time, love & lots of feeding has made the world of difference to my LO. Niah is now 3 months and getting chunkier by the day & I love it! My 31 weeker has survived sepsis (group b strep) as well as the problems prem babies face. NICU babies are truly the strongest ❤️ #sepsissurvivor #prematurebaby #nicu #nicuawarenessmonth #31weeker #groupbstrep


Хештеги на тему #GROUPBSTREP

Expecting moms can add one more thing to their prenatal worry list: Group B Strep. Fortunately, detection and prevention are very straightforward. Check out the article on the Opear blog, link in bio.



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