haemophilia hemophilia bleedingdisorders bleeding chronicloveclub hemolife bruisednotbroken chronicillness merida vonwillebrands bleederproblems bruised bruisedandbrave chronicillnessproblems ehlersdanlossyndrome haemopiliaproblems hemomomlife hemophiliaproblems hospital infuse infusions medical medicallife nurses typethreegirl vonwillebrandstype3 bloodbrothers bloodsisters hemophilia
Heyyo, Project Apatite is backwith ourMERCH SALESWe will be selling black HSS Drawstring Bag, Marvel X DC stickers & Japanese Animal stickers!!
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Part 1 of merch sales:
Introducing our black HSS Drawstring Bag!
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HIGH QUALITY ⬆️ products for HIGH QUALITY ⬆️ people at a reasonable price!!
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Custom made from COTTON and designed by the members of Haemophilia Society, the black bags will be priced at $ 10 each ☺️(HSS stands for Haemophilia Society of Singapore) (The doodles are representation of the medical treatment Haemophiliacs have to undergo)
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All fundsraised for the sales go towards subsidising the costly medical treatments for the Haemophiliacs of Haemophilia Society of Singapore
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Every single purchase counts so pls help Get your merch now before it’s too late!!
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Also, a big thank you to @iisabellelim for being our model ‼️
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Order form closes on 22/7 (Wed) and merch will be distributed by latest 1st week of August 8️⃣
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ORDER FORM IN BIO
#haemophilia #hemophilia #haemophiliasocietyofsingapore #projectapatite #merchsales #hss #drawstringbags #fundraising
Little trav is starting to brighten up a bit! Still a long road to go. He’s still coming to terms with having to be a cotton wool kid but it’s good to see him starting to be himself again. Fingers crossed he makes a full recovery and we can avoid him having another bleed. Were so lucky to have such a beautiful puppa, wouldn’t change him for the world #loveyoutravi #haemophilia
✨Project Apatite Street Collection 2k19 ✨Expressing our dEeepest gratitude to all volunteers who have signed up!! Ty for being so enthusiastic and to actively participate in our event!!! We really appreciate all ur help and we hope y’all can continue to look forward to our future events!!
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Next up, it will be our Merch sales!! Stay tuned for more updates
#projectapatite
#haemophiliasocietyofsingapore
#haemophilia
#hemophilia
Posted @withrepost • @alexdowsett I like world firsts and I think this is one of them. •
There was some great content coming out of the @katushacycling time at the Dauphine last week, mainly pics of @madswurtzschmidt looking moody, @jensdebusschere flexing his muscles, @nilspolitt’s tongue, my bottom lip, @josegoncalvesim and @rubenguerreiro94 smiling and @steffcras’s baby face were all captured by this guy, Sean Hardy, @hardyccphotos.
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What you won’t have known and this is where the world first comes in I think, @katushacycling are the probably and maybe unknowingly the world’s first elite level sports team to have 2 Haemophiliacs on board. Sean, like me, has severe Haemophilia A, also like me a slightly dodgy ankle kept in check by regular s&c work. But more crucially both of us living the best life without letting Haemophilia define us or get in the way one bit.
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Sean will be at the TDF, I’m still yet to find out but it’ll be epic for the both of us regardless!!
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If you need help with Haemophilia or any bleeding disorders, @littlebleeders_uk is us and we have a great support network. ♥️
Today is World Haemophilia Day//
What is Haemophilia/Hemophilia?
*Hemophilia is a rare condition in which the blood does not clot properly. It mostly affects men.
People with hemophilia lack a protein called a clotting factor, which works with platelets to stop bleeding at the site of an injury. This means the person tends to bleed for a longer time after an injury, and they are more susceptible to internal bleeding.
This bleeding can be fatal if it occurs within a vital organ such as the brain.
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//CAUSES;
In hemophilia, the blood does not clot as it should. Hemophilia is normally an inherited disorder. A person is born with it.
It happens because of a defect in one of the clotting factor genes on the X chromosome.
Hemophilia tends to occur in males, since the gene can be passed from mother to son.
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Males typically lack a second X chromosome so they are unable to make up for the defective gene. Most females have XX sex chromosomes while most males have XY sex chromosomes. Females may be carriers of hemophilia, but they are unlikely to have the disorder. For a girl to have hemophilia, she must have the abnormal gene on both of her X chromosomes, and this is very rare.
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Sometimes, hemophilia is acquired because of a spontaneous genetic mutation.
The disorder can also develop if the body forms antibodies to clotting factors in the blood that then stop the clotting factors from working.
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//TYPES;
There are two major types of hemophilia, type A and type B.
In hemophilia A, there is a lack of clotting factor VIII. In hemophilia B, also known as "Christmas disease," the person lacks clotting factor IX.
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Hemophilia occurs in around 1 in every 20,000 males born worldwide. Both A and B can be mild, moderate, or severe, depending on the amount of clotting factor that is in the blood. From 5 to 40 percent of normal clotting factor is considered mild, 1 to 5 percent is moderate, and less than 1 percent is severe.
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Mine is Haemophilia A moderate 3%|
#WorldHaemophiliaDay #WorldHaemophiliaDay2019 #haemophiliaHeroes #hemohero #hemolife #selfinfusion #bleedingdisorders #awareness #education #haemophilia #hemophilia #haemophiliac #hemophiliac #17April2019 #Singapore
"The Heir", by Pavel Rhyzenko.
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Style: historical realism.
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The Heir is an oil on canvas. The painting speculates about the fate of Alexei Nikolaevich, Tsarevich of Russia, after the 17th July night. The painting was based on the rumors that Alexei had survived and escaped to Siberia, where he would had lived until his death in the 1940s.
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Alexei Nikolaevich is depicted here as he was a 15-16 year old boy, behind a wood fence, symbol of his imprisionment, and a white puppy. Alexei is holding a marguerite and is surrounded by flowers, symbols of renaissance, in contrast with the bloody scene of the right and left side. His portrait is based in an 1916 photograph, when he was 12.
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The context is Russian Revolution, as prove the Tsar's portrait, bayonettes, and the man on the left, who is wearing an imperial uniform and holding a military uniform.
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Men on right and left are supossed to be Alexei's savers, who are giving their lives for the heir, as prove the blood on the floor.
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Notice the facial expressions: on one hand, the suffering of the man. On the other hand, Alexei's candid smile, symbol of hope.
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This is my personal analysis. There could be mistakes or be incomplete.
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❌ Do not copy either the text or the image without my permission ❌
La descripción en español la dejo en los comentarios.
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I'll write the description in spanish in the comments
#romanov #tsar #tsarina #rhyzenko #art #artist #contemporaryart #uchronia #fighter #haemophilia #surviving #russia #alexanderpalace #welovetheromanovs #tsarkoeselo #history #surviving
#arte #artista #heredero #principe #rusia #palaciodealejandro #hemofilia #zar #zarevich #historia #sobreviviente
For the first time, someone other than clinicians, my mom, or me attempted to infuse me with my factor replacement treatment for #hemophilia. That person, my brave wife @meadownymph. And S/O to @adventures_of_a_hemo & @jessicarcarter for their kind assistance. ❤️ Any other hemo vets out there also still struggle with this I’m curious. And The BloodStream Podcast Ep 38 includes a longer, audio cut that has more discussion around learning to infuse/be infused and infusion anxieties. Check it out! #hemophilia #vwd #bleedingdisorders #hemofilia #haemophilia #bloodstreammedia #infusing #infusions #selfcare