Список из самых популярных хештегов по теме #LYMEDISEASE

over here feeling like the ultimate warrior. spiritual warrior, healing warrior, and most of all- #LYMEWARRIOR. i don’t share my healing journey to complain or evoke sympathy or “for the likes.” i share to inspire, educate, and create a sense of community on these little pixelated screens. connecting on here over the last 6+ years, but especially the last 2 that i’ve been sick, has been a light on my darkest days. this community lifts me up and supports and teaches me so much on a daily basis. i am still dumbfounded (beyond) by @nymag writing slanderously about lyme patients and the “pride” with which we share our “#lymewarrior content.” so @thecut, i would say this one is for you- because i am damn proud of my second intensive surgery for lyme disease. (the first of which i’m still recovering from almost a year later.) but i can’t say it’s for you because it’s not. ‍♀️ it’s for me, my fellow lyme warriors, and my non-lyme community on here who empowers one another and are open to education and growth beyond what they’ve personally experienced. i have so much love in my heart for each and every one of you. thank you for making the internet “home” for me for all of these years, and through the darkness too. #lymedisease #lymediseaseawareness #chroniclyme

Laugh of the day! When you’re fighting Lyme disease, taking a shower is equivalent to a hardcore aerobic workout! ️‍♀️ #laughoftheday #LymeDisease #lyme #spoonie #spoonies #chronicillness #invisibleillness #livelaughlyme #chronicillnessawareness #lymediseaseawareness #chroniclymedisease #autoimmunedisease

peace out, lyme in my mouth ! tomorrow i head into the next surgery this crazy lyme journey has taken me on... cavitation removal from getting my wisdom teeth out 10+ years ago! today on the blog i’m sharing my surgery prep with you (all of the DETOX details- like CUPPING), supplements, diet, enemas, juices, etc. & a bit more about the surgery itself. also new on the blog if ya haven’t seen are: - “being spiritual doesn’t mean being a doormat” - my response to the slanderous @nymag article on lyme - detoxing from mold - adaptogenic latte recipes ☕️ ♾ WISH ME LUCK & any healing words below! thank you all SO FLIPPING MUCH for being a part of my journey and giving me inspiration to share on here through the dark times. ♾ #lymedisease #lymediseaseawarenees #lymewarrior

our sunday afternoon snacks during family time today sweet potato banana bread and lots of veggies and fruits to keep us all hydrated and energized. i love making these platters for my kids. they all like different things but it encourages them to try things they don’t like. my son never goes for cucumber, he goes for the celery. i have put cucumber on all of his plates this week and he finally started eating them yesterday. he had them on his lunch plate today and again ate one. then finally took one from this platter on his own! repeat, repeat and eventually they’ll go for it! anyway, had a lovely day with my family today, happy sunday

Do you ever feel this way? • This week we are talking about feelings of jealousy and comparison when dealing with chronic illness. Life can feel challenging enough, but adding chronic illness on top if it can make us feel inadequate and behind. Make sure to catch Wednesday’s episode to hear what we have to say about this • • •

LETS ALL PAUSE FOR A SLOW CLAP // today I was lucky enough to attend my second @thehealhive retreat. Unlike last time when I barely limped into the retreat space, I was able to spend the whole day on my feet capturing content for future #beevenomtherapy projects. What a difference 6 months of *the right* treatment can make!!! Even though I’m feeling SO much better, I still know I have a looooong way to go. But being with the 16 retreat attendees, most of whom are in the darkest depths of #chrillness (#chronicillness), I found myself constantly reminding them (and myself!) to celebrate the little gains. Because guess what? For many of us, showering IS a big deal and a true cause for celebration. Same with getting out of bed, making a meal and, as I admitted the other day (‍♀️) brushing your teeth. But just because those actions are almost insignificant to those lucky enough to be in the land of the living- doesn’t mean they aren’t MILESTONES for you and me. So this Saturday, let’s CELEBRATE the little wins, even if they’re only temporary. What simple things did you accomplish this week, even if it was just sleeping an extra hour to treat yourself with extra care? I cut and painted my toenails, something I haven’t done myself in.... years? So yeah, no accomplishment is too small

How did I end up in a wheelchair from a bite? There was so much coverage all over the media yesterday bc there’s been a new study published which found rapidly increases rates of Lyme diagnosis in the UK so I thought I would share my story ⁣ ⁣ I don’t ever remember being bitten. I don’t ever remember a rash (only 30% of people get the bulls-eye rash if they get Lyme from a tick). You can also get Lyme from horseflies / mosquitos / fleas / spiders (anything that can bite). ⁣I don’t know what bit me or where it was. ⁣ I first got symptoms about age 11-12 (almost 15 years ago) - cognitive at first - problems with reading / writing / concentrating / memory loss / confusion. Then at age 13 I got the HPV vaccine which debilitated my immune system & caused the Lyme to get worse - this is when I developed fatigue.⁣ ⁣ Age 15 I had glandular fever & swine flu which made everything worse - the symptoms of those viruses never went away (sore throat / swollen glands / muscle pain). At 17 I had a ski accident & car crash with head & neck injuries which made everything worse + I developed a lot of head / neck symptoms.⁣ On top of all that throughout my teenage years I experienced a lot of psychological trauma which put my body into a state where it could never recover from anything (infections / injury etc)⁣ ⁣ By my early 20s I was completely bedridden - paralysed of the arms & legs. I didn’t leave my bedroom for 7 months or my house for 11 months. I had blackout blinds / no light for that entire time + couldn’t tolerate any noise or cognitively have any communication. I couldn’t be touched by clothes or bed sheets because I was in so much pain and was about to be put on a tube to be fed because I couldn’t even manage the puréed foods my mum used to spoon feed me. Once every two weeks I was carried from the bed a couple of metres to the bath to be washed / changed pyjamas then back to bed. This was my routine for 7 months.⁣ ⁣ Thankfully I found Breakspear medical a private clinic in Hertfordshire who suspected Lyme, tested me for it (positive) + where I’ve been treated the last 3 years. I have made enormous progress but I still have over 50 different symptoms a day!

my response to, “what happens when lyme disease becomes an identity” by @nymag @thecut and the actual reporter i spoke to at great length for this article is now live on my blog. i wrote this post fueled by inspiration, love, and support. i have an unshakeable well of joy and love that lives within me, even when i am on what feels like my lyme deathbed. reporters like molly fischer don’t have that, and it causes them to write hateful news articles that slander and defame people with true chronic illnesses and the heroes who work to heal them. molly, does my “lyme content” look good to you right now? i share real life photos of real life situations. this is how i spend my weekends, in this chair or in bed. by choice? certainly not. you wrote about the “pride” in which we share our journeys. damn straight we are proud. of the strength and tenacity we have to keep fighting for our lives despite the way we feel every day, despite the way journalists like you try to tear us down. the full article is at the link in my bio, and just remember- as upsetting as this article is for someone like me and everyone else suffering, we are fueled by love and joy and light and support and true, REAL strength. and that is why we will heal. #soulonfire #lymedisease #lymeWARRIOR

Real lives, real stories. This is why we advocate for patients with Lyme. Missed diagnoses, miss-diagnosis, late diagnosis is WAY to common. One person may not have a voice but together we have the strength of many. Join #MyLymeData tell us your story. Help us find a cure. #lymedisease #lymediseaseawareness #lymediseasetreatment #chronicillness #bigdata #bigdataanalytics #thepowerofone