Список из самых популярных хештегов по теме #RAREDISEASEDAY

#TBT to that time almost 2 summers ago when on vacation with my family and I found another beautiful Sister who was brave enough to #shareherrare at the beach with me. I will never be ashamed of my permanent #feedingtube I have because of #glossopharyngealneuralgia and #anesthesiadolorosa - its life giving. It’s my Meredith. It’s grace. #Joywarrior #andsoichoosejoy #rarediseaseday #shareyourrare #thisismystory #warriorspirit #wecandohardthings #shameless #loveyourself #mybeautifulbody #loveyourbody #bebravebeyou #graceupongrace #lifegiving #thisisme

looking forward, towards a future with increased accessibility and decreased ableism, for #rarediseaseday to be a focus for more than just one day a year . @ohgoodnessheather is one of the best photographers i have ever had the pleasure to work with, and anyone who can take the time to make art with her absolutely should! . #chronicillness #chronicpain #ehlersdanlossyndrome #boudoir #boudoirphotography #boudoirshoot #boudoirinspiration #endometriosis #dysautonomia #ehlersdanlossyndrome #wheelchairlife #wheelchair

Uuhhh.... #antivaxxer #antivaxmemes #antivaccine #antiv #knowledge #knowledgeispower #knowledgeforlife #vaccinateyourkids #savealife #helpachildreach5 #provaccine #provaxxers #vaccineswork #memes #memesdaily #vaccinememes #provaxxer #health #science #scienceworks #measles #measlesvaccine #today #diseases #rarediseaseday #disease #kids #people #children

Oops! I missed #rarediseaseday. Why? Because living with both rare & not-so-rare diagnoses - which took years to receive in the first place - ain’t easy. I’m tired. So here’s my belated post. I didn’t paint my face to #showyourrare, but here are some recent-ish photos of me. Sometimes I am too sick to function. Sometimes I can bike and work and travel. Sometimes I have an IV in my arm, or bruises on my face from smacking my head when passing out. Usually it’s just #butyoudontlooksick. But I am sick - every. single. day. When I used a mobility device, people assumed I was paralyzed. When I finally gained the strength to stand up out of my wheelchair, people accused me of faking it. I once had a specialist literally shove me out the door as I begged him to just LISTEN to my heart rate for the unreasonably high tachycardia he didn’t believe I could have. . ⬇️ continued in comments

Chloe News! . . . . #ootdfash #motivation #pulmonaryhypertension #thesmiletour2019 #rarediseaseday #chronicillness #lifewithchronicillness #vlogsquad #vlogger #femalevlogger

Thanks to Miss Eléonore Bessong for inviting me at the “Follow me” program. #rarediseases #rarediseaseday #rarediseasesurvivor #rarediseasemonth #rarediseaseday2019 #rarediseaseawareness #rarediseaseday #rarediseaseweek #rarediseaseadvocate #rarediseasecommunity #rarediseaseresearch #rarediseasekids #indonesiacareforrarediseases #rarediseasefighter #rarediseasephotochallenge #rarediseaserockstar #rarediseaseawarenessmonth #rarediseasecycling #nationalrarediseaseday #raredisease #rarediseasessuck #rarediseasewarrior #rarediseasefoundation #rarediseaseuk #rarediseasessa #rarediseasessouthafrica #rarediseasefacts #rarediseasecameroon #rarediseaseafrica #rarediseasemom

Today is #rarediseaseday and i’m celebrating it just how I spend a lot of my days... at the hospital... Turns out I have an infection in my lungs from irritation from the chest tube a few months back. More antibiotics! Oh joy! . But just so glad to be getting speedy care and treatment! It was a bit tricky trying to coordinate care out of state. . Now off to physical therapy... What a glamorous life I lead But that is just life with EDS! . I had a conversation last night when I was speaking about Rare Disease Day, and someone asked if EDS was really even considered a rare disease, “It seems like everyone online is getting a diagnosis these days.” And honestly, I agree! And I’m so glad to see the growing number of people finally getting their answers; Obviously I hate to see how many people are affected by this condition, but diagnosis is EMPOWERING. It is the first solid step down a path where previously there was just a fork in the road. . It is of the belief that EDS (and HSD) isn’t actually all that rare, (although some of it’s Co-morbidities are), but actually just rarely properly diagnosed. And it looks like we are making the right steps forward. I can’t wait until the day that I get to see EDS get taken off of the rare disease list! ...but until then, we fight on! #zebrastrong #showyourrare #imrare #fragilebutunbreakable #iamrare #showyourstripes @rarediseasedayus @ehlers.danlos #humancare

This is what we are #antivaxxer #antivaxmemes #antivaccine #antiv #knowledge #knowledgeispower #knowledgeforlife #vaccinateyourkids #savealife #helpachildreach5 #provaccine #provaxxers #vaccineswork #memes #memesdaily #vaccinememes #provaxxer #health #science #scienceworks #measles #measlesvaccine #today #diseases #rarediseaseday #disease #kids #people #children

I'm not coeliac or celiac, but since catching Lyme Disease as a child my body has had a bad reaction to gluten. And, as my gluten intolerant followers can attest to I'm sure, life as a gluten-free person isn't always easy. Sometimes that gets me down. But if I cast my mind back to how Lyme Disease affected me for almost a decade (I practically lost my teenage years to endless cycles of intense treatments, exhaustion and gut problems) I know that I'm lucky to have found a solution, even if it will affect my diet forever. Occasionally, I hear stories about food and drink establishments that give customers gluten or dairy products despite asking for an alternative, writing the request off as another fad diet. Whilst fads are rarely good things to get into, please remember that many have allergies or diseases that make them intolerant to certain foods. Never take someone else's health into your own hands. They've been on long journeys that you may not have experienced . . . #glutenfreelifestyle #rarediseaseday #lymedisease #lymediseaseawareness #lyme #lymewarrior #lymeawareness #lymeisreal #lymelife #lymediet #lymetreatment #chroniclyme #lymewarriors #lymediseaserecovery #lymerecovery #chroniclymedisease #lymeawarenessmonth #glutenfree #simplycaro #glutenfreelondon #glutenfreenyc #glutenfreelife