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This one hits hard and close to home. My heart is so heavy hearing this news this morning. We’ve had the pleasure of meeting @thecameronboyce a few times and he was the sweetest most talented soul. I started to talk to his parents about our special needs prom and kids karaoke never even knowing that he lived with epilepsy. •
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My heart goes out to his parents and family. Sending lots of love, courage, strength and prayers. No parent ever imagines saying good night to never hear good morning from that child again. Djanai has seizures and this just triggered so many fears and emotions that have never felt more real. Seizures are deadly, even when you think you have them under control. I’ve never let Djanai sleep alone and subconsciously I think this has always been the reason why. #epilepsyawareness is so important.
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#ripcameron #epilepsy #seizure #gonetoosoon #heartbroken #live #love #pray #restinparadise #ripcameronboyce #cameronboyce #heyjesse #descendants
#actuallyautistic #adhd #aspergers #autism #aspergirl #aspie #ocd #sensoryprocessingdisorder
#epilepsy #girlswithaspergers #girlswithautism #aspiesofinstagram #ig_autism #anxiety #anxietydisorder #generalizdanxietydisorder #gad #depression #neurodiversity #mentalhealth #mentalhealthawareness #autismawareness #adhdawareness #epilepsyawareness #adultonthespectrum
Today I am celebrating 1 year seizure free for the first time since I don’t even know when. I can write more on this huge anniversary for me — but right now the feelings are unreal and I can’t really wrap my head around it. To top it off, R surprised me with a little celebration when I got home today and my heart is still in a puddle. •
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#epilepsyawareness #epilepsywarrior #purpleday #seizetheday #seizurefree #anniversary
5 years ago, I was supposed to be getting ready to take my senior portrait. Little did I know I’d have to reschedule because I’d be drifting in and out of consciousness after experiencing my first grand mal seizure. No one in my family had ever witness one in real life and there was no family history of epilepsy. I’ve seen seizures portrayed in movies before, but it’s different when it happens to you. No one tells you that you’ll feel drained or that you’d bite your tongue so hard that it becomes jagged. At first, I hated that this happened to me and how doctors couldn’t tell me why, only to be careful and hope it doesn’t happen again. I was 17 at the time and I felt like the world was telling me I couldn’t live my life the way I wanted. It’s been a long road to accept what’s happened to me and my diagnosis, but I’ve gained strength in knowing that after every seizure I was able to bounce back slowly thanks to my family and the friends who stuck around and helped me feel like myself again (you know who you are); like a phoenix I found a way to pick myself up from that I consider my lowest. I tried my best to avoid taking medication, but after my second one I had to. Taking the medication changed who I was, I didn’t like feeling depressed and I’m glad that I’ve switched medications and I’m feeling so much better. I’m happy to say that’s it’s been 2 1/2 years since my last seizure and this is the longest I’ve gone without one. Here’s to the hope of another year being seizure free. #epilepsy #epilepsyawareness #epilepsywarrior #seizuressuck #2yearsfree
Epilepsy Warrior Wednesday’s. She is so full of Life it’s contagious . Her parents are amazing @maggie_rizo . Thank you for allowing me to be apart of her care. . #epilepsyawareness ▫️
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▫️ #cancersucks #cancer #brain #braincancer #cancerwarrior #physicianassistant #neurosurgery #neurology #girls #nurse #doctor #cancer #hydrocephalus #patientadvocate #lipsync #patient #instagood #dance #MrNeuro #nicu #aapa #picu #neurology #pacunurse #dance #dancer #melanin
I am SO excited that my perfect little brother has his own Instagram now! For a while Mama and I didn’t even post about Edward because we were told by multiple vets that he would probably have to be put to sleep because of his seizures. This is the case with most cats with epilepsy because many vets just don’t know what to do with them. There are no cat specific seizure medications and very little research has been undertaken on the cause, treatment or prospects of cats with seizures. Seizures can be frightening for the person watching and a lot of people also choose to put down their epileptic cat due to their own discomfort. There is a misconception that having seizures = less quality of life. But in most cases this just isn’t true. I’m super proud of my brother and can’t wait for him to be able to show everyone the wonderful life he has. So please go show him some love and help us spread the message by following him over at @edwardthespacebear ❤️