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#chronicillnessawareness #spooniebestie
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Feels good to be back in the pool ♂️ ————————————————————————
Top: @newlook
Hair: @ghdhair
Eyeshadow: @urbandecaycosmetics
Leggings: @hm ————————————————————————
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COMPLACENCY & LONG-TERM MANAGEMENT OF CHRONIC ILLNESS⠀⠀
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my collab with @thisthingtheycallrecovery⠀⠀
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I initially had a different thing written for this image, but after posting about my flare in PoTS symptoms & my struggle to manage to them as the weather gets warmer, I'm going to slightly shift this to talking about fluctuations in my ability to manage conditions.⠀⠀
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I've been living with EDS for as long as I can remember, & I'm about 5 years into my PoTS going from an annoying niggle making me think I was just weird, to a full-blown condition in its own right.⠀⠀
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I'm really lucky that a lot of my PoTS symptoms are more manageable now, but I think with having a condition for a long time & symptoms not being as bad as they've been in the past, a level of complacency sets in. I see this with things like REALLY making sure I drink enough water in the day, keeping on top of my salt intake, doing my stretches, and doing the 'self-care' things that I know help my mental health.⠀⠀
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Part of the problem, I think, is that I had a number of years where I wasn't able to work at all, and now that I'm working part-time in a job that I love but struggle with, running my Instagram (I don't think y'all realise how much time goes into this!), and living with someone (which is the best thing but does use up more energy day-to-day!), I simply have less time and energy to focus on my health stuff. When I'm exhausted or my energy NEEDS to go somewhere else, I can neglect the simple things. Which is a slippery slope.⠀⠀
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Ultimately, the sheer amount of stuff we have to do every day for our bodies is a full-time job. It can be exhausting and boring and sometimes we just want to live our lives and not think about it (or we don't always have the time/energy to). It's partly why I never consistently tracked symptoms unless a medical professional told me to - it can be too much of a focus (disclaimer blah blah if it helps you that's great blah etc).⠀⠀
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But this change in weather is a remind that I don't have the luxury of complacency. As wanky as it sounds, in order to 'live my best life' these things have to come first. Or I'll not be able to do anything full stop.
AD | Gifted | When people say, ‘I don’t see your wheelchair’, I know what they mean, but they’re lying. They’re trying to say that you don’t see me as disabled, that I’m just like everyone else but by doing that they’re completely erasing a massive part of my identity. Being disabled doesn’t make me any less of a person; I don’t suddenly forget I’m human once I’m sat in my wheelchair. If you don’t have a visual impairment, you can totally see my wheelchair, and it’s okay, it’s right there, it’s massive and it’s my key to freedom. You may mean no harm saying you don’t see my wheelchair or see me as disabled, but you do and it’s fine ♿️ •
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Blazer @dorothyperkins
Tee and skirt @prettylittlething *gifted
Sandals @schuh
Bag @zatchels_uk @demonsrunband
Want to know the biggest thing that has helped me in my healing journey? More than the meds, more than therapy, more than the herbs and supplements?
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A tribe of people that accepts me exactly the way I am.
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Living with bipolar disorder can feel devastatingly lonely, even if I’m surrounded by people. By finding and surrounding myself with people that love me even if I’m struggling, my healing process has improved EXPONENTIALLY. —————————————————————
Find your tribe. The group of people that love you exactly as you are. I guarantee it’s a lot less lonely out there with them.
: @azommers
Last night was absolutely surreal. I’m still in awe and smiling this big even the day after. Oh my gosh. I’m SO FREAKING HAPPY. Aladdin will forever be my all time favorite movie and I’m so..... BEYOND WORDS that I got to attend the premiere of the 2019 remake. WOW. Thank you from the bottom of my heart to Will for being so sweet and kind and all around amazing. ♂️❤️ More photos to come!