Список из самых популярных хештегов по теме #EDSAWARENESS

You might be thinking, "This is awesome I wish I could wear it every day." Yeah, we thought the same thing and found out it's a REAL pin thanks to @doodlepeoplexo, our chronic illness product SPOTLIGHT of the week! #linkinbio Where would you love to sport this accessory? ⁣⠀ .⁣⠀ .⁣⠀ .⁣⠀ #chronicillness #spoonie #chronicfatigue #dysautonomia #hypermobility #marfansyndrome #loeysdietzaustralia #ehlersdanlos #loeysdietz #hypermobilityconnect #pots #ctd #loeysdietzsyndrome #eds #mybendybody #gastroparesis #edsawareness #potsie #hypermobilityspectrumdisorders #hypermobileeds #migraine #positivehelpforhypermobility #hopeforhypermobility #theehlersdanlossyndromes #invisibleillness #spoonielife #headache #health #wellness⁣⠀ .

Obligatory EDS Month post : May is Ehlers Danlos Syndrome Awareness Month. One of the reasons I need Ember is because I have Hypermobile Type EDS. EDS is a group of connective tissue disorders caused by a genetic defect in the body's collagen, the "glue" that holds the body together, essentially. Rather than being properly held together, our connective tissues are too stretchy. This often presents physically as "double jointed"ness, hence the name "hypermobile". Due to my musculoskeletal laxity, I am prone to easy injury, severe chronic pain and mobility issues. There are also many comorbid conditions that are common in EDS that affect a wide range of body systems. There is no cure or treatment beyond symptom management. I have my own opinions about the efficacy of awareness for some things, but in the case of EDS I think it's very important that more people learn about it and become aware of its existence. Despite lifelong health issues that drastically affected my childhood and education, I was not diagnosed until I was 23 years old. I saw countless doctors and specialists but no one was able to pinpoint the cause of my symptoms, as EDS is notoriously difficult for medical professionals to catch. It often takes 12+ years from onset of symptoms to get diagnosed with EDS. The catalyst that lead to my diagnosis was learning about EDS from someone I followed on IG years ago documenting their experiences with it and noticing similarities with my own. If I hadn't made that connection then it could've been many more years before I figured it out. The role social media played in discovering the cause of my health struggles was significant, which is why Ehlers Danlos awareness is important to me.

This makes me so happy! ⁣ if you haven’t already done so, you can choose a charity and do all your Amazon shopping through AmazonSmile. Every little thing counts. ⁣ Gentle hugs to my fellow zebras & their AMAZING support people. ⁣⁣⁣⁣ ⁣ ⁣ ⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣⁣ ⁣⁣⁣#ehlersdanlossyndrome #ehlersdanlos #zebrawarrior #zebrastrong #invisibleillness #edsawarenessmonth #edsawareness #chronicpainawareness #invisibleillnessawareness #invisibleillnesses #connectivetissuedisorder #ehlersdanlossyndromes #invisibleillnesswarrior #invisibledisease #ehlersdanlossyndromeawareness #heds #ehlersdanlossyndromes #geneticdisorder #chronicpainwarrior #ehlersdanlosawarenessmonth #livingwithchronicillness #chronicpainwarrior #chronicpainlife #edswarrior #ehlersdanlosawareness #ehlersdanlostype3 #livingwithchronicpain #livingwithinvisibleillnesses #youdontlooksick ⁣#spooniefamily⁣

I couldn’t not repost this! From @the_zebra_network #chronicinsta #chronicallyill #chronicillness #chronicillnesses #chronicillnesswarrior #spoonie #spoonies #spoonielife #spooniefamily #spooniestrong #spoonieproblems #spooniewarrior #pots #potsie #potssyndrome #potsawareness #posturalorthostatictachycardiasyndrome #dysautonomia #dysautonomiaawareness #invisibleillness #butyoudontlooksick #relatable #funny #ehlersdanlossyndrome #edsawareness #medicalzebra #zebra

This weeks Spoonie Spotlight is on @annakingskywalker! "After personally fighting an undiagnosed chronic illness for several years, Anna founded @peoplehopeorg in 2014 at twenty-four years old. Through her illness, Anna became extremely disappointed in the lack of resources tailored specifically to those in her circumstances; to provide support spiritually, mentally, socially, and emotionally through unthinkable circumstances. Out of those experiences, she decided to design the very thing that had been missing." WOW, talk about inspiring a movement!✊ Check out our link in bio to learn more! ⠀ .⠀ .⠀ .⠀ #fibromyalgia #autoimmunedisease #hiddenillness #chronicdisease #healyourbody #chronicillness #invisibleillness #butyoudontlooksick #mysteryillness #undiagnosed #morealikethandifferent #spoonie #abilitiesnotdisabilities #geneticdisorders #chronicpain #spoonielife #dysautonomia #chronicfatigue #zebra #ehlersdanlos #edsawareness #potsie #spooniestrong #autoimmune #autoimmuneprotocol #autoimmunepaleo #painrelief #backpain #lifestyle #mobility

*•.¸♡ ♡¸.•* Never stop reaching or chasing your dreams. As said in the series “Plus Est En Vous” there is more in you. So LIVE your dream, do what it takes and enjoy your life! This world in full of beautiful life, I intend to savor every minute of it. As a person with chronic illness, I’m prepared for my life to drastically change any minute. I may not have the magical golden hair, but I live with #eds . That is why I started my business, to bring magic to children who need it the most, especially the ones in need. My business is so much more than a job, it is my calling and a way to live my life to the fullest! I will continue to do my best to make this world a better place and LOVE my life, even with EDS and #autism . Dare to dream☀️ Rapunzel isn’t just my favorite Disney Princess, she is so much more ✨✨✨✨✨ Thank you @consatelecosplay for this absolutely stunning edit. This has become one of my favorite photos, because of what Rapunzel and Corona mean to me! wig is by @themagicaldesigns thank you for making my hair dreams come true ☀️☀️☀️☀️☀️☀️ #rapunzelcosplay #tangledtheseries #partyprincess #disneyliveaction #autismspeaks #edsawareness #tangled #tangledtheseriescosplay #tangledcosplay #rapunzelstangledadventure #princessrapunzel #thelostprincess #kingdomofcorona #skylanterns #setyourselffree #plusestenvous #tanglededits #tangledart #disneytangled #disneyprincesscosplay #disneycosplay #punzie #aspergers

Slapped me right in the face this week #chronicinsta #chronicallyill #chronicillness #chronicillnesses #chronicillnesswarrior #spoonie #spoonies #spoonielife #spooniefamily #spooniestrong #spoonieproblems #spooniewarrior #pots #potsie #potssyndrome #potsawareness #posturalorthostatictachycardiasyndrome #dysautonomia #dysautonomiaawareness #invisibleillness #butyoudontlooksick #relatable #funny #ehlersdanlossyndrome #edsawareness #medicalzebra #zebra

It’s actually ridiculous how many pyjamas I own #chronicinsta #chronicallyill #chronicillness #chronicillnesses #chronicillnesswarrior #spoonie #spoonies #spoonielife #spooniefamily #spooniestrong #spoonieproblems #spooniewarrior #pots #potsie #potssyndrome #potsawareness #posturalorthostatictachycardiasyndrome #dysautonomia #dysautonomiaawareness #invisibleillness #butyoudontlooksick #relatable #funny #ehlersdanlossyndrome #edsawareness #medicalzebra #zebra

“At first glance, I look like your average healthy 23 year old girl. In reality, I am living with five chronic conditions - Hypermobile Ehler’s-Danlos Syndrome, Postural Orthostatic Tachycardia Syndrome, Pectus Excavatum, Slipping Rib Syndrome, and Depression. A typical day includes over 15 rib subluxations, crunching/pain in both knees, chest pain, abnormal heart palpitations, fatigue, pain in my right eye, nausea, throbbing in the back of my head, tingling in legs, and therapeutic crying. It has only been eight months since all of these conditions have been diagnosed, so I am still experimenting with my medication and pain management regimen. However, I do not let any of these illnesses limit my goals. I am a certified child life specialist, published author, children’s disaster services volunteer, grief support center volunteer, InvisiYouth ambassador, chronic illness advocate, shelter advocate for survivors of intimate partner violence, online fitness coach, and a student in a master’s program for thanatology. What gets me through each day is knowing that recovery is not a linear journey. There are high days and there are low days, and that is okay. I cannot control the pain, but I can control how I react to it. And I can control how I let that pain fuel my voice for advocacy. Wearing my necklace makes me feel even more empowered to make a difference!” @chronicallytaran #awarecauses