Список из самых популярных хештегов по теме #EHLERSDANLOS

It's our birth month This is how excited we are.... someone tell Mum that we are cats and we have way more birthdays than just once a year Our official birthday is the 18th of August #adoptdontshop #edscat #catbrothers #birthmonth #rescuecat #specialcat #catlife #catnaps #beautifulcat #sleepykitty #ehlersdanlos #rspcarescue #rescuesarethebest #mybeautifulcat #meow_beauties #catsiblings #ehlersdanloscat #gummycat #mygreatcat #rescuecat #catsoftheday #fluffycat #specialcat #bestcatbros #catswithdisabilities #kittylove #pawproject #specialneedscatsofinstagram

Are you this over the week yet? #adoptdontshop #edscat #humpdaymood #ehlersdanloscat #whiskerswednesday #specialneedscats #beautifulcat #ehlersdanlos #ehlersdanlossyndrome #rescuecat #kittypaws #wednesdaymood #rspcarescue #meow_beauties #mygreatcat #rescuesarethebest #specialcat #catsoftheday #catlife #purrfect #myspecialcat #meowmeow #felinecutaneousasthenia #myrescuecat #mybeautifulcat #catswithdisabilities #specialneedscatsofinstagram

Like floating on a cloud ☁️☁️ #adoptdontshop #cosykitty #sleepykitty #ehlersdanlos #tabbycat #sleepingbeauty #edscat #ehlersdanloscat #rspcarescue #specialneedscats #rescuecat #mybeautifulcat #meow_beauties #myrescuecat #pawproject #ehlersdanlossyndrome #beautifulcat #felinecutaneousasthenia #myspecialcat #meowmeow #mygreatcat #specialcat #catlife #specialneedscatsofinstagram #catswithdisabilities

Dr. Brad Tinkle just announced that we finally have new ICD-10 codes in EDS.⁠ ⁠ Please see the slide below, we now have specific codes for classical, hypermobile, vascular, Ehlers-Danlos syndrome unspecified, and other Ehlers-Danlos syndromes. The ICD-10-CM (International Classification of Diseases, Tenth Revision, Clinical Modification) is a system used by physicians and other healthcare providers to classify and code all diagnoses, symptoms and procedures recorded in conjunction with hospital care in the USA. #EDSNASHVILLE2019

Mum and Dad have had a few days off work and we are soo ready for them to go back! #adoptdontshop #edscat #rspcarescue #stoptakingmypicture #mumstop #ehlersdanlos #catshelves #beautifulcat #eds #ehlersdanloscat #rescuecat #catsoftheday #moodycat #meow_beauties #rescuesarethebest #felinecutaneousasthenia #specialneedscats #kittylove #catclimbingwall #myspecialcat #cathome #gorgeouscat #myrescuecat #rescuecatsrock #catswithdisabilities #specialneedscatsofinstagram

I had the opportunity to participate in the HEDGE study held by the Ehlers Danlos Society Global Learning Conference in Nashville, TN. Out of the 14 subtypes of Ehlers Danlos Syndrome, the hypermobility type is the only type without an identified genetic marker. The goal of the HEDGE study is to locate the causative gene(s) amongst eligible hEDS patients. With confirmed genetic markers, researchers can focus on much needed treatment.⁣ ⁣⁣ Although it was too late to register for the actual conference portion, I cancelled my surgical appointment to travel to Tennessee specifically for the HEDGE study. (More on my impending surgery later). I am beyond grateful my body held up long enough to contribute my sample for the genome sequencing. Thank you to everyone who donated their time, funding, and innovative minds to our cause. ⁣ @ehlers.danlos ⁣⁣ ⁣ Meeting fellow EDS patients during the process was an amazing experience. While there, I wasn’t subject to pitying stares or random condolences. I belonged—surrounded by others who are just like me. ⁣But the most humbling aspect was that I was approached by multiple strangers who explained how my story has impacted them personally. They proceeded to share some of their own struggles with me. It was a humbling reminder of why I choose to be open about my life on social media—even when it’s difficult or I feel nobody cares about the mundane-ness of a sick twenty-something. We all have a story to share and you never know who is listening.

Huh.. Dad..? You is back early.. #adoptdontshop #edscat #ehlersdanlos #mygreatcat #rescuecat #catclimbingwall #beautifulcat #rspcarescue #catscatscats #adoptedcat #ehlersdanlossyndrome #chonkycat #myspecialcat #meowmeow #felinecutaneousasthenia #ehlersdanloscat #confusedcat #specialneedscat #myrescuecat #kittycat #rescuesarethebest #purrfect #specialneedscatsofinstagram #catswithdisabilities

TW: View of Food • I never thought I was an anxious person. Sure, I got nervous before tests or performances, but no racing thoughts at night, no social based worse case scenarios. Most people consider me pretty secure in who I am. I guess I just always assumed anxiety was so cookie cutter, or at the very least, you'd be able to know you were struggling with it right away. • But I've realized that getting sick has impacted my mental health more than I thought. Although I'm tolerating most foods (still painful, but it stays mostly down PTL), I have a unhealthy relationship with it. I mean, go 1.5 yrs w/o being able to eat or drink a semi-normal portion w/o having pain or nausea or getting sick and try NOT to have a weird relationship with it. • My pain and symptoms are real. We now know it's a neuropathic problem that unfortunately can't be fixed with any surgeries or procedures rn. But I've started to wonder why my pain so frequently gets 1000x worse if I attempt to eat out. Sure, maybe it's because it's harder to limit my intake or maybe it's all the stuff they are cooking the food in. But I think...it's also because I'm scared. Looking at menus is overwhelming. So many options and ingredients, so many things that could hurt me. I walk into attempting to eat a small portion of a meal with the constant idea of severe repercussions if I go through with it. • I've always just tried to ignore those thoughts. Didn't talk about them. Internally rolled my eyes at myself & pretended they weren't there. I'm finally recognizing that they are hurting me. My anxiety is not causing my pain BUT it's heightening it. Making it terribly worse & debilitating. So I'm getting help. In no way do I expect my pain to go away- it won't. I'm simply trying to manage it. To get my life back. To learn that I can eat small portions out and not be destroyed by it. I don't want to be scared to eat in public places anymore. • & I'm not sure why I'm sharing this. But I wanted to be real. Real with you and real with myself. I may not be able to fully heal my body, but I'm gonna try to heal my brain & thoughts & get practical, sustaining help. & I'm proud of that step.

This is something I struggle with all the time!! I always feel like I need to be doing more. Do you ever feel like you need to be doing more? How do you handle that feeling? Tag someone and remind them that their best is enough! • • • #diabetes #fatigue #pots #dysautonomia #multiplesclerosis #ulcerativecolitis #arthritis #rheumatoidarthritis #chronicpain #sicklecell #lymedisease #ibs #ibd #lupus #autoimmunedisease #fibromyalgia #endometriosis #ptsd #pcos #migraines #ehlersdanlos #crohns #depression #anxiety #chronicillness #idiopathicthrombocytopenicpurpura #spoonie