edszebra ehlersdanlossyndrome spoonie chronicillness chronicpain potsie chronicallyill gastroparesis gastroparesiswarrior pots dysautonomia posturalorthostatictachycardiasyndrome edswarrior chronicillnesswarrior chronicfatiguesyndrome chronicpainwarrior menieresdisease potswarrior scoliosis spooniesofinstagram zebrastrong ehlersdanlos zebra butyoudontlooksick edstype3 ehlersdanlosawareness fibrowarrior autism blackgermanshepherd edswarrior
2019 vs. 2018. I haven’t done much for #ehlersdanlos awareness month this year, but here's a #redraw! .
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#ehlersdanlosgrrrls #edszebra #edsawarenessmonth #edsawareness
#paintsomething #teaboxes #tbtart #spoonieartist #spoonielove #teadrunk #dryhumor #potsie #chronicallyfabulous #lgbtartist #teadrinkers #selfportrait #caffeinedaily #favoritedrink #chroniclife #cartoonart #spoonielife #ehlersdanlossyndrome #butyoudontlooksick #cartoonist #chronicpainwarrior #teadrinker #pnwartist #ilovetea
For the last 2 months my doctors thought I might have ovarian cancer... which meant holding off on an intense IV/ blood transfusion therapy that will ((hopefully)) greatly increase my quality of life: #IVIG ➿♥️ Last Thursday I learned great news: NO CANCER.
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The last 2 years have felt like a slow moving nightmare of diagnosis after diagnosis of incurable, degenerative diseases... I am finally feeling hopeful for IVIG treatment to reprogram my immune system to stop attacking my heart / autonomic system.
I think there might be magic in wearing lipstick & lightning bolt earrings.
#chronicillness #invisibleillness
#spoonie #dysautonomia #Tachycardia #Bradycardia #heartdisease #IVIG #endometriosis #endosisters #edszebra
We do what we want. #officecat .
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#autobiocomics #homeofficelife #cartoonistsofinstagram #diarycomics #edszebra #ehlersdanlosgrrrls #inkdrawingart #journalcomic #loosethreads #autobiographical #astoriaoregon #artprogress #chronicallyfabulous #ehlersdanlos #lgbtartist #watercolorlove #catsagramcat #threadart #studiocat #freelancelife #pnwartist #artbyme #cartoonist #chronicpainwarrior #drawdaily #ehlersdanlossyndrome #queerartist #spoonielife #writerscorner
Look what is on the way to me!
A wonderful woman made it for me because I’m a Zebra cat.
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#catclothing #catclothes #petclothes #catjohnny #newoutfit #zebra #zebraprint #ehlersdanlos #ehlersdanlosawareness #Ehlersdanlossyndrome #eds #Edscat #ehlersdanloscat #felinecutaneousasthenia #petwear #zebralove #zebracat #edszebra
Recommendation. #putthekettleon .
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#electrickettle #spoonielove #hotwaterbottlecover #spoonieartist #edszebra #ehlersdanlosgrrrls #autobio #loosethreads #cartoonistsofinstagram #chronicallyfabulous #ehlersdanlos #threadart #watercolorlove #hotwaterbottle #disabledandcute #cozyliving #selfportrait #modernembroiderymovement #pnwart #spoonielife #machineembroidery #everythinghurts #sewingproject #chronicpainwarrior #butyoudontlooksick #ehlersdanlossyndrome #eds #drawsomething #queerartist
Life with EDS is hard .
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When multiple joints are unreliable, it can cause simple tasks to become nearly impossible .
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I use a super snazzy granny cart for grocery shopping that is designed to go easily up all my flights of stairs. But I usually have to pull with my right arm, since pulling with my left arm causes my right ribs to sublux thanks to my scoliosis. But right now, my right shoulder needs to be rested, so pulling with my right wasn’t an option .
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There’s no good solution to this dilemma, besides asking someone else to grocery shop for me. So instead, I found myself pulling with my left while awkwardly wiggling my torso all through the city to try to find and maintain the optimal muscle patterns and trunk positioning to keep my ribs in their proper home .
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Life with EDS is hard. But we make it work. .
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#ehlersdanlossyndrome #ehlersdanlos #eds #edszebra #zebrastrong #hypermobility #dysautonomia #pots #potsie #orthostaticintolerance #spoonielife #spoonie #spoonieblogger #chronicwarrior #chronicpain #butyoudontlooksick #invisibleillness #fragilebutunbreakable @ehlers.danlos @dysautonomiaintl
16/06/2019
Haven't posted in ages cause settling into 6th year and been sorting that out
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#wiccanmodel #ginger #blackandwhite #edszebra #hippy #hippywitch #gingerhippy #dreadedhippy #lunarwiccan #moonwitch #moonfilter #moonmagik #corsetedmodel #corsetlover #scottishmodel #moonmagicklover #wiccanmodel #lunarpath #lunarwiccan #taurus #dreads #dreadedmodel #dreadication #dreadlocks #gingermodel #lovemyfigure #moonwiccan #hippy #dreadmaker #messybuns #naturalredhead #aberdeenshire