invisibleillnesswarrior chronicillness invisibleillness invisibleillnessawareness chronicillnessawareness spoonie chronicillnesswarrior chronicpain fibromyalgia chronicillnesslife pain spoonielife fibromyalgiawarrior autoimmunedisease spooniewarrior anxiety autoimmunewarrior chronicpainawareness chronicpainwarrior invisibleillnesses survivor autoimmune butyoudontlooksick depression ehlersdanlossyndrome endometriosis grateful life love spooniewitch mentalhealthawarenessweek
Living organ donors are heroes!! Praying for a smooth and quick recovery for both @cvgutierrez02 @foxglovepharm .
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#selflessactsofkindness #actofkindness #organdonation #livingorgandonors #livingdonorsrock #livingdonors #giftoflife #june5
#hope #love #grateful #thebigask #thankful #warriorwednesday #kidneydonor #kidneytransplant #kidneywarrior #chronicillness #invisibleillnesswarrior #thebigaskthebiggive
So reliable. When things are going too well it's time to become suspicious
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Repost @anxiety.assist .
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. . #mentalhealthblog #mentalhealthjourney #mentalhealthisreal #mentalhealthisimportant #mentalhealthproblems #mentalhealthillness #mentalhealthmatters #mentalhealthadvocate #crashing #fatigued #chronicfatiguesyndrome #chronicillness #invisibleillnesswarrior #chronicfatigue #adhdadult #onthespectrum #aspiegirl #aspielife #depressionandanxiety #anxietydisorders #anxietysupport #anxietyattacks #anxietyhelp #anxietyrecovery
I’ve been asked about how my husband is involved and how he handles, supports and tirelessly loves me with type 1 diabetes, and all that it goes with it. Financial burden, major health decisions, fertility, day to day routines to ensure safety and really clear communication, etc. I’ve never heard anyone ask their spouse to share what this looks like on the day to day. Because really that’s what it is, accepting me and the disease I carry daily. So my hubby wrote the rest of this post, and it’s part 1 to a video we’ll he filming on my YouTube channel. If you want to subscribe, link is in my bio!
• “Firstly, to give the most simplistic answer, Piper having type 1 has never changed how I look at her. I have loved her for a long time. Way back to our early teen years, and not once have I viewed her autoimmune disease as something that was even a factor in my being able to fully love her. I guess that’s what it means to really love someone, you look past anything because you see the person beneath the surface. But to expand on the day to day life and the reality of being Piper’s support person, it isn’t always sunshine and cold cider. When she has a high number, and I see her in pain, it makes me sad and I want to be able to take that away. She did nothing to deserve this, but yet it’s out of our hands. She toughs it out, constantly learning about her disease and how to help herself and others. I see my role as simply, be a listening ear, a crying shoulder, and always willing to help with the physical acts of taking care of her type 1. For example, getting her supplies for a site change when she needs it and she’s comfy in bed at the end of a long day. These little things, while very small are just a simple way to help ease the burden of the day to day grind with type 1. Type 1 is a hidden disease that sometimes, I can get in the bad habit of not being involved enough when Piper’s numbers are good (or bad) and she’s being quiet about it. She’s suffering silently and I’m not checking in enough. I’d say that’s an important thing to remember as the support person of someone with type 1 or any other chronic disease. Silence doesn’t = okay.”- Wyatt pt. 1
This makes me so happy! if you haven’t already done so, you can choose a charity and do all your Amazon shopping through AmazonSmile. Every little thing counts.
Gentle hugs to my fellow zebras & their AMAZING support people.
#ehlersdanlossyndrome #ehlersdanlos #zebrawarrior #zebrastrong #invisibleillness #edsawarenessmonth #edsawareness #chronicpainawareness #invisibleillnessawareness #invisibleillnesses #connectivetissuedisorder #ehlersdanlossyndromes #invisibleillnesswarrior #invisibledisease #ehlersdanlossyndromeawareness #heds #ehlersdanlossyndromes #geneticdisorder #chronicpainwarrior #ehlersdanlosawarenessmonth #livingwithchronicillness #chronicpainwarrior #chronicpainlife #edswarrior #ehlersdanlosawareness #ehlersdanlostype3 #livingwithchronicpain #livingwithinvisibleillnesses #youdontlooksick #spooniefamily
“But you don’t look sick”
Or how about this one? “Why are you always saying you don’t feel good? You’re not even sick”
Living with #invisibleillness can be frustrating for SO many reasons. Obviously is frustrating to have a body that doesn’t know how to function. It can even feel like a prison at times. But honestly none of that compares to how frustrating it can be when someone doesn’t understand what invisible illnesses can do to a person. Sometimes it even happens WITHIN the #spooniecommunity — sometimes other spoonies fail to realize that just because a persons illness isn’t something you can see just by looking at them doesn’t mean it’s not there.
What does illness look like? It looks like BOTH of these pictures.
Let’s not forget to never judge a book by its cover #spoonie #spoonies #spoonieproblems #spooniesisters #spooniestrong #chronicpain #chronicfatigue #chronicillness #chronicpainawareness #flareups #100outof100 #thisiswhatinvisibleillnesslookslike #invisibleillnesswarrior #invisibleillnessawareness #butyoudontlooksick
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