Список из самых популярных хештегов по теме #SPOONIELIFE

TODAY'S Chargie of the Day is Hayley:⠀⠀⠀⠀⠀⠀⠀⠀⠀ .⠀⠀⠀⠀⠀⠀⠀⠀⠀ Hey guys I'm Hayley! I'm 28 and I have a series of chronic illnesses including Chronic Pancreatitis, Exocrine Pancreatic Insufficiency & Gastroparesis. My pain is constant and indescribable which can make life difficult. After years of repeated acute attacks, hospitalizations & feeding tubes, biopsies & failed experiments, I have finally been approved for a Total Pancreatectomy with islet auto transplantation, splenectomy, partial gastrectomy & a small bowel resection. I am hoping these surgeries will greatly improve my quality of life! ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Making the decision to have a major open surgery and to deal with the side effects, like being insulin dependent, was difficult. But life's about choices ....and I chose hope. My illnesses have taken too much from me but I won't let them take my spirit or my desire to raise awareness. I try to do that on my Instagram @asecretspoonielife and challenge people's perceptions of what it means to "live with chronic illnesses" ...all with a little humor. I share my journey with rare diseases in the hopes that I can connect with other Chargies and maybe make someone's journey a little easier! I hope you join me! ⠀⠀⠀⠀⠀⠀⠀⠀⠀ . ⠀⠀⠀⠀⠀⠀⠀⠀⠀ WIN unique chronic illness clothes from The Unchargeables Shop. Link to giveaway in bio.⠀⠀⠀⠀⠀⠀⠀⠀⠀ .⠀⠀⠀⠀⠀⠀⠀⠀⠀ .⠀⠀⠀⠀⠀⠀⠀⠀⠀ .⠀⠀⠀⠀⠀⠀⠀⠀⠀ .⠀⠀⠀⠀⠀⠀⠀⠀⠀ .⠀⠀⠀⠀⠀⠀⠀⠀⠀ . #chronicillness #chronicillnesswarrior #chronicpain #chronicpainwarrior #migraine #fibromyalgiaawareness #spoonieproblems #spooniewarrior ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #chroniclife #autoimmunedisease #chronicillnessawareness #anxietywarrior #sicklife #disabledandcute #invisibleillnessawareness #disabled #zebrastrong #spooniesunite #raiseawareness #butyoudontlooksick #disabilityawareness #invisibedisability #chronicpainwarrior #spoonie #spoonielife #invisibleillness

Every time. ‍♀️ #chronicillness #chronicpain #chronicfatigue #invisibleillness #invisiblefight #ra #chronicallyill #spoonie #spooniestrong #spoonielife #spooniesupport #spooniewarrior #butyoudontlooksick #StrongerThanYouThink

. . . . . . #livingwithchronicillnesses #chronicillness #chronicillnesswarrior #chronicpancreatitis #autoimmunepancreatitis #acutepancreatitis #autoimmunediseaseawareness #pancreaticdiseaseawareness #exocrinepancreaticinsufficiency #diabetes #chronicpain #chronicpainwarrior #gastritis #gastroparesis #GERD #epi #aip #gastrodiseaseawareness #mecfs #spoonie #spoonielife #spoonieproblems #spooniestrong #spooniearmy #spooniesupport #spoonies #invisibleillness #butyoudontlooksick

#endo #endometriosis #endolife #endoawareness #endosister #endowarrior #chronicpain #chronicillness #chronicfatigue #chronicillnesswarrior #chronicillnessmeme #endomeme #meme #1in10 #wellness #endodiet #womenshealth #womenempowerment #periodmemes #healthylifestyle #spoonie #spoonielife #spoonieproblems #pcos #adenomyosis #mentalhealth #selflove #selfcare #mentalwellness

: ’ ’ “ .” ✌️ . . . . . . . #livingwithchronicillnesses #chronicillness #chronicillnesswarrior #chronicpancreatitis #autoimmunepancreatitis #acutepancreatitis #autoimmunediseaseawareness #pancreaticdiseaseawareness #exocrinepancreaticinsufficiency #diabetes #chronicpain #chronicpainwarrior #gastroparesis #GERD #epi #aip #gastrodiseaseawareness #mecfs #spoonie #spoonielife #spoonieproblems #spooniestrong #spooniearmy #spooniesupport #spoonies #invisibleillness #butyoudontlooksick

Anyone else out there have a bit of a rough morning? ‍♀️ . Mornings have been really difficult lately. I find it so hard to get up when I’m in so much pain. . Before getting this sick I was always a jump up and go morning person. . They have become a very long process for me. . How about you? What do you do that helps? How does it effect you? . . . . #chronicillnessdaily #chronicillness

If people can’t understand or are not willing to give you the space, kindness, or support you need whilst dealing with chronic illness then sadly they are probably not who you want in your life. Do not allow others to make you feel guilty for something out of your control. ........surround yourself with good people, because that’s what you deserve ❤️ #chronicillness #chronicpain #chronicpainwarrior #chronicpainawareness #invisibleillness #spooniewarriors #youareamazing #spoonie #spoonielife #spooniesupport #spoonies #ankylosingspondylitis #ankylosingspondylitisawareness #ankylosingspondylitiswarrior #arthritis #autoimmunedisease #thyroidproblems #underactivethyroid

This image was created in collaboration with @natashalipman ❤️ Generally I think I do pretty well with accepting my chronic conditions, but make no mistake - that doesn’t mean they never get to me. To me, acceptance isn’t really a destination you reach. I don’t think there will come a point where the negatives *never* get me down. I also don’t think it’s necessary to get to that point. Generally I’m okay with it, but sometimes they do get to me. And I’m okay with admitting that. The majority of the time I think I handle it quite well, and I do what I can when I can. It isn’t about pushing all my boundaries, because that would be dangerous. For me I choose to focus on how I can make the most of these boundaries, without pushing them. What’s the most I can do from within them? But that mindset isn’t constant, like I said. Today I’ve woken up in a high amount of pain and I’m in a bad mood. I’ll happily admit that. Today it’s annoyed me that I couldn’t even have 2 minutes of being relatively pain free. Today it’s annoyed me that I was in agony before even getting out of bed. It’s okay to get frustrated and angry, it’s okay to be sad. Sometimes these things get to you and that’s allowed. You don’t need to tell me that anger won’t help anything, or that it’s even possibly making the pain worse. I know that. But I think sometimes you need to let yourself feel these things so that you can process the emotion. I’m going to allow myself the space and time to sit in my bad mood, and then I’ll move on. Chronic pain plays with the mind as much as it does the body. That’s perfectly natural. All we can do is try our best, and today this is my best. That’s okay. 30/100

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