posturalorthostatictachycardiasyndrome chronicillness ehlersdanlossyndrome chronicpain spoonie pots dysautonomia invisibleillness fibromyalgia chronicfatigue chronicfatiguesyndrome gastroparesis potsie heds awareness disability spoonielife chronicillnesswarrior potssyndrome anxiety mcas zebra chiari chronicallyill crps depression lupus autoimmunedisease мерт
12 weeks There was a big sigh of relief this morning when I realized I made it through the first trimester! The morning sickness has finally started to pass and I could not be more grateful. •
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#attitudeofgratitude #12weekspregnant #lymedisease #lymewarrior #lyme #lymedontkillmyvibe #pots #posturalorthostatictachycardiasyndrome #chronicillness #chronicpain #chronicfatigue #myalgicencephalomyelitis #ptsd #bpd #mentalhealth #mentalhealthawareness #gratitude #gratitudeeverydamnday #stemcelltransplant #spoonie #dysautonomia
♀️ #disabledbodiesmatter #swimsuit #wheelchair #wheelchairmodel #disabledmodel #disabledactress #deafmodel #autisticmodel #deaf #actuallyautistic #aspie #aspergirl #elhersdanlossyndrome #heds #paralyzed #uniplegic #strokesurvivor #posturalorthostatictachycardiasyndrome
#wheelchairlife #disabledandcute #AFOs #SanDiegoModel #italian #mexican #nativeamerican #mixedrace #longhair #makeup #makeupoftheday #SanDiego Photographer: @pilotavery
Happy Sunday y’all! I pray today is a low pain/low anxiety day. I pray that you know how much you are loved and cherished. I pray that we can all show KINDNESS today and remember that everyone is fighting some kind of battle. Love and gentle hugs friends. #chronicpain #chronicillness #spoonie #invisibleillness #autoimmune #autonomicdysfunction #dysautonomia #posturalorthostatictachycardiasyndrome #pots #thoracicoutletsyndrome #tos #crps #occipitalneuralgia #mitralvalveprolapse #raynauds #spinalstenosis #scoliosis #arthritis #anxiety #ptsd #degenerativediscdisease #bursitis #tmj #hashimotos #hypothyroidism #multichemicalsensitivitydisorder #chronicpainprincess
I couldn’t not repost this! From @the_zebra_network #chronicinsta #chronicallyill #chronicillness #chronicillnesses #chronicillnesswarrior #spoonie #spoonies #spoonielife #spooniefamily #spooniestrong #spoonieproblems #spooniewarrior #pots #potsie #potssyndrome #potsawareness #posturalorthostatictachycardiasyndrome #dysautonomia #dysautonomiaawareness #invisibleillness #butyoudontlooksick #relatable #funny #ehlersdanlossyndrome #edsawareness #medicalzebra #zebra
Slapped me right in the face this week #chronicinsta #chronicallyill #chronicillness #chronicillnesses #chronicillnesswarrior #spoonie #spoonies #spoonielife #spooniefamily #spooniestrong #spoonieproblems #spooniewarrior #pots #potsie #potssyndrome #potsawareness #posturalorthostatictachycardiasyndrome #dysautonomia #dysautonomiaawareness #invisibleillness #butyoudontlooksick #relatable #funny #ehlersdanlossyndrome #edsawareness #medicalzebra #zebra
It’s actually ridiculous how many pyjamas I own #chronicinsta #chronicallyill #chronicillness #chronicillnesses #chronicillnesswarrior #spoonie #spoonies #spoonielife #spooniefamily #spooniestrong #spoonieproblems #spooniewarrior #pots #potsie #potssyndrome #potsawareness #posturalorthostatictachycardiasyndrome #dysautonomia #dysautonomiaawareness #invisibleillness #butyoudontlooksick #relatable #funny #ehlersdanlossyndrome #edsawareness #medicalzebra #zebra
Stairs, my old nemesis... My bedroom is downstairs, so start my mornings with a little cardio. But if I need something from my room later in the day, I’ll often ask Elliott to grab it for me. Too many trips up and down wipe me out in no time.
POTSie heart rates, as you are well aware, like to misbehave. When a POTS patient goes from sitting to standing, their heart rate jumps at least 30 beats per minute! And that heart rate often keeps rising the longer they stand.
That means any level of physical exertion is likely to make a POTSie heart rate skyrocket, so something as simple as going up a flight of stairs can feel like running a marathon—because that’s essentially what your heart thinks you’re doing. ♀️
This can lead to lots of symptoms and can really quickly drain a POTSie’s energy, which is why lots of us need to take elevators instead of stairs. Elevators are important and necessary for lots of different people for lots of different reasons, and sometimes the reason isn’t obvious at first glance! So here’s your friendly reminder that not all disabilities are visible.
So, on a scale of ♀️ to how much do you hate stairs?
#posturalorthostatictachycardiasyndrome #POTSAwareness #dysautonomia #ChronicIllnessLife #POTSProblems #PotsiesProblems #webcomics #SpoonieLife #IHateStairs #ChronicallyIll #ChronicallyIllArtist #SpoonieArtist #InvisibleDisability #NotAllDisabilitiesAreVisible #TheFutureIsAccessible
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