stelara humirasideeffects crohn ulcerativecolitis cdiff coconutoil colitissurgery crohnsflare crohnsnomeds crohnssurgery glutenfree howtobesick ibdrecovery pregnantcrohnie remicadecollage remicadeinfusion sepsis steleraweds stoma stomachsurgery vegan probioticsyall hernia giappointment diagnosedwithcrohns ensureplus modulen ileostomysurgery humira stelera
Stelara time
Since I started stelara about 6 months ago, I’ve noticed a weird stigma about self injecting. It’s like the need to self inject your medicine, you must be SUPER sick and there’s something really wrong with you. It’s made people treat me a little weird, and it can sometimes make me feel like I’m not normal.
Hello, my name is Catherine, I’m 23 years old and yes, I stick two needles in my stomach every 8 weeks to manage my Crohn’s disease. But firstly I am Catherine. I am a daughter, sister, friend, researcher, food and fitness lover first.
My injections are just one tiny part of me. I only do them once every two months and in between then, I feel pretty much the same as all my other friends.
Sure, it’s scary and you can see on your face that I still don’t feel fully confident with them. But that’s even more reason to be kind to all those (so many conditions require injections) who experience it first hand.
#crohnslife #crohnssucks #crohnsdisease #crohnsfighter #crohns #crohnswarrior #inflammatoryboweldisease #ibd #ibdawareness #stelara #stelarainjections #biologic #biologics #chronicillness #chronicillnesswarrior #invisibleillness
The human body is fucking innnnnsane. I did some reflecting today on what my body has been through in the past year and I couldn’t be any happier or any more grateful to be in this healthy body of mine. I wouldn’t take back one fucking minute of it all. I’ve learned some incredibly crucial lessons and have had some major perception shifts and I can only hope for more positive change. Slowly approaching 25 and trying to get all I can out of that last bit of brain development. Expand expand! ✨#Crohn’s #crohnsdisease #spoonie #ileostomy #stoma #ibd #stelara #crohns #crohnscolitis #ostomy
Here's to any woman who has dealt with IV infusions, puffy med side effect faces, near constant doctors appts, long pharmacy lines, longer calls with their insurance companies and still bravely attempts to conquer the world. You raise our collecive consciousness and inspire us to keep fighting. Happy International Woman's Day to my Autoimmune/Chronic Illness Coven. Didn't wanna blow up your spots but tag yourself if you wanna join. .
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#internationalwomensday #spoonie #autoimmunedisease #crohnswarrior #coven #womenempowerment #femalesbestrongashell #stelara
Its stelara injection time. Truly mind blowing how something so small can make such a massive impact on improving my health for a short duration of time and cost a shit ton of money. Of which, my insurance does absorb most of it now since I hit my 4k out of pocket in March. These $20K shots cost me 0 now.
However I've been making monthly payments to pay off the 4k. I should be caught up by December, which means I can be ready to plan for the next 4k for 2019 bills. And believe me when I say, I do consider myself lucky that is all I have to pay for now.
“I admire the people that choose to shine even after all the storms that they’ve been through.” ✨My lovelies I’ve got say, I’ve never been this comfortable in my own skin before. I was never one to wear a crop top before Stella- why because I just wasn’t comfortable, I usually had to hide the huge pair of Depends I had to wear every.damn.day. I hated them so much, I hadn’t bought a real pair of undies for about 2 years. I felt disgusting! I wore clothing to hide them and to hide my body because I was too thin and nothing fit me right. But since having Stella, I’ve gained some weight and I feel confident in myself to wear those sexy undies, cute jeans and crop tops. Most people might think you need to hide your ostomy but guess what? This is my body, it has been through so much to get me where I am today. Yup, I got scars, stretch marks, bruises and a bag of sh*t hanging off of me and I don’t care what anyone else thinks L O V E yourself ❤️❤️❤️
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#selflove #takecareofyou #selfcare #stelara #stellathestoma #gratitude #grateful m #crohnsdisease #ibd #invisibledisease #crohnsawareness #inflammatoryboweldisease #recovery #ileostomysurgery #ileostomy #ileostomycare #spoonie
#ittakesguts ostomysupplies #aerieReal #loveyourself
This is why I don't moan about paying my taxes. This costs the NHS £21,470 a year. That doesn't include the cost of the nurses coming to my house to administer it, the cost of delivery, the cost of follow up appointments, the cost of the blood tests before each one and so on. .
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I am forever grateful to the NHS. We are so lucky to have this amazing healthcare for free! Don't moan about it, you never know when you'll need it to stay alive and well‼️
Stelara loading dose done ✅
Very excited and nervous to see how my body responds to biological treatment. It feels a little surreal knowing that I’m purposefully suppressing my immune system, but I know it will be worth it to have my usual quality of life back. Now to learn how to self-inject and navigate my usual grub self through life while being immuno-compromised. Any and all advice welcome!
#crohnsdisease #crohnslife #crohnssucks #crohnsfighter #crohnswarrior #crohns #crohnsawareness #crohnsproblems #ibd #inflammatoryboweldisease #biologics #stelara #stelarainjection
Sooo I'm officially on a liquid diet for the next 3 weeks at least :/ I've spoken to my nurse and dietician and it seems that solid food is a problem for me at the moment while I am waiting for my next shot of medication, so we figured it would be best to try liquid and see how i go.
The pain and nausea atm is okay, it's not even that bad really but because it's heading in the wrong direction we thought that we should do something sooner rather than later, especially since I can get sick very, very quickly if I start losing weight.
I always try to stay on the chunkier end of healthy just in case something like this starts to happen as I know first hand that it is definitely possible to lose 3-4 stone in a month and that is something I want to avoid.
Something has got me worried though. I was the 2nd patient under my nurse's care to go on Ustikinumab and after speaking to her it appears that the 1st guy isn't doing so well at the 6 month mark. So I'm a little concerned.
Has anyone been on Ustikinumab for longer? How have you been? Have to started getting ill again? Or is it losing its effectiveness the closer you get to your injection? Let me know! FYI. I'm on it every 8 week.
Anyway I'm off to have yet another drink