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#ulcerativecolitis #jointpain #sulfasalazine #methotrexate #botox #crohns #endoscopy #humira #ostomy #ostomybag #stelera #ulcerativecolitisdiet #xeljanz #ensureplus #modulen #diagnosis #cdiff #stoma #stomachsurgery #crohn #glutenfree #stelara #vegan #steleraweds #supportgroup #concerned #pain #ironinfusion #probiotics
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#sulfasalazine #sulfasalazine500mg #sulfasalazine1000mg #sulfasalazinesucks
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Хештеги на тему #SULFASALAZINE

D/x: Polyarticular Juvenile Rheumatoid Arthritis Age: 13 / Year: 2001(ZOOM) ⠀ 2001-2003: pain, shock, fear, uncertainty contribute to more time in bed, not moving, getting kinda depressed, eating terribly still, homeschooled suddenly (not choice) 2004: begin dietary lifestyle changes, read "Conquering Arthritis" , return to public school, motivated, moving, happier Tried Enbrel + MTX at some point in h.s: sick & major hair loss, no improvements 2006: started working 35+ hours/wk + maintained honor roll & college prep + started drinking socially 2007: move out, move back in, grad h.s., start college, stay in dorms + parents'home 2008: college break 1 semester, get own apt, work 35+ hr wks, running regularly, eating gluten & peanut butter still, sudden MAJOR FLARE, put on #prednisone, realize peanuts aggravate arthritis, lose/relinquish job due to RA, back to college 2009: m/c @ 9wks, major depr, carefully orchestrated alt treatments for dep & anxiety (see reset.me and @mapsnews) w/success - also began researching & smoking cannabis for conditions 2009-2014: taking between 15-30mg Prednisone 2x/day, (+ drinking reg), #moonface developed, insane acne, hideously painful yeast infections, #buffalohump shoulders formed, weight ballooned to 170lbs, mood swings, bad gums, etc, drop out 2013: 1st time #synvisc injections in knees 2014: try Sulf, no luck, go gf finally... still only taking Pred, start sublingual THC nightly @ end of year 2015: find out about #Reishi to replace Pred, begin new research on EVERYTHING, start tapering slowly myself b/c docs want me off of it but aren't sure how to help ‍♀️‍⚕️ Try vegan.. 2016: start mixing THC w/MCT, try #Sulfasalazine again w/#Plaquenil, begin #CBD therapy every day, add #Enbrel due to safety afforded by #cannabinoids while refusing the usual MTX with it Visual pred side effects abating Vegan bad for Me, weight 109lbs, MEAT AGAIN, big improvements 2017: 122lbs, Enbrel helps, try working, get horrible, quit, dedicate 2 health, winter WORST 2018: GOT OFF PRED❣START EXERCISE- FEELING GREAT! Reishi + collagen + magnes, more #orthovisc shots! HEALING!

Хештеги на тему #SULFASALAZINE

So for something new, this is me. The girl behind this account. I want to thank you all so much for your continued #support. This photo taken here was taken earlier this year ar rhe beginning of the worst #flair iv ever had. I actually lost the ability to even #smile due to the #athritis in my #jaw that hell period of not even being able to dress myself almost #destroyed me if it where not for one thumb being flair free at the time it may have

Хештеги на тему #SULFASALAZINE

Anyone had taken Sulfasalazine before? I suspect my gallstones are caused by this. #sulfasalazine #sulfasalzinegallstones #gallstones #gallbladderremoval #rheumatoidarthritis #ankylosingspondylitis

Хештеги на тему #SULFASALAZINE

March is autoimmune awareness month and this my my right here right now. Instagram is a highlight reel. The other day I went for a walk in the park with a friend. The reason I could do this is because I'd taken the day off work. Mental health day I called it. We found a grove of mimosa trees, and my friend took a boomerang of me jumping like a cheerleader in front of them clutching handfuls of freshly cut mimosa (I never leave the house without my secateurs). Laughing at the boomerang I was slightly unnerved at how normal and healthy I looked. Because that's not how I feel. I can't go for a walk in the park after work anymore, I'm too tired and my body hurts. And even if it doesn't I'm scared of pushing myself unless it starts hurting. I'm scared of the pain coming back, and that really impacts the way I'm living my life. So walks in the park, or anywhere, are limited to days off because my job is standing all day behind a counter and my body can't hack it anymore. So after work I'm lying on the couch in front of Netflix. Watching crap to rest my body and to turn off my frustrated mind. Waiting and hoping the new drugs will start working soon and that the side effects won't be worse than the disease. There's always a behind the scenes. Behind the boomerangs. Behind the flowercrowns. But behind this disability there's a happy life loving flower freak waiting for a big comeback. Watch this space people, I'm not planning on being down for long. #autoimmunewarrior #igvsrealme #thisislife


Хештеги на тему #SULFASALAZINE

Something I don’t really talk about here is my health. I have Ehlers-Danlos Syndrome (hypermobility) and Arthritis in both knees and my right elbow. I’m currently on steroids and Sulfasalazine to control the arthritis, and have to have blood tests every 2 weeks. Honestly at this point I think the doctors have more of my blood than I do. Day to day life is pretty exhausting, and I’m nearly always nauseous due to the medication. I try not to let it affect my regular work, although in the past I’ve had to have months at a time off. Some days though I can barely get out of bed. Luckily my finger joints are still all fully mobile so for now embroidery is fine. Do you have a chronic illness or condition? ✨ . . . #niamhystitches #feministartist #feminist #etsyshop #embroidery #etsyseller #embroideryartist #artist #artistsofinstagram #artistsoninstagram #smallbusiness #oneofakind #vscocam #creativelifehappylife #supportsmallbusiness #indierollercoaster #meetthemaker #arthritis #ehlersdanlossyndrome #hypermobility #sulfasalazine #bloodtest #spoonie #chronicillness

Хештеги на тему #SULFASALAZINE

Finally!!! Got meds for a whole month Dapat obatnya untuk sebulan, selesai kontrol lebih cepat dari biasanya. Entah kenapa pengen banget ketawa jahat sampai puas huahahahahaha evil laugh. It's still 3 kinds of meds, the rest is still waiting. Jenis obat2an yang lain menyusul cuy, karena ga di cover bpjs. #autoimun #autoimmune #autoimmunesurvivor #ankylosingspondylitiswarrior #ankylosingspondylitis #axialspondyloarthritis #axspa #sulfasalazine #painkillers #medicine

Хештеги на тему #SULFASALAZINE

Since you all loved my overshare about my dad on insta stories earlier this week (DM’s went offffff), here’s another since it’s World Arthritis Day... . So I had my Rheumatologist appointment yesterday and hmmm I feel lost. . About 3 years ago now... I was bootcamping almost everyday, having the time of my life and BAM. One morning I almost fell out of bed! My knee had seized up. I could barely walk. I saw a GP. She said I’d just been overdoing it Wrong! (Don’t always listen to your doctors!) So I went to see Dr Friis at Brisbane Private. I can’t recommend him enough. Long story short we found I had an autoimmune disease at play and had to refer me on. I ended up in hospital unable to walk let alone work out, so I put on lots of weight from that and all the meds . 2 years on at PA and multiple cortisone injections, they suspected Rheumatoid Arthritis and wanted me to go on #Methotrexate. For those not familiar with this drug, it’s used to treat cancer, ectopic pregnancies and for medical abortions. Uh hell to the no! ‍♀️ U can keep that! My dad has been on it and it made him really sick too. . Moved to Brisbane Northside and got moved to RBH. New drs, new diagnosis. Apparently I have Psoriatic Arthritis... ‍♀️ Nothing else really changes though. (Note. I don’t have Psoriasis - No issues with my skin) But my new dr wants me to go on #Sulfasalazine.... ‍♀️ Look it’s not as epic but still pretty risky. Lots of people are allergic - and get bad complications... it’s an immunosuppressant. Others say it’s changed their life. They feel 100%! So it’s about 50/50. I bought the meds, got interrogated by the pharmacist, cheers biatch and am tossing up whether to start in a week... ‍♀️‍♀️‍♀️ Feeling confused. I’ve seen my dad and his daily morphine & drug salad and I’m not keen. Never believed in all these synthetic drugs. If anyone else can relate, DM me. Let’s chat . So there’s a bit more about me. No ones life is perfect But I’m one tough cookie so mine is pretty damn close ❤️ . #LifeStory #PsoriaticArthritis #RheumatoidArthritis #WorldArthritisDay #AutoimmuneDisease #AutoimmuneDisorder #SamskiHealth

Хештеги на тему #SULFASALAZINE

I've been taking some new drugs for my autoimmune disease for the last 3 weeks and I've really been feeling like shit. So shit that I went to the doctor. I described my symptoms, she shone a torch in my throat and said "of course you feel like shit, you've got the flu. Here's five days of antibiotics and stay in bed for the next few days. You'll be fine." I didn't even realise I had the flu ‍♀️ This is kindof like the time I had a chest xray and got all worried about a strange looking long skinny patch on my lung. Which I asked the Dr about and he peered at me over his spectacles with a concerned look on his face and told me that it was, in fact, my heart. Turned out he was looking at me like that to determine wheather or not I was serious with that question. Anyway it's quite a good thing I'm a florist and not a doctor. On the upside I've had time at home to play with flowers, in my pjs, with hot cups of tea and freshly squeezed orange juice, making whatever the hell I feel like. More my area of expertise, I think? . #autoimmunewarrior #whenwillwinterend #pinfrog


Хештеги на тему #SULFASALAZINE

“I’m not scay-ode, atchully, Mom.” He’s finished now with both procedures. . We heard the dr say the beautiful phrase “He is completely healed, no ulcers or inflammation.” PRAISE GOD!!! I am in shock. . The dr also jokingly said Brady’s colon looked so healthy, that “he could be a colon model” . . We are waiting to see him and take him to EAT!!! #bradyross #ibd #colitis #ulcerativecolitis #sulfasalazine



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